Mickeyminime
Active Member
- Relationship to Diabetes
- Type 1
So, i'm new here. I'm not expecting much, but i thought i'd have my say with what i'm going through.
I was diagnosed with type 1 last september. I was expecting to be type 2 as it runs in the family.
My mother has it, my mothers mother had it (passed away from cancer). My fathers mother has it, his father also had it, but he too, passed away from cancer. My brother might have it, but also might be boarderlined. At one point, his levels where a little higher than my mums. His levels at the time where 11, since then, his levels have gone back to normal, so chances are, it's early days. I don't know about my father, i've not seen or spoken to him since 2010. Chances are, if his parents have had it, he will most likely have it too, but who knows.
As far as i remember being told, there where no signs of an infection or virus that could have caused it. I asked if they where positive that i had type 1 and the doctors pretty much grinded me with the "yes you are" talk if you get my meaning.
My levels are pretty much always high, even when i don't eat and i've taken the insulin before bed, i wake up to find that my levels have gone up, on the odd occassion, it goes up quite a bit.
I believe i know roughly when i became type 1, i remember being in extreme pain one time back in march last year, i must have passed out because the pain i experienced was where the pancrus is located. Months on, i noticed a huge difference from extreme weight loss, extreme drinking and even tiredness, weakness and sleeping a lot. Something i've always struggled with. Then when i had a hyper, i didn't know what it was back then, things got even worse. I still left it, but my vision was bad, i was all over the place, struggled to work, fuction and so on. Eventually i finally went to the doctors and i was told my condition was really bad. It was that bad i had the "skip the line pass" as i call it. In other words, if i was at the back of the line and had to wait 5 hours, all i had to do was call the doctors at the hospital and they would see me right away. I wasn't told what my readings where other than my sugar levels are extremely high, he had to check it twice and i'll never forget his facial expressions both the first and second time he did it. My ketones where dangerously high and my blood pressure was very high.
Rolling on, since my first main check up nearly 3 months ago, my levels are higher than when i was diagnosed. I've been told its meant to be 40 on the charts, but it's 90+. It actually confused me as the little device that tells you the levels only go up to 35, any higher and it just says HI, then the nurse kinda showed me the chart and told me where i'm supposed to be. Days later, i had an emergency appointment with the doctor and he told me If it wasn't for the insulin, i would be dead.
Since then, i've been taking more and bigger dosages of the insulin. Instead of taking 14 in total of the slow insulin, i'll take around 20, 10 in the morning and most of the time, 10 at night. The fast one, i was told to take around 6 before and after meals. The most i've had in one shot is 20 so you can imagine that i'm taking a lot of it. There have been times when the overdose gives me the hangover side effect where i'm more zombie than awake and aware of my surroundings.
I may also have a mental illness, it's not official, but i've always been angry, upset, moody, negative, hot headed and so on. I've never been violent, but i have caused harm to myself before. Some of us believe i have the mental illness as it would explain the attitude change in the past. it might have also been stress that pushed me to become type 1. I don't know if i was type 2 or boarderlined before i was diagnosed, so who knows. I remember being so down for so many years and i still pretty much am, so i'm pretty sure the diabetes couldn't have caused me to have break downs during the past many years.
I was bullied in school from infants to senior. There has been a bit of bullying at work in the past as well. The family was always distant and with learning problems, i found it impossible to communicate. I'm more of a keep to myself than a social person, i barely go out, i don't socialise, mainly because of how i feel deep inside.
Diabetes has taken a huge toll, specially at work. I work nights to avoid people as much as possible as the smallest of things drive me nuts and make me angry. I sometimes wonder if my anger, feelings, anxiety, pain and all might be the cause of my levels rising without food. I do have hypos at work, the lowest it's ever been was 3.7 and i wasn't even aware i was having it until the very last minute.
I do try to find peace when i can, but to be honest, i'm more one of those who just ignores problems that i go through, i near enough avoided going to the doctors to get checked out. The only reason i went is because quite a few colleagues where concerned with how i was, looked and acted. They even "threatened" to slap me if i didn't go. As funny as it was that i do have a few people who look out for me, i feel like everything i do becomes a problem.
Dealing with it has been so difficult. I've been out for long walks during the night and it does help. It's peaceful, quiet, dark and the cool breeze certainly helps.
I'm not expecting much from my next main appointment, i believe they said i'll see them in 4 months instead of 6. I wont be seeing the dietition until July, The optitions can't help me until my eye sight improves, it has its moments from ok to blurry.
I'm hoping that if things improve for me, i might be more peaceful, happy and more social, after all, the meaning of "you only live once" had no meaning to me until a few months ago.
