hi

[Rothers1969]

hi guys new member type 1 for 16 years been struggling a bit of late thought id join for support from people who understand a bit. can I ask any of you guys, do you just get sick of it all!!! finger pricking carb counting. I know I have to do it ! or is it just me I'm ok most of the time but lately just seems to be c**p I'm putting it all down to being locked in and with all the pandemic stuff going on and i know no one with diabetes. though i have a supportive husband just needed to ask trying not to be dramatic about it all but writing it all down seems a bit haha ! i have been having most of my care through my G.P (convenience) and they were great but I've asked to be referred back to the diabetes clinic just for a review on meds it hasn't been done for a while. and to chat with the hospital.
well hi x

 

[rebrascora]

Hi and welcome. So pleased you have found the forum.

Sounds like you are suffering from a bit of "burn out". It is a recognized effect of long term conditions such as diabetes and most of us know that the responsibility of "impersonating a pancreas" meal by meal and day by day
365 days a year takes it's toll at times, especially if we are stressed in other aspects of our lives and the pandemic has certainly brought along a few extra stresses!

I think it is a very good idea to ask for a referral back to your clinic because they are the specialists and there will certainly be things that they can suggest which may help, so do be open with them about how you are feeling and don't feel embarrassed about saying so either here on the forum or to your Health Care Professionals because it is a very real and recognized problem.

If you stick around the forum and read a few posts, I am sure you will find topics which resonate with you and you can relate to, even if they are not on the specific subject of "burn out" and you may also learn about new technology which is available and tips and tricks to improve your diabetes management or make it easier...... or just come and have a good moan about the injustice of it all to people who understand and will be supportive.
You might also enjoy joining the "Group 7-day waking average" thread which is a bit like a virtual coffee morning where we most our fasting readings and have a bit of chat about our plans for the day, the weather or frustrations with our BG levels. Once you become a regular, there is often a bit of fun and banter too so feel free to join us and jump straight in tomorrow with your morning reading.

Group 7-day waking average?

For anyone who doesn't know, wing clipping involves trimming back the flight feathers on just one wing. No injury or blood involved other than those incurred by the person doing the clipping if they aren't wearing stout gloves and long sleeves. It sounds brutal but it isn't. Just wanted to...

forum.diabetes.org.uk

PS. Don't feel that you have to try to read right through it as it is a massively long thread and has changed a lot in tone and content over the years. You will get the hang of how it currently works just by joining in and reading along after that.

Good luck with your clinic appointment and if you have any specific questions for those of us fellow "pancreas impersonators" here on the forum, feel free to ask.

 

[SB2015]

Welcome to the forum @Rothers1969

The short answer is Yes. I think it gets to most of us at times, but as you say we still have to do all the carb counting and finger pricking, ... Like you I have a very supportive OH but I still find it great to be on here and have people around who ‘get it’.

How do you manage your diabetes. Are you on Multiple Daily Injections? A referral back to the hospital may well give you access to some of the more recent developments that do make life a lot easier. It would be worth asking about the Libre. That was game changer for me as I suddenly had sight of what was happening in between the pre-meal finger prick tests. It helped me t time my injections, exercise more, and just feel a lot more confident.

When you see the hospital team do mention how you are feeling about yourself ur Diabetes, and be honest with them. It won’t be the first time they have heard this, as it is very common. Diagnosed as an adult I thought I ‘ought to’ be able to cope with it all, but I really valued the help that I got when I eventually asked for it.

Keep in touch on here as much or as little as you want. There is a lot of experience to draw on and plenty of support available, or space for a good rant when you need one.

 

[trophywench]

Yes mate, I do!

By this juncture previous to all this lockdown excrement, I was able to keep occupied enough with my life and especially my leisure (and we both do some volunteering in various forms) to successfully counteract my own D frustration day to day.

Right now - anything and everything is frustrating me and am finding it more & more difficult by the day not to fly off the handle at the slightest hitch and I think far more people are exactly like me - nob all to do with diabetes directly but my God, like I (or anyone else) NEED anything else to concern me right now!!!

Who was that 60's (northern chap) comedian whose catchphrase was, 'Calm down, calm down !' I do need him saying that in my earole.

PS Going to be September before I get to see or hear from my diabetes clinic again hence I have to find the resources somewhere myself ....

