my 7 year old son diagnosed thursday with type 1

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bumblebee

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hello everyone,
don't really know what to say...i have so many thoughts and questions that i don't know how to ask them, my husband and i have never known anyone with diabetes and so when our son had a blood test and his sugar was 32 we were in shock....still are really
i was hoping there might be other families we could chat with or anyone with time to talk
we have to check our sons blood 4 times a day sometimes more if the reading is high, and he has norvo rapid 3 times a day and then lantus once a day at night....i now am questioning everything i do...is it the right food can he have the pear he wants as they have natural sugars in and what about the milkshakes he loves as milk has sugar in too, i am so confussed with everything
 
Hi bumblebee and welcome wow 32 that is hi, did he have any symptoms you can think of looking back ?x we have many parents on here who are a wealth of knowledge and support they will help you know end and all of us will be there for you anytime you need us.
 
HI bumblebee

I am not a parent so I can not imagine how you must be feeling at the moment. There are a lot of parents on here though who will be able to answer your questions and reassure you. There is so much to learn, I am not suprised you are feeling confused and overwhelmed at the moment. I am glad you have found this forum already - you will get a lot of support here, and it is a really good place to have a good old rant and get things off your chest when needed.
 
Hi bumblebee, welcome to the forum🙂 We have many parents here actively involved and you will get some superb support and advice from them, I am sure. Look in the Parents section and it will give you some idea, and do please post your own questions, whatever they may be, nothing is considered 'silly'.

If you want a useful book, one that is thoroughly recommended is Type 1 Diabetes in Children, Adolescents and Young Adults by Ragnar Hanas (amazon link), which covers just about everything and is an invaluable reference - I find it useful and I'm 51!
 
hang on in there bumblebee ...we have got some of the most fantasic parents that help you and will link you to another web for children with diabetes if they are not on tonight they will be at some time tommorrow xxxxxx
 
Hello bumblebee

You are not alone. Us parents on here know how you feel and what you are going through. Please feel free to ask any questions on here, you will find lots of support.

My son was diagnosed 2.5 years ago at age 10.5. He is now 13.

I promise you that life does return to normal (all be it a new normal) and that things will get easier as you get to grips with everything, even though that may be hard to believe right now.

I am sure many other parents on this forum with reply to your post too.

Stay strong. 🙂
 
Hi Bumblebee, welcome to the forum.
 
Hi. Welcome to the forum. I'm glad you found us so early. Katie was dxd nearly 4 yrs ago and I've only recently found it. The people here are great. That book that Northerner mentioned is great - only just discovered that too! It is such a shock at first and life is thrown into chaos. We felt like we were bringing a newborn home from the hospital. But it will get easier. There is also an email group that I've just discovered too - www.childrenwithdiabetes.com.
Please ask anything , no matter how small you think it is.
 
Bumblebee - sorry you have to be here - but welcome to the forum!🙂

My son (11) was diagnosed just over a year ago and is on a pump now. He has better control on the pump and loves it!

I absolutely know how you are feeling right now - desperate - and as if your life is over and your world has been turned upside down - scared to let your son out of your sight etc etc etc..

But i want you to know that these feelings do calm down - they never go away - but you will learn to live side by side with diabetes and so will your son. I promise you that the sick feeling in your stomach will go.

We are all here for you and if you have any questions (which you will!) - we will do our best to help you. Are you carb counting? What sort of levels are you getting?🙂Bev
 
Thank you all

hi everyone,
thank you for all replying, i am so glad that i found this site.

It has made me feel "normal" with what i'm feeling about my son being diagnosed with type 1 diabetes.

I am really worried about the meals i am giving him the dietitian said our meals were fine and just not to let him snack inbetween, but i still feel like what i'm doing is wrong??? and i don't know why???
I am holding things together....i think, i can be strong when my son is around me, no problem i don't want him to see me upset and worry about me, but when i am away from him or when he is asleep i find my self crying and asking why this has happened? how will we get on with parties, days out, holidays, my list is endless.
I just cant get my head around it....what if he has a hypo?....or hyper?
how will i cope?
how will he cope?
what if i just panic and make him worse...i have read all the leaflets the hospital gave me and i just can't get my head to make sense of it and i don't know why?
i realise i probably sound silly but at night i am awake wondering if he is having a hypo while he is sleeping
i feel like i am going crazy with it all
 
Bumblebee, all your thoughts are normal and understandable. There is a process you have to go through emotionally before you will feel better. Don't fight it. Cry when you need to cry. Better out than in. You WILL come out the other side ok. I promise.

