Desperately trying for a pump to bring my treatment regime into the 21st century. Issue is that I've had type 1 for 44 years (just passed my anniversary) and my control is reasonable with very little in the way of complications. I need to ease the burden of MDI therapy and my body is like a pin cushion; I'm also not getting any younger. Received this from my newly acquired specialist today:
“ Dear …
I understand that you contacted my secretary recently to enquire as to where you were with regards to pump therapy. I can see from your Libre View data when I looked at it recently, that your time spent in the hypoglycaemic range is only … with … of the readings between 3.9 and 10. This shows you are able to achieve good glycaemic control with minimal hypoglycaemia. I do not doubt that this is not without considerable effort on your part.
However, as I explained on behalf of the … team in my letter of June this year, the NHS cannot fund a pump for you, as you do not meet the criteria. And further in response to the email correspondence we had in August, I have to make sure that we use NHS resources wisely and so, even if you wanted to self fund a pump, we need to focus the limited resources on those that would stand to benefit the most in terms of utilizing limited nursing dietectic time.
I’m sorry that this is not what you wanted, however, if you still wish to pursue pump therapy, then may I suggest that you ask your GP to refer you to a different service perhaps nearer to home.
Yours sincerely,
…..
Clinical Lead for Diabetes”
Having been with this NHS provider for 41 years and never missed an appointment I didn't like the tone. All seems lost at the moment. Fed up with this; the gap between my treatment and the wonderful stuff available to others now is getting wider and wider.
“ Dear …
I understand that you contacted my secretary recently to enquire as to where you were with regards to pump therapy. I can see from your Libre View data when I looked at it recently, that your time spent in the hypoglycaemic range is only … with … of the readings between 3.9 and 10. This shows you are able to achieve good glycaemic control with minimal hypoglycaemia. I do not doubt that this is not without considerable effort on your part.
However, as I explained on behalf of the … team in my letter of June this year, the NHS cannot fund a pump for you, as you do not meet the criteria. And further in response to the email correspondence we had in August, I have to make sure that we use NHS resources wisely and so, even if you wanted to self fund a pump, we need to focus the limited resources on those that would stand to benefit the most in terms of utilizing limited nursing dietectic time.
I’m sorry that this is not what you wanted, however, if you still wish to pursue pump therapy, then may I suggest that you ask your GP to refer you to a different service perhaps nearer to home.
Yours sincerely,
…..
Clinical Lead for Diabetes”
Having been with this NHS provider for 41 years and never missed an appointment I didn't like the tone. All seems lost at the moment. Fed up with this; the gap between my treatment and the wonderful stuff available to others now is getting wider and wider.
