MUM OF TEENAGER-15 NEWLY DIAGNOSED 8th dec

Status
Not open for further replies.

delb t

Well-Known Member
Relationship to Diabetes
Parent
just stumbled across this website and realised others are in the same boat as ours -we have sort of got our heads around carb counting -ordered thebook recommended - have had our good days and bad -its a big help to know things will get easier its such a lot to take in- also our nurses said carrots and cucumber were free as are 8 grapes -not too exciting I know -they have also given us carb counting for greggs .KFC ETC
 
Last edited:
Hi delb t, welcome to the forum 🙂 I'm presuming it's your teen who has been diagnosed, not you - it would be a good idea to change your profile to 'parent' if that is the case 🙂

You've done well starting to get to grips with carb counting already. As time and experience will teach you it's an important, but not the only factor involved in deciding on correct doses. I'm not entirely sure I agree with 8 grapes as being 'free carb' - these things need to be determined by testing the levels to see if they cause any spike, and grapes are notoriously sweet. People can have very individual responses to different foods so it's important to determine how things affect the person. You might like to enter our competition to see if you can win a Carbs and Cals book - have a look in the competition section 🙂

Please let us know if there is anything that is confusing or troubling you and we will do our best to help! 🙂
 
Have now changed my status-thanks for your reply i'm sure we will have lots of questions in the future-it was the dietician who said 8 grapes-they have given us a carbs and cals book from the hospital- we live in birmingham and the support is really good with a 24 hr phone support if needed- and we have needed it to start off with
 
Hi and welcome to the forums.

Have you heard of the children with diabetes web-site

http://www.childrenwithdiabetesuk.org/

they have mailing lists and maybe able to put you in touch with parents in your area.

On the grapes front - I was told not to have any more than 5 at a time.
 
Have now changed my status-thanks for your reply i'm sure we will have lots of questions in the future-it was the dietician who said 8 grapes-they have given us a carbs and cals book from the hospital- we live in birmingham and the support is really good with a 24 hr phone support if needed- and we have needed it to start off with

That sounds great - you'd be shocked at how many people get very poor levels of care, so it's good to hear of a clinic that is on the ball 🙂 We have lots of parents looking in, plus it can also be very useful to hear of the experiences of adults who were diagnosed as children and have grown up with diabetes as your teen is now doing 🙂 No question is considered 'silly', so ask away! 🙂
 
Hi delb t. Welcome 🙂

What insulin regime have they put your son on ?

There seems to be some differences of opinion between areas as to how the newly diagnosed should be treated.

Rob
 
Hi delb t, welcome to the forum! As you've probably gathered by now, this is a great place to be!

Congrats on being given the Carbs and Cals book; it was recommended to me by my hospital (although I'd already heard of from this forum), but I had to buy my own copy. :( It was worth getting however...
 
Hi and a warm welcome to the forum
 
To start with they have put him on Novorapid with each meal - (1 unit per 10 g carbs generally), and one nightly dose of 20 units of Lantus.
Although as we have reported his blood sugar levels every few days to the
Diabetes team they have tweaked the amount of Novorapid, sometimes 1.5 units per 10g carbs depending on pattern of previous readings.
I suppose we will be continually changing until he becomes more settled in his readings.
 
Hi delb t welcome to the forum. Everyone's really friendly and helpful here 🙂
 
To start with they have put him on Novorapid with each meal - (1 unit per 10 g carbs generally), and one nightly dose of 20 units of Lantus.
Although as we have reported his blood sugar levels every few days to the
Diabetes team they have tweaked the amount of Novorapid, sometimes 1.5 units per 10g carbs depending on pattern of previous readings.
I suppose we will be continually changing until he becomes more settled in his readings.

It's good that they've put him straight onto MDI. It is the best method of control other than a pump.

You'll also find that the ratios and the basal needs do tend to change continuously, or at least cyclicly, as the years go by. Exercise levels, weight, weather will all play a part in modifying insulin needs.

You sound as though you've made a great start and have decent support. I hope we can help to fill some of the gaps for you.🙂

Rob
 
Hiya - lovely Xmas present, not!

There are NOT Nil carbs in grapes, even if you only have 1. and 10g carb was always 5, but maybe more of the seedless ones which weren't about all that much in 1972 when I was told that! Same with carrots. But bearing in mind the modern approach is to not inject extra fast-acting for snacks less than 10g carb, then that is probably what she meant.

