Just joined this forum in hopes that it will help me cope with t1d , make t1d friends etc.

[fatlinda277]

Hello,hope.everyone is doing good. I dont know if anyone will be reading this but if so..just wanted to share my feelings as a t1d.I come from a small country where people have little or none knowledge when it comes to t1d.I've been diagonosed 6 years ago and at that time i was only 19 years old.Today only few fam members know about my condition and a few friends but i never open the topic for diabetes bc it always comes to a point where they will feel bad about me having it or i just end up in tears.I dont have or know any other person who has the same condition as me so i could at least share what i go through everyday .I used to see a therapist who ended up giving me anxiety and small deppresion kind of pills.I took the pills for more than a year.I somewhat started crying less but i still have negative thoughts everyday and it haunts me.I have a very loving husband who tries his best to look after me.he wakes me up during night time to check my glucose,he does that in the morning and during the day pushes me to check often.Anyway i cant find a way to talk about it with him or anyone without feeling sad.I ve lost hopes and have always been avoidin infos about diabetes bc it will always bring me into tears.Another fact that terrifies me is having a child one day .Everyone around hoping i get pregnant soon and i dont even want to think about it bc of my health! It is already hard as it is and i cant imagine how much harder pregnancy would be.Anyways ,wish u all the best.

 

[Northerner]

Hi Linda, welcome to the forum 🙂 Sorry to hear you have been having problems, but don't worry there are lots of people here who understand just what you are experiencing and we are very happy to talk about it 🙂 So, if we can help in any way, please let us know 🙂 What insulin do you use? What country are you from?

 

[SueEK]

Hello Linda, although I am T2 I just wanted to say welcome and you will find lots of friendly people who are very happy to help and support you. We may be a large/r country but I too know only one other person with diabetes and I met her through this site. It can indeed feel lonely but on here we are a family that look after each other x

 

[fatlinda277]

Hi there,thank you for replying.I live in eastern Europe in a country called North Macedonia.I use Novorapid pen and Levemir. I have been wanting to go on a pump that way I d have a 24/7h control of the glucose but docs have said that it is very hard to get it unless my hba1c was 8 or so.I aso attempted to get a dex com but here they keep sayin they will have them available but no luck.There is one good side of it that we get the pens for free but the downside is i cant get a better way of controling it 24h due to their lack of equipments.I have noticed that each three months my hba1c is going higher and with my anxiety and negative energy im having each day im finding it harder to control it.

 

[fatlinda277]

"SueEK, Forgive me if i cant reply to you or others directly im still new to this.Thank you for kind words

 

[freesia]

Hi. I'm sorry you are feeling so down. You aren't alone. I don't know anyone else around me who has been diagnosed as type 1 but i talk about it and am open with people all the time to anyone who will listen. Hopefully it will educate people around me about diabetes and they can support me or others they know with the condition. Joining the forum will give you lots of support and information to help. Have you been given any advice or support with carb counting and matching this to your insulin? (Sorry to ask this if you already carb count)

 

[rebrascora]

Hi Linda and welcome from me too. I was only diagnosed this year and I am on the same medication as you. I have suffered with stress and depression for years and when I get a bout of anxiety it really does push my BG readings up so I understand the problems you are facing. One thing which is helping me is to eat a low carbohydrate diet. I feel better mentally and it minimizes the amount of insulin I need, which reduces the risk of having hypos. It can be a very enjoyable way of eating once you get your head around it. There are quite a few of us here who eat a very low carb diet and feel it is beneficial and enjoyable and can lead to weight loss if that is something which may be beneficial to you.
It is wonderful that you have a lovely supportive husband but you are right that no one really understands this condition like another diabetic, so lots of us here to listen to your difficulties and be supportive and sympathetic but also offer advice. It has been an absolute lifeline for me being a member of this forum. I hope you find it equally beneficial.
I too would love a CGM like Dexcom or a Libre but not available to me yet and my own income is very limited so I could not fund it myself long term. I am hoping that I may eventually be considered for such a system through the NHS but I guess it is early days. Are there any courses available for type 1 diabetics in your country? We have a course here called DAFNE which stands for Dose Adjustment For Normal Eating. It is a week long course and from the blood tests they require prior to attending the course, it looks like they will assess and advise you on an individual basis taking into consideration all your personal readings. I appreciate that you live in a small country but there will be other Type 1 diabetics and having the opportunity to meet some via a course like this could be hugely beneficial. It would certainly be worth asking your GP or Diabetes clinic about it, if you haven't already attended such a course.

 

[KLF88]

Hi Linda, I’m new to managing the condition and am finding it an emotional roller coaster! Stress and depression is difficult enough to deal with on its own; but I’m hoping like some of the others have already said that if we talk about it more we can find a better place to be emotionally. Always around if you need to chat and everyone on the forum seems so supportive 🙂