What routine are you on? We started on two injections a day which was a nightmare. So difficult and not at all practacle (spelling?). Well, that's only my opinion. Others find it ok. We only did this for four months. Then moved on to mdi.

MDI (multiple daily injections) gave my son, and us, our lives back largely. He could then eat what he wanted and when he wanted. Better blood sugars too.

The pump is one more step forward. More freedom and much better blood sugars.

Take one day at a time and slowly you will get to grips with it all.

I can't pretend the hard work or the heartache go but it is amazing when you look back and realise how far you have come.

I have said this before but: I had a son, then I had a diabetic, now i have a son who is happy, doing well at school, has lots of friends, lives a pretty normal life and has diabetes. You see? You will get there too. 🙂
 
hi mand

we are doing 4 injections a day, 3 are given before meals and the last one i give at 10;30 at night before i go to bed.
jack (my son) normally has a small snack when he comes home from school while he waits for dinner to cook but he can't have this now, but 2 hours after eating his tea he can have a snack
i am finding, and i know its early days, but his sugars are between 4 and 13 during the day but the evening meal at 5 they are around 16 to 20 and then at bed time they have been 25+
is it normal for his sugars to go up and down in this way?
 
Hi Bumblebee

So glad you are already on mdi. Much better i think.

Are you carb counting? If so, are you working on the same carb/insulin ratio for each meal?

My son is on 1:8 for breakfast but 1:10 for lunch and tea. His need for insulin is higher in the morning. Everyone is different.

Or it could be the long lasting insulin that needs adjusting?

Hopefully your dsn can work through this with you. Have you met her yet?

Do keep us posted on your progress. 🙂
 
Hi bumblebee

My son is 8 and was dx in Aug 09. I know how you fell but I found this site thanks to the lovely bev and everyone has given me plenty of advice, I don't know what i would of done without some of them. So ask any questions and we will all try and help.

Gem x
 
hi and welcome to the forum my boy is now 6 dont panic a lots of things wont make sense now give it a bit of time and every thing will go back to "normal" if we can say that xxxx daniela
 
bumblebee said:
hi mand

we are doing 4 injections a day, 3 are given before meals and the last one i give at 10;30 at night before i go to bed.
jack (my son) normally has a small snack when he comes home from school while he waits for dinner to cook but he can't have this now, but 2 hours after eating his tea he can have a snack
i am finding, and i know its early days, but his sugars are between 4 and 13 during the day but the evening meal at 5 they are around 16 to 20 and then at bed time they have been 25+
is it normal for his sugars to go up and down in this way?
Click to expand...

Bumblebee,
I am wondering why your son cant have the snack after school? The point about MDI (which your son is on) is that you can eat when your hungry and inject for it. Are you carb counting yet? If you are, then he should be allowed his after school snack and given the right amount of insulin to cover the carbs in the snack.

Also, have you been told how to 'correct' a high level yet? If not, ring your DSN and ask her to help you work it out. For example, my son needs 1 unit of insulin to bring him down 5mmols. But every child is different and it depends on the total daily insulin use. Your DSN will be able to help you with this.

If your not carb counting - this is probably why there are swings from high to low. If you are carb counting - perhaps the ratios are out. Or the other reason could be the food your giving. Foods that are fatty take longer to digest than something quick and so the insulin 'miss's' the food so there will be a low then a big high later on. This is complicated so dont worry about it for now!

I am also wondering why your giving the slow acting insulin at 10.30pm? It doesnt really matter when you give it - its just that it means you have to wake your child up and also you have to remember to do it! We used to our my sons just before his bedtime routinely. This could also be adding to the high after dinner levels. Sometimes the long acting runs out before the 24 hours - so there is a sort of gap between when it runs out and when you do the next one.

Hope this helps! Dont worry if you dont understand things - its early days and its so hard to take it all in - but you will get there.🙂Bev
 
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