suzanna valentine
Member
- Relationship to Diabetes
- Type 2
Hi,
My sugars have generally been uncontrolled for years no matter what medication I have been on. I have an anxiety disorder and depression for which i've always been treated. But this means I am an emotional eater. I don't have to be hungry to eat. So simply suppressing my appetite has never helped. My sugars have generally been up in the mid 60's. I was on gliclacide and Jardiance for a long time which just seemed to make my appetite worse and never lowered my sugars. But they kept me on it. Then Mounjaro appeared and around summer last year i was put on 2.5. It did nothing. It was raised to 5 which did nothing. Then 7.5 with the same outcome. Then 10 and suddenly I felt the difference. Not only did it suppress my appetite but it had a big effect on my emotional eating. Hard to explain but it also seemed to click off the switch that told me to eat even if not hungry. I was 11st 2 and am 5ft 4, when i started the 10. 6 months later i'm in a healthy weight, although at the higher end of 9st 9. I've dropped two dress sizes. More importantly though my sugars have gone from 65 to prediabetes levels at 44. However, in the past 7 days my appetite has returned with a vengeance. No idea why. So i contacted the diabetes nurse and asked if it could be raised to 12.5 in order to ensure my sugars didn't rise yet again and i didn't pile the pounds on. (I'm 64 and weight loss is absolutely secondary to me but a great addition).
Edit: I've just though why are not they not removing the glicazide or jardiance or both first? Doesn't make any sense to me to not stop the things that do not help but to halve the things that don't. Shouldn't they remove those tablets first?
She called and was quite short with me. She said we don't give it for weight loss only and your sugars are good. I told her that my appetite had returned and along with a little weight gain already I was sure my sugars were also going to rise and it is showing on my own monitor that they are slowly rising. She wasn't interested and cut me off and not only refused to raise she said in another 8 weeks they were cutting it to a maintenance level of 5. This had no impact on my eating before and won't now. When looking online and at recommendations by the makers etc a lot in my situation have a maintenance level of 10. She was very impatient with me and I have to be honest that I was so happy when my sugars came down, that this has left me worried and anxious.
After that long winded yammer I guess my question is, is this what normally happens if you reach a weight and sugar level they are happy with. Is the dosage always cut in half and what do I do when it all starts to rise as with emotional eating it inevitably will. She didn't let me discuss anything with her over the phone and was very curt with me. It was never told to me that this would happen if things went well. I just don't see the point of having done any of it because without a doubt the moment i go down to 5 everything will go back up. I have no control over it on an emotional level due to the conditions I have. In fact they didn't know themselves what should happen after you get to a good level and had to have a little meeting to decide. Surely the makers give that information on what should happen.
Anyone who is in this situation have any advice for me please? I'd be grateful because am very concerned. Is this a normal maintenance? If 10 no longer works for me very well (and i also know it will all rise again because the last 2 days of the week when i'm due to take it again my eating always doubles as I guess the injection is wearing off). How will 5 keep me at the levels i am now?
From reading everything i could online
My sugars have generally been uncontrolled for years no matter what medication I have been on. I have an anxiety disorder and depression for which i've always been treated. But this means I am an emotional eater. I don't have to be hungry to eat. So simply suppressing my appetite has never helped. My sugars have generally been up in the mid 60's. I was on gliclacide and Jardiance for a long time which just seemed to make my appetite worse and never lowered my sugars. But they kept me on it. Then Mounjaro appeared and around summer last year i was put on 2.5. It did nothing. It was raised to 5 which did nothing. Then 7.5 with the same outcome. Then 10 and suddenly I felt the difference. Not only did it suppress my appetite but it had a big effect on my emotional eating. Hard to explain but it also seemed to click off the switch that told me to eat even if not hungry. I was 11st 2 and am 5ft 4, when i started the 10. 6 months later i'm in a healthy weight, although at the higher end of 9st 9. I've dropped two dress sizes. More importantly though my sugars have gone from 65 to prediabetes levels at 44. However, in the past 7 days my appetite has returned with a vengeance. No idea why. So i contacted the diabetes nurse and asked if it could be raised to 12.5 in order to ensure my sugars didn't rise yet again and i didn't pile the pounds on. (I'm 64 and weight loss is absolutely secondary to me but a great addition).
Edit: I've just though why are not they not removing the glicazide or jardiance or both first? Doesn't make any sense to me to not stop the things that do not help but to halve the things that don't. Shouldn't they remove those tablets first?
She called and was quite short with me. She said we don't give it for weight loss only and your sugars are good. I told her that my appetite had returned and along with a little weight gain already I was sure my sugars were also going to rise and it is showing on my own monitor that they are slowly rising. She wasn't interested and cut me off and not only refused to raise she said in another 8 weeks they were cutting it to a maintenance level of 5. This had no impact on my eating before and won't now. When looking online and at recommendations by the makers etc a lot in my situation have a maintenance level of 10. She was very impatient with me and I have to be honest that I was so happy when my sugars came down, that this has left me worried and anxious.
After that long winded yammer I guess my question is, is this what normally happens if you reach a weight and sugar level they are happy with. Is the dosage always cut in half and what do I do when it all starts to rise as with emotional eating it inevitably will. She didn't let me discuss anything with her over the phone and was very curt with me. It was never told to me that this would happen if things went well. I just don't see the point of having done any of it because without a doubt the moment i go down to 5 everything will go back up. I have no control over it on an emotional level due to the conditions I have. In fact they didn't know themselves what should happen after you get to a good level and had to have a little meeting to decide. Surely the makers give that information on what should happen.
Anyone who is in this situation have any advice for me please? I'd be grateful because am very concerned. Is this a normal maintenance? If 10 no longer works for me very well (and i also know it will all rise again because the last 2 days of the week when i'm due to take it again my eating always doubles as I guess the injection is wearing off). How will 5 keep me at the levels i am now?
From reading everything i could online
Last edited:
You will hit a dose that is right for you and you'll see how amazing mounjaro is re sugars and weight loss.
