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Hospital Ramble

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MCH

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Type 1
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I haven?t posted much for a while although I have managed to keep up with a lot of what has been going on. Initially this was due to a change of timing of my working day which was taking a lot of getting used to (same number of hours but a shorter lunch so although we now finish a little earlier somehow I never got home any earlier or had any more time. Recently, however, I have been off work due to having fractured my humerus which has meant I had to type very slowly with only one hand for a while and as I was trying to continue with typing for work from home I had no time to add to the forum. I am now (four weeks and a bit on) able to use both hands and am getting quicker though I still need lots of breaks (unfortunate choice of word there!). 😱

A few weeks ago I caught a sickness/ diarrhoea bug and headed for bed about 4ish having eaten/injected for lunch. 3 hours later, I was sick and decided to persevere at home by not taking any insulin because I knew my BS was lowish (about 4). I hoped this would keep me going till I felt well enough to drink something sugary which I didn?t at the time. This wasn?t one of my better ideas :( as about 9.30pm, I got up to go to the bathroom and felt terrible on my way back to bed. I called my husband (asleep in our room as he wasn?t well and had been trying not to give it to me) but he didn?t hear me though he did hear the thud as I passed out on the landing and came to help.
He said I was lying face down and when he called my name, instead of trying to get up, I rolled over onto my back and refused to move due to the pain in my left arm. He tried to do a blood test, but couldn?t get enough blood out of my finger and because I kept drifting in and out of consciousness, he phoned an ambulance. The ambulance men also had trouble but eventually got a BS of 3 and a blood pressure reading of 95/65 and I was taken to hospital. (I think I originally passed out because of the low blood pressure, as I have been below 3 on occasions and not passed out from this)
At the hospital, I got an ECG which was a problem as I had to hold my sore arm out of the way to get the sensors stuck on. I was then sent to get an X-ray where I got one but had to ask to sit down before the second as I felt faint again. Unfortunately, after the second one, I did pass out again and was taken back to bed and put onto a glucose drip which resulted later in a BS of 30. (When I reminded them I hadn?t taken any insulin, they said that they wanted to get my BS up so I wasn?t to get any at the time.) Shortly after this I was taken to a ward where I stayed the night.
The next morning I got a slice of toast for breakfast (I didn?t think I would get home unless I ate something) but on asking for insulin, was told none had been prescribed and they would need to get a doctor first. I eventually got some Levemir about 11.30am, but was refused any Humalog as it hadn?t been prescribed. After I had ordered my lunch, I called a nurse to ask if I would get insulin with lunch because if not, I wasn?t going eat anything. She came back and said yes that would be all right. At lunchtime, I was given my usual breakfast dose (3.5 units) and when I asked about this, I was told that this was the amount that had been prescribed. (When I was admitted, I was asked about amounts of insulin and said that I carbohydrate counted but that at breakfast ? because I always eat the same thing, I take 3.5 units so I assume this is where the amount came from and it hadn?t been written down very carefully at the time.)
After this episode, I was told that a DSN would come and see me ? I think to confirm that there was no diabetic reason for keeping me in ? before I could go home. She prescribed 3-5 units for all my meals so that I had some control depending on what I ate, but that from a diabetes point of view I could go home. Dinner time went well after this and I was discharged before I had to worry about my evening Levemir dose so I don?t know what would have happened then 🙄
The consultant came to see me after dinner and apologised because she had hoped I would be discharged by then but that the DSN hadn?t seen me. I told her the DSN had seen me about 2.30 and was happy for me to go home. (It turned out that the DSN had written her comments on the wrong page of my notes and no-one had seen them!) Eventually I was allowed to leave about 7.30pm, but had to phone my still ill husband to come and get me as when I had been taken in, although he had offered the ambulance men my blood testing kit, insulin pens and a dressing gown and as they had declined, I couldn?t go home until he brought a coat of some sort in for me! (Had I even had my dressing gown, I would simply have gone home in that and my slippers in a taxi as I could have paid for it when I got home.)
I have now been back at home for four weeks and my arm seems to be healing so it looks like I could be back to work in another couple of weeks, with some help as everything takes me so long at the moment, so things are getting there.

