mum of 7 year old diagnosed T1

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smudgers5

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hello, I'm new on here - I'm the mum of a 7 year old boy who was diagnosed type 1 a month ago.. I seem to spend half my life now looking for information on TI now so thought I ought to join something to see how everyone copes!
 
Hi there and welcome,
You will find there is a wealth of support and advice available here and no doubt someone will be along soon with other relevant links you may find useful. It can be incredibly difficult in the early days but educating yourself is the way to go and I think key to getting the best control for your son. What insulin regime is he on just now? How is he coping with things? I found myself going through so many emotions in the early days - guilt, fear, frustration, grief but it does get easier and it makes a big difference being in touch with people in the same boat.
Ruth x
 
I only joined this week so also very new but you find loads of information on here and lots of support, my 8 year old daughter was diagnosed only 1 week ago today so we are very raw still, I have joined a mailing list that has ben fantastic for parents going through this, you need to register on the following address

http://www.childrenwithdiabetesuk.org/

I strongly reccomend you check this out

Sending you huge hugs xxx
 
Welcome to both of you from another parent, though my son was 15 when diagnosed just over a year ago. Bit of a bumpy road ahead, but with education and help from the wonderful people on here, you soon find ways to cope with it all. Any worries, just come on here, people are so helpful and friendly. It's good sometimes just being able to talk to people who understand where you are coming from.
 
smudgers5 said:
hello, I'm new on here - I'm the mum of a 7 year old boy who was diagnosed type 1 a month ago.. I seem to spend half my life now looking for information on TI now so thought I ought to join something to see how everyone copes!
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Hi smudgers5, welcome to the forum 🙂 Very sorry to hear about your son's diagnosis, but you have done absolutely the right thing by seeking support here. We have lots of parents who are also members of the childenwithdiabetesuk website, so if you join there you will nodoubt meet some of the same people. Here we operate a forum, whereas the CWD site operates mailing list, which is the primary difference, but there's no reason you can't use both! 🙂

Here you will also learn about the experiences of people who have grown up with diabetes, and their stories can be very encouraging, knowing that it is possible to live a full and happy life just like any other person - diabetes doesn't have to stop your boy from achieving everything he wants. In addition, the good news is that knowledge and treatments are improving all the time, offering even better chances for him as he grows up 🙂

It's worth looking in our Useful links thread - JDRF offer a lovely welcome pack with free Rufus bear, and I would highly recommend getting hold of a copy of Type 1 Diabetes in Children, Adolescents and Young Adults by Ragnar Hanas. It will explain everything you need to know about living with Type 1. Well, maybe not everything, but for those things it doesn't, you have us!

Also, take a look at Adrienne's post in the parents section, a guide to what you can expect in these early weeks and months.

What insulin regime is he on and how is he coping with things? Please ask anything that may be worrying or confusing you - nothing is considered 'silly' - there is a lot to take in, especially at first, but you will get there! 🙂
 
Welcome Smudger - sorry you have to be here, but as others will say, it's npt the end of the world, but there's a lot to learn / cope with, and members here can help as much a possible, so juts ask.

As well as other parents, there are also members who were diagnosed as children, who can help (not me, as I was diagnosed as an adult).

Also, there's a sticky in Parents section, written by Adrienne, a mother of a child who needed insulin from babyhood.
 
Hello and a warm welcome from me too x 🙂
 
Hi smudgers5,

Welcome to the forum 🙂

I only joined (20/09/2011) 4 months ago, im always on here asking questions about this, that & the other & the response & help you'll get is fantastic, believe me you've joined the best place!

Good luck for your son 🙂

Gill
 
Hiya Smudgers5

Am so sorry to hear about your son's diagnosis. It is just heartbreaking. I've heard of three new children just these last two week, the last one was an hour ago, gutting.

Anyway welcome to an excellent forum. There are some really (well all of them not some 😛) great people here with loads of knowledge and its kind of good for us parents to see adults with type 1 bobbing along nicely. Its a lovely picture of things hopefully to come with our kids.

Am loving Kelly's message to you as well, as she is extemely knew to this as well and has got right stuck in on the email group of Children with Diabetes (CWD), the link she has sent you.

Its great to be part of both. Take a look but you may need a separate email account totally for the CWD email group as it is busy (ask Kelly, she did just that 🙂)

Anyway see you around and take care.
 
hi and welcome -we are a month diagnosed too -lots to try and take in - not sure how much i can remember-weve got to grips with carb counting- eaten out twice-christmas shopped with the help of a subway eating out carbs list-a few meltdowns-thats me not my son! lots of good advice given on here from parents who have many years experience- welcome and hugs
 
Another hello and welcome. (but sorry you have to be here)

Tell us a bit about your sons treatment and fire away with any q's or just RANT. Either can be very helpful!
 
My son is on novorapid before each meal plus levemir before evening meal (so four injections a day) he's learnt to do his own glucose checks now, sets up the injections perfectly and is really good at telling us how he is feeling so picks up any potential hypo situations quickly... I get really angry/frustrated/emotional that he's been diagnosed but I am also really determined to get to grips with this and help him as much as possible. He is generally really positive but we have our moments when he is really angry and upset which i know is normal and natural but its really hard not to break down with him! thank you so much for all your really helpful and nice replies. sarah
 
You (and he!) are doing really well - even I sometimes have times when I feel angry and upset and I'm 53! Something to bear in mind as well is that higher levels can make you moody and upset and some people find low levels make them more angry and aggressive - but it can be different for everyone.

You sound really positive and it will all come with time and experience 🙂
 
Hear Hear Northie - I was diagnosed when 22 and married - and I most certainly have had attacks of the Why Me's? over the years. Got less frequent commensurate with how long I'd had it.

So both your son and you are entirely normal ! {{{Hugs}}}
 
I'm so sorry you have to be here, I cannot imagine having my little ones go through this but this place is full of wonderful people with so much help to give, I hope it helps you, just take a day at a time xxx
 
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