Nearly 6 months of hyper to hypo's

[SunnyLouis]

Nearly getting an answer but it's all taking so long to be diagnosed. Definitely type 2 but the hypo's are twice a day. Finally saw the dietitian after 5 months and have been learning to balance my carbs. I have to eat bang on 3 hours or the start of a hypo. I'm eating low GI foods which help me go a bit longer. Learning what not to eat like white bread, cereal.......etc. Got a great App on my phone called Carbs & Cals. Still waiting for my gluecose test in hospital then back to the consultant. It's been a long process!

 

[Sara W]

This is extraordinary to me! Some of these stories of lackadaisical care for diabetes sufferers are bizarre, given it's a progressive disease. Are you in the UK?

Hypos and hypers can be very dangerous - what are your particular symptoms? Have you had a blackout and if so have you told your GP/ doctor?

I was diagnosed in a London teaching hospital three weeks ago after a fall down an escalator. I was knocked unconscious and they cut all my clothes off.... I was lamenting this to the Snr Nurse on the trauma ward, saying I'd only started wearing those favourite things again after 25 years, following massive weight loss... and given I'd had a fall/ blackout her alarm bells began to ring and - she decided to test my glucose levels. That was about 9.30am...

Cue the entire hospital diabetes team on my case! - I didn't have a spare minute all day, what with the Diabetes Nurse (several visits); hourly testing; an IV drip as I was so dehyrated; the occupational therapist showing me how to test etc; and the nutritionist giving me lengthy advice after finding out what I usually eat.

They were all very thorough, and faxed through a long prescription and all kinds of info to my GP Practice in Suffolk... When I got back I was given an appt with the practice's Diabetes Nurse within a week, and spent an hour with her on Monday - I'm seeing her again next Monday.

It sounds to me as though you should be more insistent on getting treatment - and you certainly need to be testing yourself daily!

 

[SunnyLouis]

This is extraordinary to me! Some of these stories of lackadaisical care for diabetes sufferers are bizarre, given it's a progressive disease. Are you in the UK?

Hypos and hypers can be very dangerous - what are your particular symptoms? Have you had a blackout and if so have you told your GP/ doctor?

I was diagnosed in a London teaching hospital three weeks ago after a fall down an escalator. I was knocked unconscious and they cut all my clothes off.... I was lamenting this to the Snr Nurse on the trauma ward, saying I'd only started wearing those favourite things again after 25 years, following massive weight loss... and given I'd had a fall/ blackout her alarm bells began to ring and - she decided to test my glucose levels. That was about 9.30am...

Cue the entire hospital diabetes team on my case! - I didn't have a spare minute all day, what with the Diabetes Nurse (several visits); hourly testing; an IV drip as I was so dehyrated; the occupational therapist showing me how to test etc; and the nutritionist giving me lengthy advice after finding out what I usually eat.

They were all very thorough, and faxed through a long prescription and all kinds of info to my GP Practice in Suffolk... When I got back I was given an appt with the practice's Diabetes Nurse within a week, and spent an hour with her on Monday - I'm seeing her again next Monday.

It sounds to me as though you should be more insistent on getting treatment - and you certainly need to be testing yourself daily!

Well I agree it's been a long time trying to deal with this myself. I'm lucky to be signed off but going down to half pay soon. I too have fallen over a few times! I originally went with symptoms of thirst, sweet taste, weight loss and exhaustion. I thought it was the stress of work. After blood tests they said I'm type 2 but showing signs of type 1. I only just go into a hyper and hypo but because of the shaking when I'm low, I have just had a few jelly babies or lucozade. Most of it I have found out and read myself, as all I was given was a few leaflets. What is so scary is that I have been driving and I dread to think what could have happened. The doctors have given me a blood testing machine, so I am testing before and two hours after food. I'm not on any medication yet (if any) I'm sorry to hear your story, that must have been terrible for you. My Sisters friend it took 5 years to get sorted.