My daughter also has Asperger's, she's handling the news alot better than me, I'm constantly crying and anxious as it's so overwhelming, I'm struggling with the jargon, we have our first alignment with diabetic nurse tomorrow.
-
Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
Hi, my daughter newly diagnosed type 1
- Thread starter Senga
- Start date
- Status
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Hi Senga, welcome to the forum 🙂 I'm very sorry to hear about your daughter's diagnosis
How did it come about? Please try not to worry. It is a lot to take in to begin with, but there is a lot of help and support available, and you can ask us any questions you may have - nothing is considered 'silly'!I would highly recommend getting a copy of Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas, which is a really well-written and comprehensive guide to all aspects of living with Type 1 (whatever your age) - if I was in charge every person would receive a copy at diagnosis! What insulin is she on? There is a steep learning curve, but things will become easier. You may like to read Adrienne's essential guide for parents of newly-diagnosed children, written by one of our members whose daughter was only a few hours old at diagnosis - she is now a wonderful, healthy young woman. It's a serious condition, but it doesn't have to stop your daughter from doing anything she wants to do, there are some great role models in all walks of life living with Type 1.
As I said, please do not hesitate to ask any questions you may have, we will be more than happy to help 🙂
Jodee
Well-Known Member
- Relationship to Diabetes
- Type 2
So sorry to hear about your daughter Senga, I am sure you will feel happier once you have seen the nurse tomorrow. Write down any questions you have today so you can ask tomorrow. I am sure the nurse will reassure you that you can contact the clinic any time if you have concerns and there is always the helpline here at Diabetes UK.
Thebearcametoo
Well-Known Member
- Relationship to Diabetes
- Parent of person with diabetes
Hi and welcome. We found the first couple of weeks it seemed like we’d never get our heads around it all but you do learn. Come and chat on the parents forum if you want general support or have specific questions. It’s a big shock and will take a while to come to terms with but it will become second nature. Lean on your diabetes team. We had a lot of support in the first couple of weeks and still have contact with them on a regular basis as well as scheduled clinics. How old is your daughter?
Bronco Billy
Moderator
- Relationship to Diabetes
- Parent of person with diabetes
Hi Senga, welcome to the forum. I, too, am a parent of diabetic children. Your feelings at the moment aren’t uncommon and are entirely natural. Some have described it as a period of mourning for the child you knew.
Now is the hardest time, everyone is adjusting and adapting to a new life and a new ‘normal’. I remember returning home from hospital with my daughter after she had spent a few days there. I realised that our lives had changed forever but I also knew that had no idea how! However, as time went on, my wife and I became more knowledgeable and experienced. It might seem like a long way off at the moment, but this will happen to you, too. Every day, your knowledge will increase and so will your confidence, even if it’s by such a small amount, you don’t notice.
If there is anything in particular you want to know, please ask away. No question is too silly. In case you haven’t seen it yet, there is a section on the forum called ‘parents’. That’s a good place to ask any questions you may have.
Good luck with the appointment and everything else.
Now is the hardest time, everyone is adjusting and adapting to a new life and a new ‘normal’. I remember returning home from hospital with my daughter after she had spent a few days there. I realised that our lives had changed forever but I also knew that had no idea how! However, as time went on, my wife and I became more knowledgeable and experienced. It might seem like a long way off at the moment, but this will happen to you, too. Every day, your knowledge will increase and so will your confidence, even if it’s by such a small amount, you don’t notice.
If there is anything in particular you want to know, please ask away. No question is too silly. In case you haven’t seen it yet, there is a section on the forum called ‘parents’. That’s a good place to ask any questions you may have.
Good luck with the appointment and everything else.
TheClockworkDodo
Well-Known Member
- Relationship to Diabetes
- Type 1
Hello Senga, and welcome - sorry to hear about your daughter's diagnosis, but you have come to the right place for information and support. Please ask us any questions you have - someone is sure to be able to help 🙂 And do make sure you get some contact details for the diabetes nurse, so you can get in touch with them any time you need more specific advice, as there are sure to be things you think of after the appointment.
My partner was never diagnosed, but we are pretty sure he has Asperger's. If routine is as important to your daughter as it is to him, I would imagine she would find managing diabetes quite easy, because it is very much about getting into a routine and making sure you do all the right things at the right times of day.
My partner was never diagnosed, but we are pretty sure he has Asperger's. If routine is as important to your daughter as it is to him, I would imagine she would find managing diabetes quite easy, because it is very much about getting into a routine and making sure you do all the right things at the right times of day.
- Status