But I thought to myself in 1972, who the hell can stop at 5? and I have literally NEVER bought or eaten a single grape since then*. Patti - a member here and elsewhere - describes them as 'individual little bags of sugar' - and that's about right IMHO!

* except thoroughly squashed and fermented of course! - even subsequently distilled and bottled with a label eg Courvoisier VSOP etc ......

I tell you what else is good - the Collins 'Gem' CALORIE counter. Gives cals, carbs, protein, fat and fibre for 1,000's of foodstuffs, all expressed per 100g weight, or 100ml if it's liquid. Very very useful for cooking purposes. And various supermarket own brand stuff, although most UK packing materials have the carb count on the label. (They do a carb counter book too but it's too vague - eg A third of a baguette = whatever - but how big was the original baguette? - doesn't tell you ....)

Good luck !
 
Just noticed that you say you're from Birmingham.

It may be a bit far off, but I suppose with luck we might see you (and your son?) at the Birmingham Forum Meet on September 15. 🙂 They're very informal, you would probably enjoy meeting the rest of us face to face (I do, despite being a rather shy person). There might be other meets you could make, depending on your circumstances, such as the London ones (I made the last Brum meet) or the Brighton one (I think some of the Thameslink services run straight through -- or getting a coach to Victoria Coach Station in London, and changing to another coach, would probably be straightforward).
 
I was with the Birmingham Children's Hospital team for all my paed care (age 2 - 19) so I know them well and keep in touch with the nurses there. They are fantastic, really supportive - I guess you could be under a diff hospital depending on where you're living (I grew up in Kings Heath/Stirchley).

Welcome 🙂
 
yes its the childrens hospital we are with-out of interest how have people got on going abroad? we were thinking of planning an easter break to get some normality back -i know we would have to get some decent insurance cover- say with diabetes uk -but how can u find out what medical services are in a resort and what would the EHIC cover etc
 
For what EHIC covers, see http://www.nhs.uk/NHSEngland/Healthcareabroad/EHIC/Pages/Introduction.aspx

Then, for what each country offers to holders of EHIC, see links from http://www.nhs.uk/NHSEngland/Healthcareabroad/countryguide/Pages/EEAcountries.aspx

For what services are in individual resorts, you'd have to look specifically at local websites and websites of tour operators.

Although I was diagnosed as an adult, going to spend Christmas with an uncle and aunt who lived on a small holding in Britanny, France, and then travelling round Belgium with an Australian friend, within a few months of starting insulin really helped me - particularly as I was started on bimodal insulin, didn't know any different (no internet in 1996), but a few weeks after Belgium, the Tasmanian pharmacist mother of my Australian friend sent me a photocopied journal article about MDI, and from then on, life became much easier and more exciting!
 
Hi Delb t and welcome from one parent to another.

We have travelled abroad several times since diagnosis almost 5 years ago. I buy the normal annual family travel insurance for europe (halifax and esure). So far I've always paid about ?10 extra to cover her diabetes. DUK travel insurance is expensive.

Make sure you always take double of everything with you and pack them in different cases. Insulin can't go in the hold (if you're flying), so make sure you have enough room for it in your handbag.
 
Welcome to the forum 🙂
 
Hi Delb t and welcome from one parent to another.

We have travelled abroad several times since diagnosis almost 5 years ago. I buy the normal annual family travel insurance for europe (halifax and esure). So far I've always paid about ?10 extra to cover her diabetes. DUK travel insurance is expensive.

Make sure you always take double of everything with you and pack them in different cases. Insulin can't go in the hold (if you're flying), so make sure you have enough room for it in your handbag.

Very good advice re taking double and not putting supplies into the hold.

It's worth calling your airline beforehand and explaining that you will be carrying prescribed medication with you, most airlines should be familiar with insulin/needles etc, when I flew with easyjet in May 2011 I was allowed an extra hand luggage bag to put it all into (and which I squeezed a few other bits into as well, namely a towel and some shoes!).
 
I was with the Birmingham Children's Hospital team for all my paed care (age 2 - 19) so I know them well and keep in touch with the nurses there. They are fantastic, really supportive - I guess you could be under a diff hospital depending on where you're living (I grew up in Kings Heath/Stirchley).

Welcome 🙂

Gone off the thread here but interested that you grew up in Kings Heath; thats where we live...🙂
 
Status
Not open for further replies.
Back
Top