• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

My 2yr old boy is type 1

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Minnie2019

New Member
Relationship to Diabetes
Parent of person with diabetes
My little boy was diagnosed in feb2019 nearly died he pulled through and just hadhis second birthday last week he just gone onto the pump and still finding it abit up and down getting him were he needs to be and which food dont make him high for long periods of time
 
Good morning Minnie, and welcome to the forum, that no one wants to need to join.
Sorry to hear about your son’s diagnosis, but pleased that you have found us.
It is good to see that he is now on a pump. It does take some time to get the pump sorted.

I was advised to make sure that I got my basal insulin sorted first. This involved doing some fasting tests. I am not sure how easy that would be with a 2 year old. Has your DSN talked you through how to do fasting tests.

With the foods that suit, it depends on each person. I had been eating porridge for a long time but I then saw what this did to my levels, and was surprised. That has been replaced with my own cereal. So perhaps it is a case of trying different things and making decisions based on what happens, perhaps by testing two hours after the meal to see if your son is back in range.

Another thing that I found has made a big difference to my post meal spikes, was the timing of my injections. It has taken some trial and error to work out the timing for each of my meals.

It is worth talking to your PDSN about the difficulties you are having with any of this as I am certainly no expert on paediatrics.

I will flag @Bronco Billy and @Sally71 as they both have experience of children with Diabetes.
 
Welcome Minnie

Glad he’s got a pump, is he also on a Libre or other monitoring system? It’s so hard when they’re so little. I hope you’re feeling well supported by your team and things are feeling more manageable.
 
Hello Minnie welcome to the forum. Sorry you found yourself here but a finer place for information you will not find, ask anything you like, stay connected with us.
 
Hi Minnie, welcome to the forum.

From what you say, I guess your son was in DKA when he was diagnosed? My daughter was when she was diagnosed aged 6. Our situation was similar to yours in that we nearly lost her. According to the doctor in A&E, if she had arrived half an hour later, we would have done. It’s a very, very scary thought, isn’t it? She’s 16 now, but I still look at her sometimes and ask myself, “what if?”

Once you get used to a pump, they can be really helpful in maintaining good BG levels because they offer such flexibility. That said, don’t start thinking you are a bad parent if this doesn’t happen all the time. One thing you will learn (if you haven’t already) is that type 1 has a mind of its own. Sometimes, you just have to accept this, shrug your shoulders and say, “that’s diabetes!”

Food is one of the trickiest things to get to grips with. Knowing how each food affects your son will be a learning curve that won’t happen overnight and will be a matter of trial and error. Have you been taught carb counting yet? A book you might find useful is about the G.I. index I’ll spare you the explanation of what the G.I. index is, but it may help you judge what effect certain foods will have on your son.

Another useful book is by Ragnar Hanas It’s very popular with parents and contain s so much useful information.

Take care and ask any question you feel you need to. No question is too silly, we’ve all been there.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top