JDRF - Pump campaign

[Becca]

For adults to do as well as parents/children 🙂

Not sure if posted before....There is 2 downloadable letters...

http://www.jdrf.org.uk/page.asp?section=560&sectionTitle=Pump+campaign

You can help JDRF build a picture of insulin pump and CGM usage in the UK by writing to your MP and the Director of Commissioning at your local Primary Care Trust (PCT).

About the make a noise Pump Campaign....

The artificial pancreas system will revolutionise the way that type 1 diabetes is treated. A sophisticated computer programme will link up two technologies that are already available ? an insulin pump and a Continuous Glucose Monitor (CGM) ? and allow the two to communicate with each other, taking away the need to think about injections and carb counting.

At the moment, very few people in the UK with type 1 diabetes use insulin pumps ? estimates suggest about 3% - and even fewer use CGMs. The worry is that unless more people with type 1 can begin to access pump therapy and CGMs, it will be very difficult for people to begin using the artificial pancreas system when it becomes available.

You can help JDRF build a picture of insulin pump and CGM usage in the UK by writing to your MP and the Director of Commissioning at your local Primary Care Trust (PCT).

 

[Sugarbum]

For adults to do as well as parents/children 🙂

Not sure if posted before....There is 2 downloadable letters...

http://www.jdrf.org.uk/page.asp?section=560&sectionTitle=Pump+campaign

You can help JDRF build a picture of insulin pump and CGM usage in the UK by writing to your MP and the Director of Commissioning at your local Primary Care Trust (PCT).

About the make a noise Pump Campaign....

The artificial pancreas system will revolutionise the way that type 1 diabetes is treated. A sophisticated computer programme will link up two technologies that are already available ? an insulin pump and a Continuous Glucose Monitor (CGM) ? and allow the two to communicate with each other, taking away the need to think about injections and carb counting.

At the moment, very few people in the UK with type 1 diabetes use insulin pumps ? estimates suggest about 3% - and even fewer use CGMs. The worry is that unless more people with type 1 can begin to access pump therapy and CGMs, it will be very difficult for people to begin using the artificial pancreas system when it becomes available.

You can help JDRF build a picture of insulin pump and CGM usage in the UK by writing to your MP and the Director of Commissioning at your local Primary Care Trust (PCT).

Good one Becca, very interesting thought and I can imagine that would be true. Look how difficult it is/or has been for many of us to get pumping...

Will do it this week xx

 

[grahams mum]

hi i already did this michael foster send a letter to the PCT ask adrienne she has got all the detail and e mail

 

[Copepod]

Not sure about the reasoning

Why should it be more difficult for those not using insulin pumps to access artificial pancreas when it becomes available? Surely by sticking to cheaper insulin injections for now, there will be more money for the more expensive, but better, artificial pancreas when it becomes available.

 

[Becca]

I guess it's because of some PCTs put up a fights for funding insulin pumps and refuse point blank funding for CGMS. Pumps qualify under the NICE guidelines so in theory are ''easier'' to get funding (although easier is def. the wrong word.) By putting pressure on government to help change the NICE guidelines Britain can be going forward on care like other countries are.