i really want a pump

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smile4loubie

smile4loubie

Well-Known Member
Relationship to Diabetes
Type 1
My consultant says im not suitable, no explantion nothing just im not suitable.

My HBA1c was at 11 when I got it checked in september. I can't control my sugars to save my life and have never been taught or even told to count carbs. I'm supposidly type 2 mody as i have never needed to go into hospital because of high or low blood sugars.
Im on novarapid and levemir but my sugars as always sky high unless i inject stupid amounts of times through out the day.
to top it all of I only have one hand so testing my sugar levels is really hard after a few days and i end up not testing because of this.
No help from docs in the slightest, my consultant makes me feel guilty for seeing her by asking "Do you really need to still see me" at the end of every appointment.

I want to start trying for a baby soon too but know I can't because of the high blood sugars but im not getting any help or advice on getting them lower.

I'm actually going to give up on trying soon!!!
 
Chat to sam(salmonpuff)hun sam got refused and was really upset with good reason she and others are more experts on it then me i know she was given the name of a guy from input via email he seems to be the guy to know , sorry i cant help , id say if you think you want the pump keep goiing theres others here to at moment waiting x
 
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Hiya

You HAVE to ring INPUT tomorrow or email them tonight so that you do it. John Davis runs input, I know him well. He is remarkable. He will help you somehow get a pump.

I don't know about type 2 and pumps. My way of thinking is that if you are on full blown MDI which you are, then the next step if that is not working is a pump regardless of 1 or 2 !! With an HbA1c of 11 you need to get pumping. You need to get carb counting as well. What do you do at the moment? Have you just been given set amounts to inject and thats that? If so, I would suggest that you contact whomever is supposed to look after you, GP's nurse or DSN and say you would like to be referred asap to a dietician to learn how to carb count. By them allowing you to keep that high result of 11, they need to be made accountable. It is unforgiving, no wonder you are peed off.

Where are you in the country?

I wish I could help more and fight for you. 😡
 
Hi lou (I assume thats your real ID!)

Sorry to hear you are having a crap time. Im sorry even more you are being let down by your team by them saying that, you should never be made to feel that way. They should be wanting to see you to help assist you to getting your hba1c down and above all, to feel better. Its on-going. I have never felt like a time when I dont need to see them- thats ridiculous!

I would ignore the fact they arent keen to help you obtain a pump- they dont seem to want to help you with much at all do they? Have you had a look at www.input.me.uk ? It is a very helpful site about pumping and will help to see whether it will help you and also what criteria you meet. There is a guy who runs input called John Davis who has helped many of us on here, and still doing so at the moment who will be worth contacting if you want to pursue this further.

I have a pump and was doing many more injections a day than the standard 4-6 a day. Its exhasting, like you I also ran a high HBa1c. I still do! But I am 6 months in with the pump and it is slowly coming down. Above all I find it more convenient and nicer to live with.

Dont be put off by bad attitudes in healthcare, fight your corner!

xx
 
haha! we have all replied at the same time with referals to input!

JD must think we are doubling his workload! 🙂
 
Oh sorry just seen you are Hindhead, Surrey. If you find out whether you qualify under the NICE type 2 guidelines then you can argue your case big time. You can find a hospital that is accessible who will give you a pump and get yourself referred to them, that is one option.

Look at the NICE guidelines. You can google them.
 
Sugarbum said:
haha! we have all replied at the same time with referals to input!

JD must think we are doubling his workload! 🙂
Click to expand...


John would be soooo happy to have everyone on pumps you know.

If he isn't there, then Leslie can help or Debbie may be around. Any one of them will help.
 
Thank You all so much for your help. I really am ready to give up. I've emailed input and mentioned this site lol.
I hope I get somewhere as I don't know what else to do xx
 
You can't give up. We will hound you :D
 
as i said on fb love, dont give up :D we've all had bad days, you just need a better team behind you 🙂

I''ll come and beat up your doc for you if you like? stick poking shall ensue :D
 
salmonpuff said:
as i said on fb love, dont give up :D we've all had bad days, you just need a better team behind you 🙂

I''ll come and beat up your doc for you if you like? stick poking shall ensue :D
Click to expand...

lol sounds good to me Sam xx
 
Let us know when John replies - i am sure he will be able to help you. Also, i would seriously think about changing doctors - they dont sound as if they give a flying fig about your long-term complications - so ditch them and get someone who does care. You owe it to yourself.🙂Bev
 
I would also try the team at Exeter see if they can put you in touch with anyone else with MODY that has been able to get a pump.

I expect that your conultant has looked at the guidelines and decided that as you are not a type 1 then you don't qualify, despite the fact if you were type 1 and have an A1c of 11 you would definatly quialify. You might need a team that is more flexiable with the guidelines.

I don't remember are you carb counting? If not then that might help with your control if you can learn to carb count, maybe you will be able to get onto a course.
 
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My constultant couldn't look into a see through plastic bag! lol
and John replied last night and called me this morning, going to ask my go to refer me to royal bournemouth hospital to a prof devid kerr. and see where that leads me.

Thanks guys for your help and support.
 
Thats exactly what they said to me, but I didn't really want to change my team. Is that who they advise everyone to get referred to?
 
I guess. Its the biggest team of pump specialists in the south apparently
 
According to John they don't lol. And if they could get everyone who wanted a pump on it they would lol xx
 
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