Mum to 10 year old just be told has TYPE 1

[Karen Gaskell]

Hello everyone, since Thursday lunch time our world has just totally take a new direction.

Took my son to Dr to get blood results after doing a 12 hour non fasting, to be told next stop A&E.

Bless since June of this year my son has started to have behavior problems at school, it was 1st believed it was because we had just moved areas / schools, When we returned in September he was seen by the school nurse, whom after seeing for 6 weeks confirmed that everything was fine, but had reported to school that she believed he was losing weight, and advised us to approach the Dr to get his weight, height checked. This was done and nothing on towards was high lightened, but school nurse advised us to go back to Dr as outburst as school were now getting worse, and exculisuion had happened, therefore emergency bloods were done and 2 weeks later we found out why.

On arrival at A&E, blood sugar was done 24.5, the next 28 hours just became a totally blur, the hospital in my opion could have speedy things up, as we were left in waiting room with a very hungry 10 year old for hours, we were sent home at 10pm after he had his 1st injection and asked to to come back at 7.00 for breakfast and next injection, due to the left hand not talking to right hand he did not have his injection / breakfast till 10.30am,

We now home and trying to get our heads around all this, I had to make a call to emergency number as I completely forgot what to do, and I cant fault these people.

Still busy registrating all the monitors and now receiving emails for people / groups.
If there is anyone in Hertfordshire and point me in direction of support groups.

 

[stephknits]

Welcome Karen. Sorry to hear of your son's diagnosis. It doesn't sound like you are getting enough support from the hospital team. There are loads of amazing people on here who can answer any questions you may have and generally provide friendly support. We recommend the book type 1 diabetes in children , adolescents and young adults by Ragnar Hanas. It is very clear and detailed and a useful reference. You are right about the moodswings and problems your son has been having at school. When my blood sugars were always high (before diagnosis) i could not control my temper and would snap at my children over anything. I could feel the rage boiling up inside me. As a generally placid person, I found this frightening, and I am a grown up, so I can imagine how your son must have felt. Once his levels are better, he will feel back to himself.
What insulins has your son been put on? Let us know how you are getting on

 

[Flower]

Hello and welcome Karen🙂

I'm sorry to hear about your son's diagnosis. It is a huge shock to all concerned and you have no time to adjust gently to the new situation. It will and does get easier although at present that may feel unlikely. Young children are resilient and get on with things so well. The technology available to help manage diabetes is getting more and more advanced and that helps enormously.

There is a wealth of information, experience and kind support on this forum, there is also a parents section. There's a lot of information on the Diabetes uk main site concerning Type 1 and children https://www.diabetes.org.uk/Guide-to-diabetes/Your-child-and-diabetes and here https://www.diabetes.org.uk/guide-to-diabetes/your-child-and-diabetes/schools/parents

I can remember the terrible mood swings I had as a young girl prior to diagnosis I was a completely different character to my normal self but as soon as a steady insulin supply is re established you start to feel so much better and once things have settled down I'm sure your son will be back to his normal character.

I wish you all well and hope you are able to get good support from his diabetes team. The jdrf also has a wealth of information specifically on Type 1 .https://jdrf.org.uk/get-involved/

 

[HOBIE]

Welcome Karen 🙂

 

[Karen Gaskell]

Thank you everyone for your support x

 

[Ljc]

Hi Karen, welcome to the forum.