Looking for MODY participants for Balance Magazine

[Josh DUK]

Hello Everyone,

We’re looking for someone that has MODY to be featured in our membership magazine, Balance. If that’s you, please contact Joanna through her email at joanna.bowden@diabetes.org.uk

Joshua Poncil
Online Community and Learning Manager

 

[everydayupsanddowns]

Not sure we have many MODY regulars at the moment Josh. It’s a select and very distinguished crowd! Hope you can find someone.

Perhaps someone will ‘de-lurk’ specially to take up the offer of Balance stardom?

 

[Robin]

@Stitch147?

 

[Stitch147]

Ive never had the genetic test to definitively prove that I am MODY, my surgery are not willing to pay for it even though my gp strongly thinks that I am.

 

[Northerner]

Hi @Josh DUK - I did a quick search of the database and it seems we have 77 people who have registered as MODY, although I'm not aware of any current regular posters (apart from Stitch, whose GP is too mean to confirm! 🙄) There are a couple of people who have joined in recent months, @TinyFrog1 and @samilou85, but hopefully others who have joined but not posted will see this and respond. I remember learning much of what I know about MODY from one of our original members and Moderators, @sofaraway, who I believe is now a DSN 🙂 She hasn't posted here for several years though. As @everydayupsanddowns says, it's pretty rare! 😱

 

[everydayupsanddowns]

Yes it was @sofaraway that I though of Alan. Hope she’s doing well.

 

[Rod HNF1A mutant]

A little slow to reply, for some reason I was unable to login using my previous information. I was diagnosed with MODY 3 a few years ago. But live in Canada🙂