Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Maisie Harris, who suffers from Ondine's Curse which means her brain forgets to tell her to breathe, will get to sleep in her own bed thanks to a new ventilator.
The Minnie Mouse fan requires 24-hour ventilator treatment for the rare condition, which is medically known as congenital central hypoventilation syndrome (CCHS).
Her brain fails to send the correct messages telling her to breathe but Maisie also suffers from malacia of the airways - "floppy" airways that do not hold their shape properly.
http://www.standard.co.uk/panewsfeeds/maisie-3-goes-home-for-first-time-8860537.html
The Minnie Mouse fan requires 24-hour ventilator treatment for the rare condition, which is medically known as congenital central hypoventilation syndrome (CCHS).
Her brain fails to send the correct messages telling her to breathe but Maisie also suffers from malacia of the airways - "floppy" airways that do not hold their shape properly.
http://www.standard.co.uk/panewsfeeds/maisie-3-goes-home-for-first-time-8860537.html