Jeez give me a break

[Kaylz]

After running a bit high for 3 days I wake up to a what I thought nice enough 5.9 no not for me 2 hours after breakfast I feel funny I'm at 3.9 so one jelly baby and 20 minutes I'm 4.8, I just want to be 'normal' again, I don't know whether to change my breakfast ratio or what I'm so lost x

 

[New-journey]

After running a bit high for 3 days I wake up to a what I thought nice enough 5.9 no not for me 2 hours after breakfast I feel funny I'm at 3.9 so one jelly baby and 20 minutes I'm 4.8, I just want to be 'normal' again, I don't know whether to change my breakfast ratio or what I'm so lost x

How difficult for you! I wonder if you are still honeymooning, (what a dreadful name), like me. No one has told me I am honeymooning but decided I am, as it explains my situation but I could be wrong. For my first six months I used no bolus at all, and now some days need very little. I think I am still creating some insulin and I can't know which days it will be! I just test and test, always have supplies with me, (except from the dreadful low on Dartmoor when I didn't) and prepared for anything.
You are doing so well and sending biggest hugs and all my support

 

[Kaylz]

How difficult for you! I wonder if you are still honeymooning, (what a dreadful name), like me. No one has told me I am honeymooning but decided I am, as it explains my situation but I could be wrong. For my first six months I used no bolus at all, and now some days need very little. I think I am still creating some insulin and I can't know which days it will be! I just test and test, always have supplies with me, (except from the dreadful low on Dartmoor when I didn't) and prepared for anything.
You are doing so well and sending biggest hugs and all my support

I know why would you call it something people associate with being a nice thing it's mad well I'm just over 5 months in, was on set 4 units for a couple of weeks then moved up to 6 for a couple of weeks never suffered a hypo while awake then, now I'm carb counting it's gone mental, I usually only take about 9 units of bolus a day sometimes less and I'm only on 8 units of basal, I always seem to run into a problem at the weekends when I can't get in touch with the team for advice always the way huh, that sounds dreadful that you had no supplies and basically stranded but thankfully you obviously made it to supplies, how are you feeling today I hope you've had that relaxed morning you were planning to have, take it easy hun and hope both you and your mum are ok 🙂 xx

 

[trophywench]

Kaylz - I'd lower your brekkie ratio frankly. All you can ever do it simply react when stuff like this happens.

And yes it will continue to happen now and then, for ever. Sometimes there's a reason (eg Northie will most likely be on the low side for a couple of days - yes he has been in training but in training you don't get the adrenalin rush that you do from competing, which once it's over drops you into at least the basement if not down a very deep hole) but just as often, there isn't.

 

[Kaylz]

Kaylz - I'd lower your brekkie ratio frankly. All you can ever do it simply react when stuff like this happens.

And yes it will continue to happen now and then, for ever. Sometimes there's a reason (eg Northie will most likely be on the low side for a couple of days - yes he has been in training but in training you don't get the adrenalin rush that you do from competing, which once it's over drops you into at least the basement if not down a very deep hole) but just as often, there isn't.

Thanks, brekkies 1:10 so think I will give it a go at 1:12 tomorrow morning given everything is ok that is x

 

[Chris Hobson]

I know that I am quite unusual but I was misdiagnosed as a type 1 and had a similar problem. I kept on reducing my injections and would be fine for a while before mild hypos would start again. Eventually I had to stop injecting altogether and was re-diagnosed as type 2. I was on Lynagliptin for a while but I'm now on no medication at all. At present I am keeping off the pills by doing insane amounts of exercise. As I say, my case was unusual so I don't want to give you reasons for false optimism, but it is at least possible that you have a similar problem to the one that I had.

 

[Kaylz]

The tests I had done in the hospital definitely confirmed I was type 1 so I doubt I've been misdiagnosed, at this moment in time though I wish I had been x

 

[Lucy Honeychurch]

It's like trying to tame a big fire breathing dragon isn't it @Kaylz. My DSN said the 'honeymoon period' could last for a couple of years lowering your breakfast dose seems sensible to try, take care hun xx

 

[Chris Hobson]

I spent time in hospital when I was first diagnosed, I wonder why they got it wrong? If there is a definitive test that definitely confirms it, I wonder why they didn't do it on me? In the early days there was quite a bit of prevaricating from the specialist doctors over what type I was and a general reluctance to commit to a definite answer.

 

[mikeyB]

Don't worry overmuch Kaylz, this sort of thing can happen for the first year or two into the game, you will be fiddling your ratios for a good while yet, as the others have said. Do exactly what you said you were going to do, and see what happens. It may stabilise things, then things may change in a while. That's all part of the game, the moving goalposts.

 

[Kaylz]

It's like trying to tame a big fire breathing dragon isn't it @Kaylz. My DSN said the 'honeymoon period' could last for a couple of years lowering your breakfast dose seems sensible to try, take care hun xx

Lucy I actually think taming a fire breathing dragon or tiger or anything to be honest would be easier and less scary haha, it was fine last week I was sitting at 5.4 before breakfast, 4.8 2 hours later and cant remember what I was by lunch haha, the way I've been going the past few days I waited only 5 mins rather than 10 after I jabbed but hey ho will try 1:12 tomorrow and see if I get off with the 2.5 units that's if I'm not high xx

 

[Kaylz]

Don't worry overmuch Kaylz, this sort of thing can happen for the first year or two into the game, you will be fiddling your ratios for a good while yet, as the others have said. Do exactly what you said you were going to do, and see what happens. It may stabilise things, then things may change in a while. That's all part of the game, the moving goalposts.

Thanks Mike 🙂 I dread the summer if we get one lol xx

 

[trophywench]

Well afire breathing dragon is exceptionally appropriate today.

Or at least, it would be - if you weren't a Scot !

I know nowt about fiddling ratios in the first couple of years, see, being diagnosed in the stone age when we only had a lump hammer to treat ourselves with!

(Well, more like a petite icing syringe I spose) (I still never managed to pipe a rose)