Sally71
Well-Known Member
- Relationship to Diabetes
- Parent
Hi All, I have been lurking here for a year or so but until today have never plucked up the courage to register (a bit nervous of putting anything of myself on the Internet, don't do Facebook or Twitter either!). But you all seem very friendly, I've picked up quite a few good hints and interesting bits of info, and sometimes someone asks something that I think I might be able to help with, so perhaps it's time to start giving something back!
So to introduce myself... I'm Sally, my daughter was diagnosed Type 1 in July 2012, a few weeks after her 6th birthday. My Mum has also been Type 1 since about 1967, so I had a bit of a head start on knowing what diabetes is, but then discovered that it's a whole different ball game when you actually have to manage it yourself! We were lucky and got a pump very quickly; I had to be convinced about them but when we actually got it it took me less than a day to realise that it was going to make life a whole lot easier. My daughter's last HBA1C was 6.8, which I'm well chuffed with, for all of the previous year it was in the 7s, we finally worked out that it was because her BGs were going up to about 17 every night! And then it seemed to take ages to get them down again, but we are finally getting it under control now. For a long time it didn't enter my head that I could change basal rates myself and I used to leave it to the DSN all the time 😱 But now I'm comfortably doing the tweaks myself I can be a lot more on the ball and hopefully nip problems in the bud! (That was another massive learning curve, Mum is on MDI and doesn't know much about how pumps work.)
I have to say I'm lucky, the hospital team are fab, can hardly say anything bad about them at all, especially our DSN who is the person we have the most to do with; GP never challenges a prescription and just let's the hospital team get on with it; and school have been brilliant, they've taken it all on board and follow the care plan to the letter, always phoning me if anything slightly unusual happens. From what I've read here, others are not so lucky, you have my sympathies!
Anyway thank you for reading this, hope I haven't bored you to sleep! I do occasionally meet up with some other families with T1 children, but I think it will be nice to have some friends here too. I look forward to being able to join in properly with conversations now!
Cheers
Sally
So to introduce myself... I'm Sally, my daughter was diagnosed Type 1 in July 2012, a few weeks after her 6th birthday. My Mum has also been Type 1 since about 1967, so I had a bit of a head start on knowing what diabetes is, but then discovered that it's a whole different ball game when you actually have to manage it yourself! We were lucky and got a pump very quickly; I had to be convinced about them but when we actually got it it took me less than a day to realise that it was going to make life a whole lot easier. My daughter's last HBA1C was 6.8, which I'm well chuffed with, for all of the previous year it was in the 7s, we finally worked out that it was because her BGs were going up to about 17 every night! And then it seemed to take ages to get them down again, but we are finally getting it under control now. For a long time it didn't enter my head that I could change basal rates myself and I used to leave it to the DSN all the time 😱 But now I'm comfortably doing the tweaks myself I can be a lot more on the ball and hopefully nip problems in the bud! (That was another massive learning curve, Mum is on MDI and doesn't know much about how pumps work.)
I have to say I'm lucky, the hospital team are fab, can hardly say anything bad about them at all, especially our DSN who is the person we have the most to do with; GP never challenges a prescription and just let's the hospital team get on with it; and school have been brilliant, they've taken it all on board and follow the care plan to the letter, always phoning me if anything slightly unusual happens. From what I've read here, others are not so lucky, you have my sympathies!
Anyway thank you for reading this, hope I haven't bored you to sleep! I do occasionally meet up with some other families with T1 children, but I think it will be nice to have some friends here too. I look forward to being able to join in properly with conversations now!
Cheers
Sally
