How to get an insulin pump

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Sprinkles

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Relationship to Diabetes
Type 1
Hi I'm new to this so not sure if the information is on this website already. I just want to find some information on how to get an insulin pump. My Diabetes specialist nurse told me that I need to do a course first, which I am waiting to do. What happens after I have done this course. How long should I expect to wait in order to get a pump? My husband and I would like to try for a second child and we have decided to try a pump this time to help avoid the hypos that I had with my first pregnancy.

Also are there any costs to pay?

Any advice would be greatly appreciated!

Many thanks 🙂
 
Hi Sprinkles, welcome to the forum 🙂 One of the best sources for information for pumps is http://www.input.me.uk/ - they have helped many people to get pumps. If you are in Scotland then there is a seperate site listed on the Input site. How long have you bee diagnosed? You are expected to learn carb counting in order to use a pump properly, so this may be the course they mentioned. Waiting times can vary enormously depending on your consultant and PCT, although the people at Input can help you with this too. Once approved the pump should be fully funded with no costs to pay.
 
Hi Sprinkles, welcome to the forum 🙂 One of the best sources for information for pumps is http://www.input.me.uk/ - they have helped many people to get pumps. If you are in Scotland then there is a seperate site listed on the Input site. How long have you bee diagnosed? You are expected to learn carb counting in order to use a pump properly, so this may be the course they mentioned. Waiting times can vary enormously depending on your consultant and PCT, although the people at Input can help you with this too. Once approved the pump should be fully funded with no costs to pay.

Hi Northerner, many thanks for your reply and link. I've just had a quick browse and its answered alot of my questions already.

I've been diabetic for 31 years now. We are hoping to try for a baby this year so I'm now wondering how long it would take to get a pump. My last hba1c was 7 so isnt majorly high, but I hope I should meet the NICE criteria for pregnancy (although I've been told I need to do the carb counting course first and get used to the pump before falling pregnant!). Is this correct or am I misunderstanding something?

Thank you!
 
You need to be able to carb count to use a pump - it relies on you inputting carb to insulin ratios. I don't think by law you have to do a course - but most clinics will make sure you know how to carb count in one way or another. Ask them if they insist on you doing a course - or could you 'prove' to them you know how to carb count? Do you carb count at the moment and adjust your insulin to the amount of carbs you eat?

The long and short of it is your consultant has the final say. If he writes to the PCT to request funding they are required by law to provide funding. So start hassling your consultant 🙂
 
Hi Northerner, many thanks for your reply and link. I've just had a quick browse and its answered alot of my questions already.

I've been diabetic for 31 years now. We are hoping to try for a baby this year so I'm now wondering how long it would take to get a pump. My last hba1c was 7 so isnt majorly high, but I hope I should meet the NICE criteria for pregnancy (although I've been told I need to do the carb counting course first and get used to the pump before falling pregnant!). Is this correct or am I misunderstanding something?

Thank you!

There are others more qualified to answer that, but I have known both scenarios from members here - one person got a pump just prior to pregnancy and another was told they would have to wait until after the birth, so it appears there are no hard and fast rules. What insulin regime are you currently on? If you have 31 years experience then you probably already have a pretty good notion of how it works - it's simply matching your insulin doses to your carbohydrate intake. There is an online course available here if you want to know more:

http://www.bdec-e-learning.com/
 
Thank you both for your replies! I will continue to use this site now, it has so much information which I never knew existed!

Thanks!
 
If you fit the creteria set out by the NICE guidelines then you get funding, there shouldn't be any cost to you at all...

The only exception to this is concerning the Accu-Chek Combo pump, as all it's wizards are on a handset that acts as a BG meter as well, Some clinics are providing the handset as part of the package (cost cutting) and making patients pay the ?120 themselves for it, in this case choose another pump, that has all the wizards programed onto the actual pump!

The carb counting course isn't essentrail, but helpful, and if courses are very limited then it's possiable to learn and prove your carb counting abilities with diatitian and diabetic nusre or even learn it yourself!

The NICE creteria, you only have to fit aspects of it not all of it, and the consultant or PCT can't choose which aspects they are willing to fund.

As to time span, well some clinics are very good and will get you a pump and necessary training within weeks, but other clinics will try every stall tactic they can to prolong supplying the pump itself, tactics such as no money in this year kitty, or waiting lists, only xx amount of pumps are funded per year or you have to attend carb training course etc are all ilegal practices, if the clinical decission has been made then funding is automatic and should be done ASAP..

If you have any problems, concerns or clinic is being stalling then do contact Lesley Jordon or John Davis on the INPUT site, there are very good indeed they will help with information, advice on how to build your case and if necessary if you wish act on your behave with the PCT(two people who should be on the Queens honours list for services to diabetic people)

As you really want to have been using the pump for around 6 months before trying for a baby, this will give you the chance not get everything settled and your head around a new method of delivering your insulin...

Good luck, and problems give a shout and we see how we can help you
 
On Jan 25th I'm going to do some training on with JDRF & INPUT and will become a 'technology specialist' for JDRF, from what I understand I'll be trained up on all the latest laws, news, technology appraisals etc and will represent INPUT at various diabetes-related events. Hopefully after that I can help you a bit more with the law stuff!

Also, sometimes DSNs simply don't know that things like pump waiting lists, no funds in the kitty, etc are illegal - they are told it and believe it, and so tell you the same. I was told for a long time that my request had to go to a funding board and I would be denied one. Thankfully I knew that this wasn't right and fought my case for over a year and now thankfully I am in the process of getting funding. n🙂?
 
Hi sprinkles i had to to do a DAFNE course first and then my dsn and doctor had to ask Greenwichs Primary health care trust on my behalf then i got one in September 🙂
 
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