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Courtneylauren

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Hi! I’m a type 1 diabetic and have been for 18 years
I’ve been struggling the past 5 years getting back on track with my diabetes I feel I have self neglected for too long and ended up with complications, if anyone has any advice on diabetic burnout and what keeps them on track I’d love to hear it, diabetes can feel so lonely with nobody to talk to who is experiencing it x
 
Hi @Courtneylauren and welcome to the forum. I am not T1 so cannot help directly but diabetic burnout is a topic often raised on the forum, indeed a thread was started by @Kevin61 very recently.

K

Thread 'Looking for help with Diabetes Burnout'

Hi. I've been T1 for over 20 years and recently, have got fed up with the whole BG management. Diabetes seems to have taken over my life and my DNS reckons that I'm well on the way to diabetes burnout. I didn't know such a thing existed, but would be interested to know of anyone else suffering mentally and what you do to cope.
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If you look around the forum you will find others and I am sure some of our members who have experienced burnout (you are far from alone) will be along to offer their thoughts and strategies for coping.
 
Hello and welcome. The forum is a place where you will find you have someone with whom you can share your concerns. As Docb says, you can have a look round the forum but you will also see that specific questions will receive some specific and some wider answers.
 
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Welcome to the forum @Courtneylauren and well done for getting your diabetes back on track. Your post on the other recent burnout thread was so lovely, and so encouraging.

I completely agree that T1 can feel like a very isolating condition at times. I had lived with T1 for almost 20 years, and had only ever bumped into 2 other people with T1 - neither of whom had a version of T1 that seemed anything like mine. The idea of meeting others with T1 to talk about diabetes had no interest. Diabetes was annoying, and the least time I spent thinking about it or acknowledging its existence the better!

It was only after a particularly nasty hypo, that I started connecting with others online via Twitter, blogs, and forums like this one, and had some real “Aha!” moments, and discovered the amazing power of peer support, and the diabetes online community.

I feel so different about my diabetes now!

The other day I was in a cafe and a Medtronic Pump Alarm went off - except it wasn’t mine. When I looked up from checking my pump a guy was reaching for the waistband of his jeans and I assumed it was him, so I made a jokey comment about “thinking that was me”. Except is wasn’t him - He was T1, but on injections - it was his partner’s pump that had alarmed. As we were chatting a guy sat by the window chipped in. He was ALSO T1, and we had a mini diabetes meet-up right there, chatting about pumps, hybrid loops, DIY APS, and how fast things are moving. Made me smile for the rest of the day!
 
Hi @Courtneylauren and a very warm welcome from me too 🙂 . I never really used to talk about having the condition and it felt quite isolating. However since joining the Forum I've realised that it's so useful to be able to chat to others who understand. As mentioned in the burnout thread that @Kevin61 started , my way of coping with the condition is to manage it the best way I can, take each day as it comes and don't allow it to dominate my life. I hope you find all the help and support you need on this Forum 🙂
 
Hi @Courtneylauren I am one year behind you and hit burnout a few years ago. I came from a different perspective having set myself totally unrealistic expectations of my management and then wondering why I couldn’t achieve them. It took me time to ask for help but I am glad that I was persuaded to do so by others on here.
I tracked my progress on here in this thread
SB2015

Thread 'Successful strategies so far in dealing with depression and Diabetes'

I found it tempting to hide away over the last couple of months.

After 9 years of Diabetes I finally hit a wall as HbA1c reached the mid 40s and so no longer improved, spinal stenosis gave me numb feet over night, an MRI showing lesions on the brain and I watched my Mum die of Dementia. Depression descended.

Thanks to Rosie on here I eventually asked for help, but there was a one year waiting list for any talking therapies. I was able to pay for counselling and I thought I would be up front about some of the strategies that I have already found helpful in the hope that these may be of...
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There are also a variety of other threads dealing with this issue which hits many of us.

I know that I find the peer support on here of great benefit. Keep in touch. Ask any questions that arise, or simply have a rant. We all ‘get it’. Diabetes can be relentless, but so is the support on here.
 
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