I think the most important thing I learnt is that if you end up heading to hospital, always take your blood testing stuff, insulin and a dressing gown with you as it would have saved a lot of time (every time someone came to do a blood test, they asked if I had my own machine and because I didn?t they had to spend time looking for one to use) though I?m not sure if I would have been allowed to hang on to the insulin and use it when needed or not ? mind you at the time I needed help to take the needle cover off before I could do an injection anyway.

Thank you for letting me ramble on - writing it down has made me feel better about all of this.
 
Goodness, what an experience! And made all the more difficult because they somehow didn't trust you to know what your insulin needs were despite having diabetes for so long! How silly! Very sorry to hear about the arm - I had the same thing happen to me, slipped on some ice and broke my humerus just below the shoulder. I was off work for 8 weeks, although there wasn't any actual sign of the bone 'knitting' for 12 weeks 😱 It sounds as though yours is healing a bit quicker, so I hope it is soon back to full strength.

Certainly something to bear in mind should a hospital stay ever loom. I have heard people here mention in the past that they have had their pumps taken off them and then been dealt with as though they know nothing about how to control their blood sugars! Actually, with hindsight, they didn't do a very good job with me when I was diagnosed as my levels swung from 2.2 to over 30 during the week I was in.

Wishing you a speedy recovery! 🙂
 
Sorry to hear all of this. I think I would have got close to screaming if I had been you. Glad that your arm is healing though and hope you are soon back to normal.
 
Sorry to hear about your experience..

I was in hospital Aug/Sep as I had a stroke, I brought all my tablets in with (They fill a carrier bag), which have the instructions printed on them.. When it take to the drug rounds my Lyrica was written down wrong, they had me down for 1 at night.. I take 2 in the morning and 3 at night, eventually they got the Dr to write it up right. I explained about my insulin requirements which is quite simple, 68 units Levemir am and 78 units pm.. like you they hadn't prescribed it on the drug chart, it seemed like they had to get it signed each day by the Dr, for some reason they seemed to think I was only on 1 injection a day, and the amount of times I was asked if I wanted my Levemir with my meal?? Then I totally confused them with my Novorapid .. I also carb count which seemed alien to them, I said I was on 4 units of Novorapid for every 10g of carbs.. that seems easy to understand (or am I being thick here!!). So the nurse said "so you take 4 units of insulin with each meal", explained again and she was happy that I dealt with my own insulin requirements, so was I lol I am so glad that with my stroke I was able to do inject (just about), and was just about able to calculate my dose.. If it has been left to the staff I dread to think about it..!!!

Weird though, since my stroke my sugars have been so much better (apart from when I eat fruit), and my DSN advised me to reduce my Novorapid to 2 units per 10g and to adjust it if necessary.
 
I'm so sorry for you about everything that has happened. That hospital visit sounds scary. I'm glad that you are recovering and hope that you feel much better very soon
 
sorry you've had a rubbish time :( but so glad you had your husband there to help you with your hypo & call the ambulance (silver lining and all that 🙂 )

you'd think going into hospital with all the 'experts', you wouldn't need to worry about anything, but I'm definitely not leaving anywhere to go to hospital without all my own treatment!! (and a dressing gown! lol)

Hope you're feeling much better now.
 
I'm really surprised that the ambulance staff refused to take the meter, pens and clothes offered by your husband. That is not good practice, and definitely worth bringing to the attention of Ambulance Trust.

Also worth complaining about treatment durig your stay.

It's not always like that, but complaining may make it better for another time / another person.
 
Oh goodness, that is awful, I hope you are feeling better now. I have had some bad hospital experiences too. One hospital had no in date ketone test strips at all, and the consultant was wanting to give me a huge dose of insulin, fortunately I managed to persuade them it was a bad idea.

It is worrying how little knowledge some hospital staff have.
 
It is worrying how little knowledge some hospital staff have.

I agree though some of it seems to be that even staff who do know, don't always have the authority to act without a bit of paper and the time seems to be getting someone to fill it in!
 
Thanks to everyone for your sympathy. It's nice to have people who understand around. 🙂
 
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