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High Levels Please Help

Lonelycrow81

Lonelycrow81

New Member
Relationship to Diabetes
Type 2
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Am type 2, diagnosed 2021. Until pancreatitis last July it was well controlled. Pancreatitis (thanks gall bladder - was removed in emergency) has caused havoc. I now have type 2 WITH type 1 and 3c symptoms. I also have addison’s disease (diagnosed 2017). I wear a Dexcom One+ and, until last night, had been doing ok with the odd extreme hypo every so often.

Am currently on Toujeo, injection done once a day at night. Was also on actirapi for 4 months post pancreatitis. On steroids to keep me alive plus other meds. Pancreatitis admission - my levels were 34 in the ambulance (was very unwell plus adrenal crisis).

Last night I had had my usual dinner. Nothing out the ordinary. No sugary stuff etc etc. Insulin dose done as usual. Within 30 mins my Dexcom was singing the song of it’s people telling me I was going high. It kept going up. And up. I went to sleep. It dipped a bit then rose again, went to 21.5! Went for walk. Dipped again to 13.5 (from 20.9 to 13.5 in an hour - ouch). But been doing a rollercoaster of slightly below the yellow zone to high levels.

I am concerned as I usually have better control than this. Am waiting for DSN to reply but any advice would be amazing.

I live in a not so decent area and walking around at night is a no go. I do not have stairs am able to access. Very limited in terms of moving loads until morning. Given history of high levels with pancreatitis (took 8 weeks to settle back to ‘normal’) would you go to A&E? Urgent care won’t touch me as they do not deal with diabetic issues.
 

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Lonelycrow81 said:
Am type 2, diagnosed 2021. Until pancreatitis last July it was well controlled. Pancreatitis (thanks gall bladder - was removed in emergency) has caused havoc. I now have type 2 WITH type 1 and 3c symptoms. I also have addison’s disease (diagnosed 2017). I wear a Dexcom One+ and, until last night, had been doing ok with the odd extreme hypo every so often.

Am currently on Toujeo, injection done once a day at night. Was also on actirapi for 4 months post pancreatitis. On steroids to keep me alive plus other meds. Pancreatitis admission - my levels were 34 in the ambulance (was very unwell plus adrenal crisis).

Last night I had had my usual dinner. Nothing out the ordinary. No sugary stuff etc etc. Insulin dose done as usual. Within 30 mins my Dexcom was singing the song of it’s people telling me I was going high. It kept going up. And up. I went to sleep. It dipped a bit then rose again, went to 21.5! Went for walk. Dipped again to 13.5 (from 20.9 to 13.5 in an hour - ouch). But been doing a rollercoaster of slightly below the yellow zone to high levels.

I am concerned as I usually have better control than this. Am waiting for DSN to reply but any advice would be amazing.

I live in a not so decent area and walking around at night is a no go. I do not have stairs am able to access. Very limited in terms of moving loads until morning. Given history of high levels with pancreatitis (took 8 weeks to settle back to ‘normal’) would you go to A&E? Urgent care won’t touch me as they do not deal with diabetic issues.
Click to expand...
Can't help much other than to suggest you call 111 if there is no improvement.
 
I have checked my pen, it is in date. Only started it 3 days ago. I do not have access to short acting insulin. They stopped it when I was having daily extreme hypos late last year. Ketones are zero which is good, mind you I had no ketones last year when had pancreatitis and gall bladder issues.

Hospital with A&E is an hour away from me on public transport. I can’t afford taxis and do not have anyone who can drive me there. If it was a hypo I’d call for ambulance as hypo can also mean adrenal crisis for me.
 
Just to add, I have been on Toujeo (long acting) since July. It is once a day and I either take 28 or 30 units depending on how active am being the next day.
 
Lonelycrow81 said:
I have checked my pen, it is in date. Only started it 3 days ago. I do not have access to short acting insulin. They stopped it when I was having daily extreme hypos late last year. Ketones are zero which is good, mind you I had no ketones last year when had pancreatitis and gall bladder issues.

Hospital with A&E is an hour away from me on public transport. I can’t afford taxis and do not have anyone who can drive me there. If it was a hypo I’d call for ambulance as hypo can also mean adrenal crisis for me.
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Ignore the date on your insulin. Sometimes insulins degrade even though they’re in date. Remember, we have no idea of their travel conditions before we collect them from the pharmacy.

As you have no short-acting insulin, I’d phone 111 if your levels stay high. Good news about the ketones but keep an eye on things in case that changes. Wishing you well x
 
I have no advice but I just wanted to offer my sympathies as to how life changing pancreatitis can be. Awful illness.
 
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