I do appologise if its difficult to read. I've never been good at long messages.
Mikey
I was diagnosed with type 1 last september. I was expecting to be type 2 as it runs in the family.
My mother has it, my mothers mother had it (passed away from cancer). My fathers mother has it, his father also had it, but he too, passed away from cancer. My brother might have it, but also might be boarderlined. At one point, his levels where a little higher than my mums. His levels at the time where 11, since then, his levels have gone back to normal, so chances are, it's early days. I don't know about my father, i've not seen or spoken to him since 2010. Chances are, if his parents have had it, he will most likely have it too, but who knows.
As far as i remember being told, there where no signs of an infection or virus that could have caused it. I asked if they where positive that i had type 1 and the doctors pretty much grinded me with the "yes you are" talk if you get my meaning.
My levels are pretty much always high, even when i don't eat and i've taken the insulin before bed, i wake up to find that my levels have gone up, on the odd occassion, it goes up quite a bit.
I believe i know roughly when i became type 1, i remember being in extreme pain one time back in march last year, i must have passed out because the pain i experienced was where the pancrus is located. Months on, i noticed a huge difference from extreme weight loss, extreme drinking and even tiredness, weakness and sleeping a lot. Something i've always struggled with. Then when i had a hyper, i didn't know what it was back then, things got even worse. I still left it, but my vision was bad, i was all over the place, struggled to work, fuction and so on. Eventually i finally went to the doctors and i was told my condition was really bad. It was that bad i had the "skip the line pass" as i call it. In other words, if i was at the back of the line and had to wait 5 hours, all i had to do was call the doctors at the hospital and they would see me right away. I wasn't told what my readings where other than my sugar levels are extremely high, he had to check it twice and i'll never forget his facial expressions both the first and second time he did it. My ketones where dangerously high and my blood pressure was very high.
Rolling on, since my first main check up nearly 3 months ago, my levels are higher than when i was diagnosed. I've been told its meant to be 40 on the charts, but it's 90+. It actually confused me as the little device that tells you the levels only go up to 35, any higher and it just says HI, then the nurse kinda showed me the chart and told me where i'm supposed to be. Days later, i had an emergency appointment with the doctor and he told me If it wasn't for the insulin, i would be dead.
Since then, i've been taking more and bigger dosages of the insulin. Instead of taking 14 in total of the slow insulin, i'll take around 20, 10 in the morning and most of the time, 10 at night. The fast one, i was told to take around 6 before and after meals. The most i've had in one shot is 20 so you can imagine that i'm taking a lot of it. There have been times when the overdose gives me the hangover side effect where i'm more zombie than awake and aware of my surroundings.
I may also have a mental illness, it's not official, but i've always been angry, upset, moody, negative, hot headed and so on. I've never been violent, but i have caused harm to myself before. Some of us believe i have the mental illness as it would explain the attitude change in the past. it might have also been stress that pushed me to become type 1. I don't know if i was type 2 or boarderlined before i was diagnosed, so who knows. I remember being so down for so many years and i still pretty much am, so i'm pretty sure the diabetes couldn't have caused me to have break downs during the past many years.
I was bullied in school from infants to senior. There has been a bit of bullying at work in the past as well. The family was always distant and with learning problems, i found it impossible to communicate. I'm more of a keep to myself than a social person, i barely go out, i don't socialise, mainly because of how i feel deep inside.
Diabetes has taken a huge toll, specially at work. I work nights to avoid people as much as possible as the smallest of things drive me nuts and make me angry. I sometimes wonder if my anger, feelings, anxiety, pain and all might be the cause of my levels rising without food. I do have hypos at work, the lowest it's ever been was 3.7 and i wasn't even aware i was having it until the very last minute.
I do try to find peace when i can, but to be honest, i'm more one of those who just ignores problems that i go through, i near enough avoided going to the doctors to get checked out. The only reason i went is because quite a few colleagues where concerned with how i was, looked and acted. They even "threatened" to slap me if i didn't go. As funny as it was that i do have a few people who look out for me, i feel like everything i do becomes a problem.
Dealing with it has been so difficult. I've been out for long walks during the night and it does help. It's peaceful, quiet, dark and the cool breeze certainly helps.
I'm not expecting much from my next main appointment, i believe they said i'll see them in 4 months instead of 6. I wont be seeing the dietition until July, The optitions can't help me until my eye sight improves, it has its moments from ok to blurry.
I'm hoping that if things improve for me, i might be more peaceful, happy and more social, after all, the meaning of "you only live once" had no meaning to me until a few months ago.
I do appologise if its difficult to read. I've never been good at long messages.
Mikey
I never expect much and then I'm not disappointed. 
