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Davidleonard56

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Type 2
Hi, my name is David. I've been living with t2 for about 20 years. I had a bypass 8+ years ago to try and improve my condition but developed EPI thereafter. I have continued to have several more abdominal surgeries since. I've had to have my gallbladder removed, part of my small intestine and then a right hemicolectomy after developing a caecel volvulus and gangrene. I had a period of 5 years in diabetic remission, but it has now reared it's ugly head. Because of all the problems I have had I am now sure that my condition has switched to type 3c?, but my GP refuses to acknowledge my concerns.
 
Hello @Davidleonard56 and welcome to the forum.
Sorry to hear you have had so many medical problems, but I don't see anything about your pancreas listed, so it doesn't seem that you now have Type 3C.
However illness, injury, stress and various medications can all raise Blood Glucose, so perhaps that's what's going on.
 
@Davidleonard56 and welcome to the forum.
Sorry to hear you have had so many medical problems, but I don't see anything about your pancreas listed, so it doesn't seem that you now have Type 3C.
However illness, injury, stress and various medications can all raise Blood Glucose, so perhaps that's what's going on.

Hello @Davidleonard56 and welcome to the forum.
Sorry to hear you have had so many medical problems, but I don't see anything about your pancreas listed, so it doesn't seem that you now have Type 3C.
However illness, injury, stress and various medications can all raise Blood Glucose, so perhaps that's what's going on.
Hi ian, I developed endocrine pancreatic insufficiency and have over 20 cystic growths in my pancreas. At my last MRCP I was advised that I will at some point require a pancreatectomy.
 
Hi ian, I developed endocrine pancreatic insufficiency and have over 20 cystic growths in my pancreas. At my last MRCP I was advised that I will at some point require a pancreatectomy.
Hopefully some of the 3c members will be along to share some words of wisdom, you do seem to have been through it.
 
Hi Davidleonard56, welcome to the forum.

Sorry to hear about you're journey so far, sounds as though you've been through an awful lot so I'm glad you're here and can get some support.

I can see why you'd be concerned given your history. Would it be possible to ask for a referral? It may be helpful to speak with a specialist and discuss your concerns and at least get a clearer idea of what's going on.

Feel free to give us a call to discuss this or anything else you may need to talk about on 0345 123 2399.
 
Hello @Davidleonard56 and welcome.

I am not medically qualified, so my opinion is just that - a layman's opinion and potentially quite wrong! That said I suspect any decision to alter your diagnosis from T2 to T3c is not really in the gift of your GP. You need to get back to whoever looked after you when you had the abdominal Surgeries, particularly the gall bladder removal (HPB?) and have this discussion with them. Presumably your T2 diagnosis originated with symptoms of high BG. What diabetic symptoms have changed and are you still on oral meds (ie still treated as if T2)? Is that treatment no longer helping? With your multiple medical problems it is probably unreasonable and / or unrealistic to expect or hope that your GP can draw all the strands together and make different inroads that help you manage your diabetes.

Some 12 months after my pancreatectomy, I was still having multiple comorbidity probs and was fortunate enough to still be in contact with the HPB Dep't that had removed my pancy. A Consultant from that HPB recognised my dilemma of having very poor diabetes management and referred me to a Centre (in a different County) that specialised in 'unusual' diabetes and which had a track record with various artificial pancreas trials. That has proved to be a brilliant change (albeit causing some friction with my existing Endo and DSN team in my local NHS Trust; strange reaction on their parts - they weren't actually helping me, but resented my leaving them ... ?! I'm sharing this with you to illustrate that unusual arrangements for better medical cover can be achieved .... they just need the Patient to be prepared to politely but firmly say "HELP!" to whoever will listen - against the platitudes of "you are doing OK' ,even when I clearly wasn't really doing OK. My GP wasn't helping (I suspect couldn't help and essentially out of their depth) and it was down to me to reach out wherever I could.
 
Hi Davidleonard56, welcome to the forum.

Sorry to hear about you're journey so far, sounds as though you've been through an awful lot so I'm glad you're here and can get some support.

I can see why you'd be concerned given your history. Would it be possible to ask for a referral? It may be helpful to speak with a specialist and discuss your concerns and at least get a clearer idea of what's going on.

Feel free to give us a call to discuss this or anything else you may need to talk about on 0345 123 2399.
Cherelle DUK
I will be in contact with you at some point. Thank you
 
Hello @Davidleonard56 and welcome.

I am not medically qualified, so my opinion is just that - a layman's opinion and potentially quite wrong! That said I suspect any decision to alter your diagnosis from T2 to T3c is not really in the gift of your GP. You need to get back to whoever looked after you when you had the abdominal Surgeries, particularly the gall bladder removal (HPB?) and have this discussion with them. Presumably your T2 diagnosis originated with symptoms of high BG. What diabetic symptoms have changed and are you still on oral meds (ie still treated as if T2)? Is that treatment no longer helping? With your multiple medical problems it is probably unreasonable and / or unrealistic to expect or hope that your GP can draw all the strands together and make different inroads that help you manage your diabetes.

Some 12 months after my pancreatectomy, I was still having multiple comorbidity probs and was fortunate enough to still be in contact with the HPB Dep't that had removed my pancy. A Consultant from that HPB recognised my dilemma of having very poor diabetes management and referred me to a Centre (in a different County) that specialised in 'unusual' diabetes and which had a track record with various artificial pancreas trials. That has proved to be a brilliant change (albeit causing some friction with my existing Endo and DSN team in my local NHS Trust; strange reaction on their parts - they weren't actually helping me, but resented my leaving them ... ?! I'm sharing this with you to illustrate that unusual arrangements for better medical cover can be achieved .... they just need the Patient to be prepared to politely but firmly say "HELP!" to whoever will listen - against the platitudes of "you are doing OK' ,even when I clearly wasn't really doing OK. My GP wasn't helping (I suspect couldn't help and essentially out of their depth) and it was down to me to reach out wherever I could.
Hi proud to be erratic
You have some very valuable advice that I am going to explore. I suspect as you say that my poor GP is out of there depth with me and diabetes care in my area is extremely poor.
 
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