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Mum to newly diagnosed 4 year old girl

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Lindsayd

New Member
Relationship to Diabetes
Type 1
Hi

My daughter was diagnosed with type 1 on Saturday. Very overwelming and complex week. She is a twin and her twin sister was checked, but currently her levels were fine. My eldest daughter was not checked. I'm in a constant state of internal worry and just can't relax. Just wanted to join and say hi. I have no doubt I will be asking lots of questions
 
Hello @Lindsayd , welcome to the forum though I am very sorry to hear that your little girl has developed T1. I assume that she was rushed into hospital very ill.
I
How is your daughter getting on now.

I cannot even begin to understand the hell you must be going through right now . It is only natural to be worried and distressed, try to be kind to yourself ok.
We have quite a few parents with youngsters with T1 on here hopefully they will be along later today. Other than what I have learned in here I have no experience of T1 and you need their first hand experience.


Ask all the questions you need to, we will do our best to help.
 
Hello and welcome. It is overwhelming to begin with but you will get the hang of everything. Take some time to get over the shock of it and start to get the hang of the daily management. Have you got good support from your diabetes team? We found them invaluable in the first few months.
 
Hello @Lindsayd and welcome - sorry to hear about your daughter, and about how much her diagnosis is worrying you - which is not surprising - but you've come to the right place to get information and support.
@Bronco Billy has 2 children with type 1 so he is likely to have lots of good advice for you.
 
Hello @Lindsayd

Welcome to the forum, but sorry you have to be here.

There are lots of experienced folks here with literally centuries of lived diabetes experience between them.

Feeling shocked and overwhelmed is completely understandable. But diabetes is generally a slow-moving beast, and you should have plenty of time to get your head round things.
 
Hi Lindsay, sorry to hear of your daughter’s diagnosis.

What you are feeling now is absolutely normal and natural. It won’t seem likely now, but I promise it will get easier and you will worry less. As parents, we never stop worrying about our children, but this is increased with type 1. Over time, you learn to relax and realise that it is unlikely anything bad will happen. Now is the hardest time, everything is confusing and complicated, not to mention the new lifestyle you are all adapting to. I promise it will become easier. Every day, you will be a bit more experienced and knowledgeable than the day before, even if you don’t realise it. Eventually, everything that is difficult in some way now will be routine to the point where you don’t really notice you are doing it.

I totally understand that you are worried about the siblings. If you are looking for a positive spin on the situation, it is this; if one of your other daughters does get type 1, you will probably spot it coming a mile off, just like we did with our son, so it will be diagnosed early. I won’t deny it is tougher with two, of course it is, but, just like with one type 1 in the family, it all becomes a routine part of everyday life. I sometimes think it has helped both of mine to have another in the house with type 1. It means that there is someone who ‘gets it’. They know what a hypo feels like, what it’s like to do blood tests several times a day etc.

My two were diagnosed at a similar age. My daughter was 6 and my son had recently turned 5. As they started getting older, we adopted the approach of trying to include them in the decision making etc to help them know what to do when they are away from us. Naturally, there won’t be too much of this for perhaps a couple of years, but I’m sure you appreciate the importance of increasing their independence. Mine are now 16 and 14. My daughter smashed her GCSE’s this year and has swum for her local swimming club, and my son has just gone up another belt in taekwon-do. I’m not telling you this to show off (honest, guv!) but to show you that your daughter will still be able to do anything she wants. Yes, diabetes will be something that has to be considered in everything she does, but it won’t stop her doing anything. Anything is possible with a bit of thought and planning.

Please feel free to ask any questions, there’s no such thing as a silly question.

Good luck.
 
Welcome to the forum @Lindsayd . Sorry to hear of your daughter’s diagnosis, and it is no wonder that you will worry. However as others have said, this is a manageable condition, once you have got your head round it all.

There is so much to take in at the start, and also to get used to doing, but it DOES GET EASIER. Keep in touch and keep asking any questions that you have.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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