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Willowz

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My daughter was diagnosed with type 1 last week, she's 9. She came out of hospital last Wednesday and we're currently managing ok at home. Blood sugar levels are currently still all over the place, mostly really high (up in the 20's) The Paediatric diabetic nurses are still trying to get her insulin doses right. But we're managing and she has got used to the injections pretty well.

I just wondered how many other parents there are on here, or if there are other diabetics who have been diagnosed type 1 since childhood, who may be able to give me an insight in how she may be feeling.

At the moment it's just enough to do one day at a time. :confused:
 
Hi Willowz 🙂

Welcome to the forum. There are plenty of other parents on here - check out the parents section! One other resource (probably the best resource above and beyond all else) I can recommend is the Children With Diabetes emailing list. You can join it here:

http://www.childrenwithdiabetes.com/uk/

I was diagnosed aged 2, and there are a few others diagnosed during childhood too. Please feel free to ask as many questions as you like - this place is incredibly friendly!
 
Hi Willowz , welcome to the forum , im sure you will find loads of help on here , i was diagonised with type 1 at 10 years old it was all very bewildering at the time but i think children adapt very quickly , i also have a 16 year old niece who was diagonised at 14 years old , Happy to answer any questions 🙂
 
Hi and welcome.

My son was diagnosed in May this year in his second year at university. It is a big shock at first and so much to learn. I found it really hard at first...lots of different emotions and that I why I found this board so useful as I realised that lots of parents felt the same as me🙂

My son just got on with it and is loving his final year at uni.

It's very demanding in the first few weeks and it consumed my every waking moment! It does get easier and as someone kindly said to me you do come up for air and life becomes a new normal again

Take care
Sue x
 
Welcome to the site, there are lots of parents here in the same situation and they will be happy to share their experiences no doubt........
 
Hi Willowz, welcome to the forum 🙂 Sorry to hear of your daughter's diagnosis, but good to hear that she is taking to the injections OK. Her blood sugars should improve to better levels soon as the dosages of insulin become refined and you learn more about how different foods affect her - it's all about carbohydrate content and the relative speed at which this turns to glucose in the blood, and matching this to the insulin doses (and vice versa!). There is a lot to learn, but you've already made an excellent start to understanding it all by joining here!

What insulin is she on? We have lots of parents here who share this forum and the children with diabetes site that Shiv mentioned so you are in good, experienced company 🙂 Also, I'd recommend you get a copy of Type 1 Diabetes in Children, Adolescents and Young Adults by Ragnar Hanas. It will explain everything you need to know about living with Type 1. For anything you are not sure of - please ask! No question is considered 'silly' here!
 
http://www.childrenwithdiabetes.com/uk/

Hello and welcome to the forum.🙂

My son is 12 and was diagnosed 2 years ago and is on an insulin pump. The link above is full of parents of children with type 1 (sadly) and is a great place for any information and support you need. If you join, click on the left hand side and join the 'email' list - but if you dont want your normal inbox full of messages (sometimes up to 30 a day) you can set up another account to use just for CWD. We meet once a year and have a caravan park holiday with the children and have various meet ups through the year depending on where you live.🙂Bev
 
Hey there and welcome to the forum ... there will be lots of people willing to share their experiences and journeys on here i'm sure ... good luck with the little one ... I'm sure you'll be on top of things in no time when you've got your head around everything!! XxXxX
 
wow thanks guys I feel so welcome. She's on novorapide and levimer. At the moment it's a case of trial and error with the doses. We take her blood sugar, then phone the nurses when she's eaten and they tell us what dose to give. They say it will be like that for a while. She goes back to school next Monday, I think that will be interesting!
 
Willowz said:
wow thanks guys I feel so welcome. She's on novorapide and levimer. At the moment it's a case of trial and error with the doses. We take her blood sugar, then phone the nurses when she's eaten and they tell us what dose to give. They say it will be like that for a while. She goes back to school next Monday, I think that will be interesting!
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Pretty much how most people start, I think. It's good that you are on those insulins as they will give you more flexibility in the future than other regimes (there are twice-a-day insulins that are harder to get good control with). Has the nurse spoken to the school, and have you discussed what to do with the teachers for things like testing and injections?
 
yes one of the nurses has been out to the school, at the moment she isn't able to do her own injections so I will be going in at lunchtimes for a while. She has her first clinic appointment on Wednesday (27th) so hopefully I can ask more questions then
 
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