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Mum to newly diagnosed type 1 6 yr old girl

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
How do/did people find it working with a child with type 1 ? I’m back to work Monday after a couple of weeks off and I’m dreading it
Does anyone work full time / part time ? I work school hours but I’m worried what I’ll do in the school holidays
But no point sitting at home overthinking everything everything has to be so thought out !
 
I work 5 days a week and work 2 jobs at the mo until the 20th when I am staying as a carer working 45 hours a week. I know it's hard and you feel you need to put your life on hold but you need to tell yourself that life can't stop and that you will have to go back to so called normality some time and now would be best then your daughter can get used to that routine early. Xx
 
Just try to get all the help you can. Family. friends.School holidays are tricky. Arrange activities for your daughter. You can be nearby reading a book etc. Make sure the people close to you are people you can trust.
It will all be ok. You may have to decide what works best with full time part time work. The hospital team should come to the school to train up teachers and TAs. It will all be fine. it will all get easier.
 
You may need extra time off to begin with but once things settle you will be back to being able to work as normal.

Don’t forget to apply for DLA - you can’t claim until 3 months post diagnosis but if you have it filled in and returned then the payment term starts from that date. We get mid level DLA. The diabetes nurse will give you a covering letter to support the application and there are good application notes online to help fill it in.
 
Had our first lowest hypo today of 2.9 but my daughter had no symptoms didn’t tell me see it coming etc .... we only knew when we did our mid afternoon test
Anyone else’s children experience hypos with no symptoms ?
I’m guessing she just doesn’t know how to explain especially only being on insulin 2 weeks it but she assures me she was fine and was happily playing Lego etc
It’s so worrying as she doesn’t know how they feel yet
 
I’m afraid this is one of the vagaries of type 1. My two have felt fine in the mid 2s, but have felt very weak in the low 4s. it can take time to develop hypo awareness, but it’s never guaranteed 100% of the time. All you can do is watch for the symptoms, particularly going pale, lack of concentration and lethargic movement.
 
Hypos are odd. Sometimes my daughter can feel one at 3.9 but not at 2.5

Things you can look for are her looking very pale, an odd colour around her mouth, her going a bit vacant or sleepy, suddenly going cold, being very hungry, being grumpy. But sometimes even then no one can spot them which is why we test. If she has no hypo awareness and given her age then she should qualify for NHS funding for a Libre or some CGM so keep her diabetes team in the loop.
 
Thebearcametoo said:
Hypos are odd. Sometimes my daughter can feel one at 3.9 but not at 2.5

Things you can look for are her looking very pale, an odd colour around her mouth, her going a bit vacant or sleepy, suddenly going cold, being very hungry, being grumpy. But sometimes even then no one can spot them which is why we test. If she has no hypo awareness and given her age then she should qualify for NHS funding for a Libre or some CGM so keep her diabetes team in the loop.
Click to expand...

That’s good to hear I’ll definitely look into that if she continues to have no hypo awareness, I’ll chat to her nurse next week
I suppose to it’s all new to us too so we don’t really know what we are looking for ? Thank you for the tips I’ll look out for those signs
Really appreciate all your advice
Thank you x
 
This first few hypos were so scary. I remember it well. The good thing is that with treatment they bounce back really quickly. It may take you longer to get over it though.
 
Other symptoms to look out for include suddenly getting very hot and sweaty, getting dizzy, shaking, and talking gibberish. There's a thread about different hypo symptoms here which include a lot more, I think: https://forum.diabetes.org.uk/boards/threads/what-are-your-hypo-symptoms.81992/

Everyone has different ones, and most of us have a range of them and don't always have the same ones each time we hypo, so it will take a while to work out which ones she gets. Most of us find the ones we get when our blood sugar is plummeting are worse than the ones we get when it has gradually got lower, and it may well be that your daughter had only very gradually gone down to 2.9 today and she will notice that she is not feeling well if her blood sugar is dropping faster.
 
Hi - we are struggling with giving nighttime insulin - we were told that the best place is top of buttock but my daughter absolutely hates it and we have tears every night - anyone else have same problem and do you give it anywhere else ? Help?!!! X
 
I’m slightly older than your daughter by a fair few decades but I can’t inject in bottom tried once it hurt and I did t like it so I use the top of my thighs. Alternating left and right each night. It doesn’t hurt at all there - occasionally it smarts a little. The DSN said put arms by side and imagine you have hands in deep pockets inject anywhere in that area. Another suggested top is an ice cube to numb it a little.

Hope you find something that works.
 
Top of buttock works for me, but I use sides of thighs as well and occasionally abdomen. Different sites work better for different people. Have you seen this diagram of injection sites, @Laurajane38 ?

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If changing sites doesn't help, it could be the insulin to blame rather than the site - which basal is she on? Some people find that some insulins sting. If that's the problem it should be possible for her hospital team to change her to a different one.
 
The top of the legs and the tummy are good alternatives.
 
My daughter hated injections in the bum as she couldn’t see and couldn’t control it. She does her basal in her thigh instead. We also moved it to the morning because it was much more difficult for her to do it when she was tired at the end of the day. If you’re going to move the time though work with your DSN as it takes a while to move it safely. We also moved from Lantus to Tresiba.

Do keep talking to your team. We had an easy first couple of months and then it hit my daughter that this was long term and it started to get more difficult. We had a rough few months with her struggling with everything from finger pricks to injections but is now doing much better. She was diagnosed in March.
 
Hi @Laurajane38 , I tried bum when on injections and it hurt lots.
I used to use top of left leg am , and abdomen during the day (easy access) , left leg pm.
I hope your daughter can sort out what works for her
 
Hello @Laurajane38

Sorry to hear about your daughter’s diagnosis.

I’m another who used thighs as a site for long acting. I also found buttocks to be fine, but thigh was easier to access!
 
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