Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
One in five people with motor neurone disease (MND) waits more than a year to see a brain specialist for help with diagnosis, a snapshot survey suggests.
The MND Association report, based on responses from 900 patients in England, Wales and Northern Ireland, says the delays stop people getting early care.
While the charity accepts a diagnosis can be "notoriously difficult" to make, it urges GPs to be vigilant about MND.
GP leaders have worked with the charity on a scheme to improve diagnosis.
About 5,000 people in the UK have motor neurone disease.
It is a progressive and incurable condition causing damage to the nervous system - which can lead to problems including difficulties with walking, speaking and breathing.
More than 50% of people with MND die within two years of being diagnosed. But care - such as breathing assistance and feeding tubes - can ease symptoms.
http://www.bbc.co.uk/news/health-36416676
Awful disease
I once almost got a job as Admin of the MND Forum and remember back then (2009) that one of the main difficulties the patients faced was delays in recognition, treatment and care - when life is most likely limited such delays waste precious time remaining and cause unnecessary suffering
The MND Association report, based on responses from 900 patients in England, Wales and Northern Ireland, says the delays stop people getting early care.
While the charity accepts a diagnosis can be "notoriously difficult" to make, it urges GPs to be vigilant about MND.
GP leaders have worked with the charity on a scheme to improve diagnosis.
About 5,000 people in the UK have motor neurone disease.
It is a progressive and incurable condition causing damage to the nervous system - which can lead to problems including difficulties with walking, speaking and breathing.
More than 50% of people with MND die within two years of being diagnosed. But care - such as breathing assistance and feeding tubes - can ease symptoms.
http://www.bbc.co.uk/news/health-36416676
Awful disease
I once almost got a job as Admin of the MND Forum and remember back then (2009) that one of the main difficulties the patients faced was delays in recognition, treatment and care - when life is most likely limited such delays waste precious time remaining and cause unnecessary suffering 
