Just found you

[Daisydog]

I started off seeing the hospital consultant, but got transferred back to my GP after a couple of years, because I was told we now had a 'specialist nurse' at our surgery. Turns out it's our ordinary nurse, who does everything else as well, like travel jabs, asthma clinic, etc etc, and who has only received extra training in Type 2 management! Fortunately, I get on with her and between us and the Internet, we muddle through.

Hi and thanks, yes this is exactly the same with my other half and it is muddle through...,,.

 

[Daisydog]

Well sorry if I were Robin, I'd be complaining frankly - unless you can instantly ring the actual experts and get the correct advice pdq whenever it should happen you're stuck and struggling.

GPs and surgery nurses simply do not get the all day every day experience of dealing with solely diabetics, that hospital D clinics do.

I could not possibly manage with my GP surgery alone - no instant grasp of whatever it is that's bothering a diabetic for starters - whilst clinics know it's bloody hard work managing it - which we all magically have to find extra time and effort every single day to fir in with having a life - GPs just do NOT grasp it. It's hard for them to actually grasp the proper self treatment we constantly need to do - and they find it totally unbelievable if we say eg Oh bum, I forgot to bolus for that piece of cake, or I've just taken my basal dose of bolus insulin - will I have to stay up all night and drink Lucozade now? - whereas we all go Oh bugger, been there done that, got the T-shirt. And hospital clinics understand these things too - and are perfectly USED to helping sort them out! - just in a normal day's work.

I was asked if I still wanted my clinic appointments 6 monthly - I said Yes - because frankly I actually like the safety net. You can easily get into terrible habits over a year whereas if someone's prodding you every 6 months, you're less likely to - well, I am, at least!

Hi and thanks , yes that's exactly how it is , nothing ever seems to really be addressed and as is not my diabetes difficult. But I do understand it and know that care should be a lot better.... thank u

 

[Daisydog]

Hi Daisydog and welcome 🙂

I see a hospital consultant every year, and they wanted to see me every six months - I had to persuade them that once a year would be enough because I also see the diabetes nurse at my surgery every year, so I am still seeing someone about my diabetes every six months. I have the email address of the hospital DSN if I have queries the surgery nurse can't answer.

I've found GPs really don't know enough about diabetes to be able to help with it or answer questions about it. My own GP once asked me if I test my blood sugar twice a day 😱 - refrained from pointing out that I'd be dead by now if I did, and explained that I have to test at the very, very least four times a day as I inject four times a day! An out of hours GP once gave me completely the wrong advice about managing my diabetes too - DSN was horrified when I told her what he'd said.

Exactly , I'm glad I'm not on my own it is specialised care and have never once seen gp with boys over diabetes . So consultant it is now we've got to get there!

 

[Daisydog]

Hi there, I was diagnosed almost 3 years ago aged 22. I was initially only seen by a diabetic specialist nurse (DSN) but that was when they said I was type 2. The second they finally realised I was type 1 I was seen at the "young persons diabetic clinic" at the hospital where I had access to a diabetic dietician, DSN and consultant. I am still being seen at the hospital however now in the adults clinic where I just see a consultant every 3 months. Once my condition is more stable I will be seen every 6 months then I assume I will be transferred back to my GP unless there are any issues.

Your GP should refer them to the hospital clinic if you ask. Do you feel your GP understands diabetes enough to offer decent support?

Ah thank you, yes that sounds how it should be and think we need that hospital referral

 

[Daisydog]

Hi Daisydog and welcome 🙂

I see a hospital consultant every year, and they wanted to see me every six months - I had to persuade them that once a year would be enough because I also see the diabetes nurse at my surgery every year, so I am still seeing someone about my diabetes every six months. I have the email address of the hospital DSN if I have queries the surgery nurse can't answer.

I've found GPs really don't know enough about diabetes to be able to help with it or answer questions about it. My own GP once asked me if I test my blood sugar twice a day 😱 - refrained from pointing out that I'd be dead by now if I did, and explained that I have to test at the very, very least four times a day as I inject four times a day! An out of hours GP once gave me completely the wrong advice about managing my diabetes too - DSN was horrified when I told her what he'd said.

Thank u Juliet , this is exactly how I'm feeling.... niw we really need to get a referral x

 

[Daisydog]

Well sorry if I were Robin, I'd be complaining frankly - unless you can instantly ring the actual experts and get the correct advice pdq whenever it should happen you're stuck and struggling.

GPs and surgery nurses simply do not get the all day every day experience of dealing with solely diabetics, that hospital D clinics do.

I could not possibly manage with my GP surgery alone - no instant grasp of whatever it is that's bothering a diabetic for starters - whilst clinics know it's bloody hard work managing it - which we all magically have to find extra time and effort every single day to fir in with having a life - GPs just do NOT grasp it. It's hard for them to actually grasp the proper self treatment we constantly need to do - and they find it totally unbelievable if we say eg Oh bum, I forgot to bolus for that piece of cake, or I've just taken my basal dose of bolus insulin - will I have to stay up all night and drink Lucozade now? - whereas we all go Oh bugger, been there done that, got the T-shirt. And hospital clinics understand these things too - and are perfectly USED to helping sort them out! - just in a normal day's work.

I was asked if I still wanted my clinic appointments 6 monthly - I said Yes - because frankly I actually like the safety net. You can easily get into terrible habits over a year whereas if someone's prodding you every 6 months, you're less likely to - well, I am, at least!

I agree and thank you for the support

 

[Daisydog]

Welcome to the Forum. Very much depends on where you live. If you feel you need more support than GP can provide or questions they cannot answer push for a referral to the Diabetic clinic. You may find you have to push. I was told that the Clinic would not see me as I had not tried all the Diabetic drugs available. This was not the case as I was seen quickly

Diabetic Clinic locally offer appointments in the evening as well as during the day.

Hope this helps

Thanks for your support , now to get there ✨

 

[trophywench]

Surely your son will have to request a referral - he's now adult.

 

[Daisydog]

Ah thanks, my sons are fine it's my husband who needs updating and with only gp care, it's not happening and he really needs to sort it out for himself.