 

[Rothers1969]

thanks to everyone who replied ! doing much better thanks have taken control of things and given my head a wobble, and know i have to do much better I'm a few weeks in and I'm feeling better in myself more in control. and all my blood sugars are looking great and the HBA1C is in the good control range need it to be slightly better ! the main thing is I'm giving myself a break taking it a day at a time and doing the best i can !!! sorry for the rant everyone and I've been referred back to endocrinology at my local hospital so that making me feel better.

 

[Rothers1969]

Yes mate, I do!

By this juncture previous to all this lockdown excrement, I was able to keep occupied enough with my life and especially my leisure (and we both do some volunteering in various forms) to successfully counteract my own D frustration day to day.

Right now - anything and everything is frustrating me and am finding it more & more difficult by the day not to fly off the handle at the slightest hitch and I think far more people are exactly like me - nob all to do with diabetes directly but my God, like I (or anyone else) NEED anything else to concern me right now!!!

Who was that 60's (northern chap) comedian whose catchphrase was, 'Calm down, calm down !' I do need him saying that in my earole.

PS Going to be September before I get to see or hear from my diabetes clinic again hence I have to find the resources somewhere myself ....

and im glad its not just me losing my c**p over everything this covid stuff has a lot to answer for !!!!

 

[trophywench]

Pete says it was Stan Boardman (same chap who never forgave the Germans 'for bombing our chip shop' LOL)

 

[trophywench]

Far better to try and find something to laugh about, I should really stop and take my own advice.

 

[Rothers1969]

Far better to try and find something to laugh about, I should really stop and take my own advice.

love stan boardman you know that's good advice!!! haha I'm feeling better talking to people who understand. i hadnt realised how stuff was affecting me but these forums are great x

 

[everydayupsanddowns]

Yup. I get that completely @Rothers1969

And like @rebrascora says, ‘burnout’ is a recognised phenomenon of living with a long term, demanding condition like T1, where there is never a day off, and it’s potentially quite dangerous even to drop your guard or ease off the intense attention much

Hope you find a return to the hospital clinic gives you a bit ofma boost.

Which insulin(s) are you using? Might a new diabetes gadget like a Libre sensor or a smart BG meter or app give you a catalyst?

How about a refresher and update with one of the popular books for T1s often recommended here like Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas - Don't be misled by the title - this book is relevant to people of all ages!

Or Think Like a Pancreas’ by Gary Scheiner

Most of all, feel free to rant, offload and vent here. You are among people who ‘get it’. 🙂

 

[Peely66]

Pete says it was Stan Boardman (same chap who never forgave the Germans 'for bombing our chip shop' LOL)

I thought it was The Scousers on Harry Enfield's show.
Stan Boardman...I don't think he ever worked on TV again after his attempt to tell a joke on Des O'Connor's show about German (or Jiahmans as he as he said it) planes called Fokkers.

Oh yes and in response to the OP...absolutely. Quite a bit of late which is why I joined the forum

 

[Rothers1969]

Yup. I get that completely @Rothers1969

And like @rebrascora says, ‘burnout’ is a recognised phenomenon of living with a long term, demanding condition like T1, where there is never a day off, and it’s potentially quite dangerous even to drop your guard or ease off the intense attention much

Hope you find a return to the hospital clinic gives you a bit ofma boost.

Which insulin(s) are you using? Might a new diabetes gadget like a Libre sensor or a smart BG meter or app give you a catalyst?

How about a refresher and update with one of the popular books for T1s often recommended here like Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas - Don't be misled by the title - this book is relevant to people of all ages!

Or Think Like a Pancreas’ by Gary Scheiner

Most of all, feel free to rant, offload and vent here. You are among people who ‘get it’. 🙂

thank you i will definitely have a look at those books ! i have received my letter just waiting on an appointment to go back to clinic . i think its a good idea to talk to people who get it.
my nurse at the gp has already seen the difference in me and things are under better control which helps ..... a lot. I've given myself a shake and i know what i have to do. i don't think i realised how much just stuff was affecting me. and i will be back for a rant !!!

 

[Andra Gabriela]

I do too especially when I want to do a lot of physical activities and my sugars get low or when I’m head deep into a project but need to treat a hypo. On the bright side, can’t deny that T1D made me a lot more disciplined and attentive to my body. Few people pay so much attention to their health so we can at least feel positive about that!