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Nyadach

Nyadach

Well-Known Member
Relationship to Diabetes
Type 1
Hi all,
Thought I would introduce myself. Names Allan, and live way up north in Cumbria. Am in my mid 30's now, but been a type 1 since I was 4, so quiet a while and seen loads of changes over that time. Recently done the DAFNE course which has been utterly fantastic for smoothing out my peaks and troughs, and also stopping my over countering hypos. So pretty good there. It's actually the good folks over on the DAFNE forums who recommended dropping over here so here I am 🙂
 
Hi Allan. Welcome 🙂

What insulins are you on (assume MDI) ? 🙂

Rob
 
Hi Allan welcome to the forum
 
Hi Allan, welcome to the forum 🙂 I'm an Alan too, although my parents could only afford one 'l' :D Good to hear that the DAFNE course has helped you so much - it's something I have heard frequently here from people who have been diagnosed a while and just goes to show that there's always something new to learn. I look forward to hearing more from you!
 
Currently on Novorapid and Lantus, although the Lantus has been split to twice daily since DAFNE which has solved most of my levels from bouncing around. Although my consultant keeps trying to talk me into a pump, but guess we'll see how that works out in time.

As for the 'l', guess if its very much like me...always in for a bargain. Heck, it's how all this started. I go catch chicken pox and get this thrown in free! :D
 
Being a Yorkshireman I can immediately see that I will save an enormous amount in ink over my lifetime by not having to write that extra 'l' 😉

Most of the people I have heard of with pumps would fight tooth and nail to keep them, so it sounds like you are in the hands of a good consultant. Why does he think you would benefit - do you have problems on injections?
 
I got mine after chickenpox too !! :D

But I was 13. Also split lantus late last year and it worked a treat. Doesn't seem to do what it says on the tin for everyone.

But I'm not from north of Watford, so the similarities stop there. 🙄

Rob
 
Well, current consultant is great. But he's been busy fixing a load of issues from the previous consultant who was best described as an accountant. About 8 years back went to see her as usual, only to find the place utterly deserted (very odd no nurses asking for blood etc), only to get discharged. Coming out found a room of us all standing there utterly lost wondering what the heck was going on. Annoying thing back then was that I had just been put onto Lantus and Novorapid, but were using the same old doses as my old Actrapid and Protophane (I think it was called for my long acting?). Basically I spent many years hopping around with my levels like a silly thing.

My GP tried to help the best they could, but usually just advised small dose changes. He kept trying to send me to the original consultant, but pretty much got told where to go (even showed me one of the letters). Eventually he sent me out of the county to a new consultant. He went utterly spare about the doses, and pretty much recommended only using a third of everything till I got the ratio's sorted. Had been getting so bad with bouncing levels though I was being scraped up by paramedics 2-3 times a week (have to admit some utterly hysterical stories if you can have a laugh at hypos). I somehow even managed to do the coast to coast bike ride with the way over the odds insulin levels somehow also...how I have no idea, but sheesh I was I a mess during it at times hopping between the 20s and sub 2's.

But, latest consultant has been brilliant, and fantastic at getting things in a right direction. Not had a single hypo needing outside intervention since seeing him over the last 18 months.
 
Welcome to the forums Allan 🙂
 
Chicken pox

Me to was diagnosed after those peskey chicken pox back in 1966 (3). Is there a connection or is it that your body is just getting a good test ? I also have done c2c, Hadriens,Coast & Castles a few years ago. And know you would love a pump. I have just done my Bridges walk (on web,paper & tv) around uk by myself and know it would been at lot harder without pump. Take your consultants arm off !
 
Hi Allan! Welcome to the forum. I got mine after glandular fever when I was 16 apparently, not that I had any symptoms of the glandular fever, it just came up on the blood test when I was diagnosed. My younger cousin had the same experience 2 months later :(
 
Nyadach said:
(have to admit some utterly hysterical stories if you can have a laugh at hypos).
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Hi Allan and welcome,

I love hypo stories, I have the most ridiculous and random thoughts, dreams, slow-motion movements/speech when I hypo, but I think it is fine for all on the forum to laugh at each others stories as we can all relate and appreciate the humourous side the hypo can create!!!:D

As for illness relation, I was never ever ill as a kid yet I'm sure I read somewhere that researchers had linked that if as kids we are not always fighting minor illnesses like most children, coughs, colds, bugs etc then out immune systems never strengthen and develop so when a major illness appears to fight, the body refuses and starts attacking the pancreas!!! Typical! As said, I never was ill as a kid so this theory really makes sense to me!!!
 
Hi Allan and welcome from me too.

I often ponder the chicken pox bit - my friend's son was diagnosed aged 3 after a bout of chicken pox back in 1999. My son was ill too having the chicken pox then a post viral virus type of thing at the same time, only my son got over it when my friend's son was admitting to intensive care with what turned out to be type 1. My own son was only diagnosed 7months ago but my immediate thought was that he had the same strain of chicken pox as my friend's son and I often wonder if it had anything to do with it, even though there was a 12 year delay........

Do you think we should all become scientists and check out the chicken pox theory?
 
I was diagnosed after contracting a stomach virus. I had probably had a failing pancreas for a couple of years prior to that, but it's thought that the extra stress of dealing with the virus pushed me over the edge and I was admitted with DKA. I think there's a fairly common belief that there is a link between Type 1 and viruses, perhaps when ombined with genetic susceptibility.
 
Hi Allen.

Welcome to the forum ... Im Heidi, mam to Nathan aged 16, type 1 , dx 4 haif years ago.

Hehe, A fellow cumbrian ... :D, Im in the south of the region.

Heidi
xx🙂
 
Northerner said:
Hi Andrew, welcome to the forum 🙂 It's very common to have vision changes when you are newly-diagnosed - this is due to the high blood glucose levels altering the way the eyes work and is usually temporary once treatment is started and blood sugars return to more normal levels. What medication are you on, and how has your first year been?
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northe can you move andrew into his own newbie thread xx
 
hi allan and welcome to the forum from me to x🙂
 
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