Hi!!

[Mama of a T1D]

Hi all, I thought I’d drop by and say a bit about myself. My DS got diagnosed in Jan this year and is 13. We are still trying to get our heads around it. He is also being assessed under CAMHS for behavioural challenges. But he is kind, has a fantastic sense of humour, loyal, and very caring. (I’m biased. I know.)

I’ll prob pop up a lot on different threads ☺️ I find these groups so helpful.

 

[SB2015]

Welcome to the forum @Mama of a T1D . I am glad that you have found us.

How is your DS managing?
What insulins has he been given?

There is plenty of experience to tap into on here so fire away with any questions that you have.

 

[Mama of a T1D]

Welcome to the forum @Mama of a T1D . I am glad that you have found us.

How is your DS managing?
What insulins has he been given?

There is plenty of experience to tap into on here so fire away with any questions that you have.

Hi,

He is coping well (and much better than me,) BSL’s are up and down, few hypos (daily) and hypers (evenings)
He has had the Libre 2 for a few weeks and meds wise he’s on the Novarapid and lantus.

 

[EmmaL76]

Hi. I have a son the same age. He also has a similar personality. He’s been under assessment since he was about 6 but finally it’s been decided that he’s totally fine just has some funny little ways. Although he isn’t diabetic, I am and I wonder if your sons behaviour changes have coincided with his diagnosis. Huge swings in blood sugar can create havoc with mood especially i would imagine in a child around that age where hormones are starting to take effect. I hope he is coping ok, bless him xx

 

[Mama of a T1D]

My DS has had so much support from the age of 18 months for his behaviour. I believe he’s slipped through the net for support but I have pushed for an assessment. It could just be his character. It’s so difficult to tell, he is and has been very Jekyll and Hyde. He also has dyslexic tendencies and process memory delay and this makes the diabetes a bit trickier at times.

 

[everydayupsanddowns]

Welcome to the forum @Mama of a T1D

Sorry to hear about your lad, and the way it has impacted him. Hope you are able to get the assessment for additional support.

Diabetes can carry additional mental health burden, and can be frustrating and draining to live with, but it is also something that can be well managed, and can be made to fit around his life, rather than the other way around. Modern tech and insulins can really help, and it shouldn‘t stop him doing anything he wants to do.

We have members who have been living with T1 for decades, living well, travelling, falling in love, raising families, running their own businesses, running marathons, playing sport at high levels, playing in bands… The sky is the limit!

 

[trophywench]

It's recently really infuriated me the way that 'different' children are treated in the UK. One of our great grandkids happened to be born in Nottingham and was diagnosed autistic aged 2 (and we all knew by then there was something not quite 100% anyway so no great shock, more relief really to be getting help and advice on what's best for him) and got lots of help and advice. Then they moved to Doncaster (Dad's job) and nobody is interested - they refuse to do any assessment of any child until aged 6, despite the fact that the NHS and local authority 'just down the M1' have already assessed him and immediately offered to pass all the info they already had, what tests etc etc on, to his new Health Team.

You'd think they'd upped roots and gone to live in Outer Mongolia.