Need advice

[Jason the chef]

So after finding out after 2 years that I'm not type 1 I am type1 diabetic. I had partial pancreas removed 14 years ago. Now have trouble with scaring on bowel from same operation, now been put on trulicity which causes blocked bowel as side effect. I'm insulin dependant but yet insulin resistant. I've just had enough now. Please advise

 

[Ralph-YK]

Hi Jason.

So after finding out after 2 years that I'm not type 1 I am type1 diabetic.

It that you're now down as T2, or T1. Do you have insulin productions? Or has that been reduced? Did the op knock out you're insulin production?

 

[Drummer]

If your diabetes is due to surgery on the pancreas - isn't that type 3c?

 

[grovesy]

If you have had part of your pancreas surgical removed , you are more likely to be Type 3.

 

[Inka]

Hi @Jason the chef 🙂

Are you saying you’re now Type 2 in addition to the Type 1/Type 3c? That is, you need insulin but have insulin resistance?

What other meds are you on apart from the Trulicity? Are you following a particular diet? Are you overweight at all? What insulins are you taking and what doses?

 

[Jason the chef]

Wow lots of response, so medication
Metformin 1 slow release twice a day
Levemir 30 twice a day
Novarapid 30 three times a day
Atrostatin 1 a day
Was on invokana but it gave me thrush
Trulicity 1.5 once a week

Yes Im over weight but lost 10 kg since begining of year. I saw diabetic consultant yesterday not once did he mention type3

So yes I know I'm overweight but trying my best to lose more.

 

[Inka]

I hope I didn’t cause offence by asking about your weight - I apologise if so. Losing 10kg is fantastic, especially in these difficult times.

 

[Jason the chef]

No offence taken at all, who trusts a skinny chef lol

 

[Inka]

Very true!

 

[Toucan]

Hello @Jason the chef and welcome to our forum.
If it does transpire that you are a type 3C then another member @eggyg , who is also a 3c may be able to help you.
I have copied her in to this message.

 

[eggyg]

Hi @Jason the chef after a distal pancreatectomy ( removal of tail and body) in 2007 I was diagnosed as Type 2 three years later. I knew no different. TBF neither do the docs or nurses! It’s only since joining this forum 10 years ago that I realised I’m never going to produce any insulin of my own. I’m on the same insulins as you, but not as big doses, and also Metformin as I’m insulin resistant too. We’re not autoimmune like “ proper” Type 1s but NICE guidelines advise we are treat the same. Research Type 3c ( diabetes due to damage/ trauma to pancreas) and then go to your GP or DSN armed with that knowledge. I bet you’ve never been on any carb counting courses or anything have you? I’m assuming you take Creon, that messes up your BGs big style. We’re a weird and complicated lot! Any questions, however daft you think they are, fire away. Elaine.

 

[mikeyB]

Hello @Jason the chef. I couldn't agree more with @eggyg. I used to be a GP, and for sure I'd never heard of Type 3c diabetes, mainly because in those days it was quite rare. Now it as around as common as Type 1, and far, far less than T2. It's natural for a GP to see an overweight chef with diabetes as a nailed on T2.

That said, if your GP took one look at the NICE guidelines on treating diabetes caused by surgeons hoiking out half your pancreas, you should be on insulin. There's no problem adding in Metformin for insulin resistance, but you may be able to stop that as you lose weight.

My other point of agreement is being a Creonista. It does change the way you absorb food, because it is replacing the other deficiency in pancreatic function - its main one in providing digestive enzymes.That can be tricky to get right; the dose of Creon is different for everyone, but that is road you have to get used to, I'm afraid. There are a few us about, more on the pancreatitis forum, but the diabetes aspect is not often mentioned on that forum.

And finally, thin chefs - Tom Kerridge has lost a shedload of weight, and has made a fortune telling folks in his books how to do it

 

[Deleted member 27171]

Hi @Jason the chef

My initial reaction was also to query whether you could have Type 3c .

The following link provides a simple introduction to it that may be helpful for beginning conversations with your doctor; https://www.diabetes.org.uk/diabetes-the-basics/type-3c-diabetes

 

[mikeyB]

I should add that I'm a reverse engineered 3c. I was T1 for 23 years before totally unexpected chronic pancreatitis reared its ugly mug. So I have all the problems that 3c brings to diabetes management,but greatly helped by the LIbre monitoring system. In fact, since I've had CP my HbA1c has actually improved.