My GP insists I do not have diabetes and will not treat me.

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I am getting very worried due to my GP's dismissive attitude to my health. I have Lupus, Fibromyalgia, rheumatoid arthritis, weak bones and high blood pressure amongst other things. Two years ago a stand-in Rheumatologist told me he was worried about my high sugar readings and that I had to check it out, however, following this, my GP, who had not mentioned anything about it to me, said I did not have high readings and all was normal.

Following this I saw another GP who said I should have more tests and again I had a had high reading, my GP again said it was OK as other tests showed a lower reading. One of my brothers told me my symptoms for diabetes was worrying and to re-check which I did last year. This time my reading were extremely high for HPA1C. The diabetic nurse who took my tests told me if these tests were high then I was a diabetic. However, 3 days later I was rung up by the surgery to say it was a mistake and I needed to take more tests. The following one was high but not at the same level. My GP said all was OK.

However, it was taken out of my GP's hands when the local hospital wrote to me to say they wanted to monitor me for 2 years for pre-diabetes, they were surprised that I only had two blood tests showing on the system (I have regular blood tests). A week later I was contacted to say that my results were too high and not pre diabetes and could not continue with the test as I was in the diabetes level, and to see my GP. My Mother and two brothers have diabetes type 2.

I have itchy skin (terrible) can only sleep 2 hours night time before going to the loo, if hot I faint or vomit, have to drink all the time or can't move my tongue, wee smells like sugar puffs, have sharp pains in feet and have had nerve pains in arms and legs for over a year now, sharp stabbing pains. My liver readings are excessive (abnormal on the blood test) but apparently 'normal for me'.

My GP has not forgiven me for asking to see another rheumatologist rather than my named one who she works two days a week with in the hospital. I had seen others in her absence. She was aggressive towards me in front of my daughter when she dismissed an emergency admittance into hospital for my kidneys plus chest infection as just being sick (vomitting). I pointed out I had had a letter following this, on file, from a hospital specialist who had to treat me the following week as I was so much worse by then. A hospital administrator told me that the GP had had 3 secret meetings to discuss me with the outgoing rheumatologist, following this my GP threatened to stop my treatment.

When my blood test showed 4 abnormalities, I found out by accident, including red blood cells being too small, the GP still did not contact me and then said all was OK. I am now unable see other GP's, once they see my notes they say they are unable to treat me but will make a note on the file. As my GP in only in 2 or 3 days a week it makes it difficult to be treated.

My family are now very worried that I am getting worse as I am so tired that I am walking into things and look terrible, and they believe it is in relation to untreated diabetes. My last fasting HPA1C was 6.6.

What should I do?
 
Hi Iona, welcome to the forum 🙂 I'm sorry to hear about all the problems you have been having. An HbA1c of 6.6% is marginal for a diabetes diagnosis, but given the other symptoms, family history and your previous tests then it does appear you should be being monitored more closely. I believe you can get a copy of your notes from your GP so you can find out what values your previous tests showed. I would suggest contacting the Diabetes UK Careline service - they should be able to tell you what steps you can take in order to get the care you are entitled to - details are here:

https://www.diabetes.org.uk/How_we_help/Talk-to-someone/Careline/

Good luck, I hope that you can get some proper care and treatment, if necessary, very soon.
 
Hello and welcome to the forum.

That is a sorry tale. :(

I did a bit of Googling (using the search "Bad GP relationship") and apart from suggesting going to a different GP practice altogether, it may also be worth having a chat with Citizens Advice?

As a first step, though, is it worth taking a step back? Maybe arranging a meeting with this GP to 'clear the air and start afresh' could be an option. At the very least it would show to any new GP that you had done your best to be a good patient.

I hope you sort things out though. Being ill is bad enough without any additional unneeded stress!

Andy 🙂
 
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Hi Iona, welcome to the forum 🙂 I'm sorry to hear about all the problems you have been having. An HbA1c of 6.6% is marginal for a diabetes diagnosis, but given the other symptoms, family history and your previous tests then it does appear you should be being monitored more closely. I believe you can get a copy of your notes from your GP so you can find out what values your previous tests showed. I would suggest contacting the Diabetes UK Careline service - they should be able to tell you what steps you can take in order to get the care you are entitled to - details are here:

https://www.diabetes.org.uk/How_we_help/Talk-to-someone/Careline/

Good luck, I hope that you can get some proper care and treatment, if necessary, very soon.
Thanks for your advice. I did have an HbA1c of 9 before but this was disregarded as faulty equipment!.
 
Hello and welcome to the forum.

That is a sorry tale. :(

I did a bit of Googling (using the search "Bad GP relationship") and apart from suggesting going to a different GP practice altogether, it may also be worth having a chat with Citizens Advice?

As a first step, though, is it worth taking a step back? Maybe arranging a meeting with this GP to 'clear the air and start afresh' could be an option. At the very least it would show to any new GP that you had done your best to be a good patient.

I hope you sort things out though. Being ill is bad enough without any additional unneeded stress!

Andy 🙂
Thanks for the advice Andy. I think if I spoke to my GP she would just be more aggressive. She turned on me during one meeting when I discussed one of my symptoms being in line with other Lupus sufferer's and also on the St. Thomas Lupus trust web site (I had asked a question and the administrator of the trust came back to me to say it was def Lupus and to ask my GP for something for it). It is a stalemate situation, the only thing I can do is go elsewhere.
 
Hi Iona, sorry you find yourself in this unpleasant situation with your GP. There is the 'NHS Constitutuion' with a formal staged complaints procedure should you wish you use it but somehow I think you'd be better to just change GP's rather than struggle on hassling with this one;

http://www.nhs.uk/choiceintheNHS/Rightsandpledges/complaints/Pages/NHScomplaints.aspx

You have multiple conditions many of which will overlap and impact on each other and in truth some will cause symptoms that mimic diabetes. I was interested to hear about your severe dry mouth with you having lupus and R/A because this sometimes causes Sjorgrens Syndrome (pronounced Show-grens) which also causes dry eyes and joint pain. Because it affects the salivary gland, it can leave you with a mouth as dry as sticks and people need mouth rinses etc. It can also impact on organs. I'm not suggesting you have this additional auto immune disorder but my friend who suffers with lupus, has this and it's often not diagnosed. Thought it worth a mention because not everything is diabetes related. Strange to say the HbA1c test was faulty...very odd!

I'd say cut your losses (even though this GP won't be a loss) and move on to a more responsive surgery. Your health is more important than her ego! Good luck!
 
I'm with the others Iona, your best move is to change to another surgery as, frankly, that GP's attitude stinks and your health is at risk if the situation does not improve soon. I'm not sure where you are located but there is database of all the surgeries arranged by postcode and rated for service on NHS Choices that you can consult (Link is for England and Wales). You can consult CAB as to your rights and, if you need support with the GP in the meantime, try contacting PALs who may be able to send someone to appointments with you to act as mediator and possibly get the woman to listen and be less aggressive. The last thing you need with problems like Lupus is extra stress and this adversarial relationship is not doing you any good at all. I hope you can get something sorted out very soon.
 
thanks for your response. You are right as the stress is terrible and I don't go to the GP unless it is serious, by which time I am quite ill. I need to make myself do something about it. Will look for the database you metioned.
 
Sorry to hear your having a rough time with it all, I would also look at changing doctors. I changed docs a good while ago as they were useless apart from a couple of the staff and when they left so did I. In the same boat again now as I know more about diabetes than the doctors at the practice and getting very little support from them. Ask around if possible to see what other doctors are like, then visit possible choices and ask them if they have a diabetic specialist along with your other needs.
 
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