My son and diabetes stuff

[SunflowerMama]

My son us 15 now, a blink away from 1 year since diagnosis. He is showing lots of signs of either being out of the honeymoon period or his pancreas doing the absolute minimal now.

I find his levels are not the neat ups and downs they used to be... Plus, my son doesn't seem to want to manage his evening/night insulin properly. By this I mean he eats so late, doesn't have time ti split the bolus before sleeping, then somehow its not effective in reasonable time and he stays high 3/4 if not the whole night.

I have spoken to the DN about it and she says he has to take responsibility and manage it and learn. That it's his diabetes so up to him. Reasonable but hard to accept as a parent. He has his usual 3 month appointment next week so they are going to give him time on his own to discuss and instruct him.

I think a year on, it's still kind of hard to deal with it. I only just don't cry each time any more.

 

[SB2015]

My son us 15 now, a blink away from 1 year since diagnosis. He is showing lots of signs of either being out of the honeymoon period or his pancreas doing the absolute minimal now.

I find his levels are not the neat ups and downs they used to be... Plus, my son doesn't seem to want to manage his evening/night insulin properly. By this I mean he eats so late, doesn't have time ti split the bolus before sleeping, then somehow its not effective in reasonable time and he stays high 3/4 if not the whole night.

I have spoken to the DN about it and she says he has to take responsibility and manage it and learn. That it's his diabetes so up to him. Reasonable but hard to accept as a parent. He has his usual 3 month appointment next week so they are going to give him time on his own to discuss and instruct him.

I think a year on, it's still kind of hard to deal with it. I only just don't cry each time any more.

Good to have your update. Thank you.

It is not a surprise that you still find it difficult to deal with your son’s diagnosis. I still have a sit down and cry now and then and that is 15 years on, and my own diabetes. I feel it is so much harder for parents, and especially as your son takes on the responsibilities associated with his condition.

it is good that he will have time on his own with the PDSN, and this will help to start the transition as he takes on more and more. There is a lot to learn and as we are all different we each have to find our own solutions to fit our needs. Let us know how he gets on.

 

[Thebearcametoo]

They may change some of his ratios or his basal now and that will help. Split bolus is really tedious when you don’t really want to be dealing with diabetes so if it can be avoided then that’s better (even if you get better numbers with the split). A lot of diabetes management is about having the best results with the least effort so it’s hard to get perfect numbers. If he’s not on a pump it might be worth pushing that before he ages out of paediatric care just because you get more support but a pump is still only a tool and not a magic wand.

Also worth remembering there’s high and there’s high. He can be running at 10-12 for long periods and still have a reasonable HBA1C.

 

[Lily123]

Sorry to hear about your son’s time dealibg with his diabetes

It can be hard for parents as well. Your son being able to talk to the PDSN on his own will help, sometimes with parents there it can be awkward to actually ask for help. In no way an I intending anything negative but it can feel awkward asking for help in front of others

As @Thebearcametoo says, there’s high and then there’s high to the point it affects HbA1C