Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
The family of a three-year-old boy with a rare, life-threatening condition are angry the NHS will not give him a drug that could cure him.
Fynley Murby was diagnosed with aHUS, a disease that attacks the kidneys, a month ago.
He now has to endure lengthy plasma replacement therapy in hospital in Nottingham three times a week, which keeps the symptoms at bay.
His family and consultant want Fynley to be given a new drug called Eculizumab, which could cure the disease.
http://www.thisisleicestershire.co....tory-18381777-detail/story.html#axzz2NE2vvCnB
Fynley Murby was diagnosed with aHUS, a disease that attacks the kidneys, a month ago.
He now has to endure lengthy plasma replacement therapy in hospital in Nottingham three times a week, which keeps the symptoms at bay.
His family and consultant want Fynley to be given a new drug called Eculizumab, which could cure the disease.
http://www.thisisleicestershire.co....tory-18381777-detail/story.html#axzz2NE2vvCnB