My son was diagnosed back in May with Type 1 aged nearly 15. Everything seemed to be going really well until Saturday when we started getting reading of 12.5-16.6 blood glucose levels. Have we left the honeymoon period or is there something else going on growth? How can we get them down correction doses work short term but night time readings are the highest. We use Lantau for our long action and he’s on 9 units. Any advice gratefully received.
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High sugar levels
- Thread starter EmmaG
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rebrascora
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Hi and welcome
Sorry to hear about your son's diagnosis but it sounds like you have been doing really well up until now. It is possible/likely that he has reached the end of his honeymoon period. I remember having two stages a couple of months apart where my basal needs suddenly increased and my insulin had to be stepped up as my pancreas spluttered to a halt.
I am guessing that you probably haven't had much training in respect of changing insulin doses due to Covid, so it is best that you discuss the problem with your team and let them make the decision about what needs to be done. We are not allowed to give specific dosing advice here on the forum.
I hope you are able to get it sorted soon. High levels make you feel yuk!
Sorry to hear about your son's diagnosis but it sounds like you have been doing really well up until now. It is possible/likely that he has reached the end of his honeymoon period. I remember having two stages a couple of months apart where my basal needs suddenly increased and my insulin had to be stepped up as my pancreas spluttered to a halt.
I am guessing that you probably haven't had much training in respect of changing insulin doses due to Covid, so it is best that you discuss the problem with your team and let them make the decision about what needs to be done. We are not allowed to give specific dosing advice here on the forum.
I hope you are able to get it sorted soon. High levels make you feel yuk!
Bruce Stephens
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Cause could be a variety of things, since lots of things can change blood glucose levels. (Minor infection, weather getting a bit colder.) And as you say, maybe it's the honeymoon period or his body changing.
Regardless, you should contact your healthcare team and discuss it with them. At some point you (and he) will be taught how to go about changing insulin levels but presumably that hasn't happened yet.
Inka
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It could be the end of the honeymoon or growth/hormones, or it could be an impending illness or even stress or a poor night’s sleep. Sometimes even a temperature change can affect things.
The first thing to do is to check his insulin is ok - ie it’s not degraded (it happens occasionally). If you’re concerned it might be, change to a new cartridge.
You mention that he’s particularly high at night. That could be because his daytime meal injections are masking daytime highs by mopping out extra glucose. Speak to his team and ask if his insulin dose(s) need adjusting. I hope you get it sorted easily. It’s frustrating when things change and don’t work as they did previously.
The first thing to do is to check his insulin is ok - ie it’s not degraded (it happens occasionally). If you’re concerned it might be, change to a new cartridge.
You mention that he’s particularly high at night. That could be because his daytime meal injections are masking daytime highs by mopping out extra glucose. Speak to his team and ask if his insulin dose(s) need adjusting. I hope you get it sorted easily. It’s frustrating when things change and don’t work as they did previously.
Pumper_Sue
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Sounds as if an increase in Lantus is required. Lads tend to grow and have the dreaded teenage hormone problems plus his changing needs due his pancreas coughing and spluttering (honeymoon).
A call to his team is in order so you have the extra reassurance and advice as needed. Sounds as if you are both doing a fab job.
I also wonder if your son hasn't had so much exercise over the weekend compared to being at school?
A call to his team is in order so you have the extra reassurance and advice as needed. Sounds as if you are both doing a fab job.
I also wonder if your son hasn't had so much exercise over the weekend compared to being at school?
- Relationship to Diabetes
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Sorry to hear about your son’s diagnosis and his sudden change in BG levels 
It must have been very difficult having to manage with a new T1 diagnosis during the pandemic, when so many of the regular clinic appointments may not have been available.
I second the suggestions to contact his clinic for their advice and suggestions.
If you haven‘t come across it yet, many forum members have recommended Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas as a very accessible and clear overview of T1 diabetes - which may fill in some gaps for you?
It must have been very difficult having to manage with a new T1 diagnosis during the pandemic, when so many of the regular clinic appointments may not have been available.
I second the suggestions to contact his clinic for their advice and suggestions.
If you haven‘t come across it yet, many forum members have recommended Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas as a very accessible and clear overview of T1 diabetes - which may fill in some gaps for you?
Pumper_Sue
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Hi Emma,
just remember no ones perfect not even numbers
Another thing to remember is, us humans are not machines so our bodies tend to do what they please when they please with no rhyme or reason (which can be and is very frustrating at times)Hi @EmmaG
Sorry to read of your son's recent highs but glad to read that it has improved in the last couple of days.
Unfortunately, the honeymoon period is difficult to predict for some. Sometimes our body seems to remember how to produce insulin and then it forgets again so keep an eye on his BG in terms of his basal increase.
Another thing to remember when you see an unexpected high is to wash your hands and retest. Sometimes our meters can just have a funny turn.
Sorry to read of your son's recent highs but glad to read that it has improved in the last couple of days.
Unfortunately, the honeymoon period is difficult to predict for some. Sometimes our body seems to remember how to produce insulin and then it forgets again so keep an eye on his BG in terms of his basal increase.
Another thing to remember when you see an unexpected high is to wash your hands and retest. Sometimes our meters can just have a funny turn.
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