Hi recently diagnosed type 1 at 36 years old

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Melwhitey87

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Type 1
Hi all as the title says I’m recently diagnosed. Prior to diagnosis I had no symptoms or anything that would make me think I was type 1 diabetic. I ended up really ill on the 22nd December 2023 needed emergency treatment for extremely high blood sugar levels and high ketones. Sugars were 30 and ketones were 9.
Just beginning to get the hang of things but I joined here to get advice on different things that could benefit me as a newly diagnosed patient. Hope everyone is as well as can be x
 
And Welcome from here @Melwhitey87. Day 26 (?), but who's counting .... there are a few things to get the hang of!

Have you got a CGM, such as Libre 2 or Dexcom One?
 
Welcome to the forum @Melwhitey87

Sorry to hear about your whirlwind entry into the world of T1. Must have been quite alarming for you 😱

Which insulins have you been started on?

As well as the excellent books suggested above, which are great resources, you might also like this simple introduction to balancing insulin doses with the amount of carbohydrates in meals (if your clinic have yet to suggest this technique to you).

Different clinics have different approaches, and it’s important not to overwhelm people in the beginning, but this can also lead to frustration, so sometimes it can be helpful to get a little ahead of the game - then at least you can know what advice and education courses to press your clinic for (eg DAFNE or a local equivalent).

The nuts and bolts of carb counting

When you live with type 1 diabetes, carb counting is a great way of managing your blood sugar or glucose levels. It can give you more freedom and flexibility in what you eat when you're preparing meals at home, grabbing food on the go or eating out. Carb counting does take some time and effort...
www.diabetes.org.uk www.diabetes.org.uk
 
Hi and welcome. My diagnosis story was actually quite similar to that I too ended up in hospital with my blood sugar being 35 and ketones at 6(not only that I was hypothermic, my pluse was ridiculously low and needed to be given oxygen).

At Frist I really struggled to come t9 terms with it and would get frustrated with almost everything. But overtime thanks to partly to this forum and other diabetics I'm in contact with though Facebooks groups I've gotten more relaxed about things. If course I still get frustrated at times but my point is things can get easier.


I hope you find stuff helpful.
 
Experiencing the symptoms of blood sugar level going too low (ie a hypo) confirmed with a finger pricks on a meter in a nice calm environment i found when first diagnosed pretty useful too and what to do when this happens, essential if you are a driver.
 
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Melwhitey87 said:
Hi all as the title says I’m recently diagnosed. Prior to diagnosis I had no symptoms or anything that would make me think I was type 1 diabetic. I ended up really ill on the 22nd December 2023 needed emergency treatment for extremely high blood sugar levels and high ketones. Sugars were 30 and ketones were 9.
Just beginning to get the hang of things but I joined here to get advice on different things that could benefit me as a newly diagnosed patient. Hope everyone is as well as can be x
Click to expand...
Hi,
I was diagnosed last summer under the same circumstances as you. Lots of good advice here, hopefully your DSN’s are supportive as mine are here otherwise you might need to push a little once you’re more knowledgable
Only advice right now is don’t be in a big rush (maybe too late now) to lower your blood glucose levels too fast.
It’s all a pain in the a$$ but manageable, sorry to say but welcome to the club
 
mitchsi said:
Hi,
I was diagnosed last summer under the same circumstances as you. Lots of good advice here, hopefully your DSN’s are supportive as mine are here otherwise you might need to push a little once you’re more knowledgable
Only advice right now is don’t be in a big rush (maybe too late now) to lower your blood glucose levels too fast.
It’s all a pain in the a$$ but manageable, sorry to say but welcome to the club
Click to expand...
They wanted me home when my sugars were still high 20’s but I was in hospital for 2 weeks and they are hardly ever over 15 now. Food is still a learning curve for me but I’m sure over time I’ll get the hang of it. Thank you x
 
Melwhitey87 said:
They wanted me home when my sugars were still high 20’s but I was in hospital for 2 weeks and they are hardly ever over 15 now. Food is still a learning curve for me but I’m sure over time I’ll get the hang of it. Thank you x
Click to expand...
Welcome to the forum. It is a lot to learn but will get easier.
Ask any questions that arise. Nothing is considered silly on here.
 
Melwhitey87 said:
Hi all as the title says I’m recently diagnosed. Prior to diagnosis I had no symptoms or anything that would make me think I was type 1 diabetic. I ended up really ill on the 22nd December 2023 needed emergency treatment for extremely high blood sugar levels and high ketones. Sugars were 30 and ketones were 9.
Just beginning to get the hang of things but I joined here to get advice on different things that could benefit me as a newly diagnosed patient. Hope everyone is as well as can be x
Click to expand...
Hi,

Best suggestion I could give a type 1 newly diagnosed is to stick to a similar daily meal regime.

In the early days, it's all about trying to work out how much insulin one needs. Like any good experiment, it's always recommended to only change one thing at a time (in this case only changing the insulin, not the amount of food or time of meal). By keeping to the same meals, same carbs, same timing each day, it becomes easier to work out (by trial and error) whether you need more or less insulin for "that" meal (be it breakfast, lunch or dinner).

As one gets to grips with this, then you can "branch out" and start bringing in different carb portions, meal types etc. This is known as the D.A.F.N.E approach, which is more like typical eating.

Tip: The amount insulin / ratio one needs can largely depend on the time of day. For example, the amount of insulin I take for breakfast is far more than the exact same meal if eaten at lunch or dinner. I take 3 units of (humalog) per 10g of carbs in the morning, 2:10g at lunch and 1:10g at dinner. So for a bowl of whole rolled oats porridge eaten at breakfast time (say 40g of carbs) I would take 12u of insulin (humalog).

Then there is the timing when to take the fast acting insulin, many find they need to inject 20mins before eating to prevent a spike in their blood sugar.
 
Amity Island said:
Hi,

Best suggestion I could give a type 1 newly diagnosed is to stick to a similar daily meal regime.

In the early days, it's all about trying to work out how much insulin one needs. Like any good experiment, it's always recommended to only change one thing at a time (in this case only changing the insulin, not the amount of food or time of meal). By keeping to the same meals, same carbs, same timing each day, it becomes easier to work out (by trial and error) whether you need more or less insulin for "that" meal (be it breakfast, lunch or dinner).

As one gets to grips with this, then you can "branch out" and start bringing in different carb portions, meal types etc. This is known as the D.A.F.N.E approach, which is more like typical eating.

Tip: The amount insulin / ratio one needs can largely depend on the time of day. For example, the amount of insulin I take for breakfast is far more than the exact same meal if eaten at lunch or dinner. I take 3 units of (humalog) per 10g of carbs in the morning, 2:10g at lunch and 1:10g at dinner. So for a bowl of whole rolled oats porridge eaten at breakfast time (say 40g of carbs) I would take 12u of insulin (humalog).

Then there is the timing when to take the fast acting insulin, many find they need to inject 20mins before eating to prevent a spike in their blood sugar.
Click to expand...
Thank you for your help
 
everydayupsanddowns said:
How have things been going @Melwhitey87 ?
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Hi not to bad, sugars are varied over 9 most of the day for most days. My appointment was cancelled for 25th so still haven’t seen anyone since being discharged from hospital. I’m finding my appetite isn’t as good past couple of days but my sugars are still high. Everything is still very new and sometimes I feel like I’m winging it. Hope everyone is ok x
 
Melwhitey87 said:
. Everything is still very new and sometimes I feel like I’m winging it. Hope everyone is ok x
Click to expand...
I've been diagnosed for coming up to 2 and a half years and I still learn sometimes so don't get frustrated if you don't know understand everything.
 
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