Hi, Im new and I need help !!!

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michaelaplummer

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Relationship to Diabetes
Type 1
I am 39 years old and have had type 1 diabetes for 30 years, which to be honest
up until 2 months ago has been fine, then I lost all hypo awareness, and cannot
stabilise myself I am having countless hypos maybe 2 or 3 aday, I have seen my
consultant and have tried running bloods high, reducing insulin levels
drastically, and have even been admitted for a series of tests, testing steroid
levels etc - in hope of finding an answer but everything is fine, but I feel so
ill, very very tired, all of the time, feeling sick a loss of appetite and
generally miserable and sorry for myself all though Im trying really hard not to
be, and crying at the drop of a hat.
What can I do, and whats wrong with me ?
Michaela
 
Hi Michaela, welcome to the forum 🙂 Very sorry to hear of the problems you are having. I've only been diagnosed less than 2 years, so can't really suggest anything. Do you carb count, and are you eating carbs with your meals? Are you losing weight at all? Hopefully, some of our longer-diagnosed members will be able to relate to what you are going through.
 
Hi Michaela and welcome to the forum sorry i cant help with your question as i type 2 i dont suffer very much with hypos but wanted to say hello.Someone will be along soon to help you out hun xx
 
hi michaela

welcome to the forum. i'm shiv, i've been type one for 19 years - it's great to have another long-timer with us.

what type of treatment are you on? the first thing that sprung to mind is having insulin pump to help with the lows. are you able to borrow a continuous blood glucose moniter at all to have a look at what your levels are doing when you're not testing?

shiv x
 
Hi Michaela,

I've been type 1 for 25 years and i no longer have warning signs of hypo. My gp says it's simply because i have had this condition a while and my control is tight most of the time. She suggested running a little high for a time but putting that up against the problem of long - term complications, i'd sooner stay low and risk it. That's just me.

I do a lot of testing - probably 12 times a day at least and try to do it at times when i know i may be having a hypo. Luckily, i haven't yet had a really bad low and i find my new short-acting insulin, (novorapid) tends to stop me having sudden hypos. Beforehand, i was on actrapid and that used to bring down my levels very quickly indeed. What insulin are you on?

It certainly helps to have enough carbs with a meal to see you through to next time. I find my lowest point after injecting is about 2 hours or so.

Please ask any more questions and i'm sure others will have more advice as well.
 
Hey Michaela,

Nice to see you on here. Just ask anything as there is nothing that's too daft to ask on these forums. It's not really my place to say this but some people don't use the so called human insulins like Novorapid and Levemir due to the lack of hypo awarness. Instead they use animal insulins (either bovine or porcine) which do apparently give better hypo awarness. How about asking your consultant about that? Generally I'd just put a rocket up them and see what happens.

Good luck!

Tom
 
Hiya and welcome

I sometimes don't get hypo awareness, but mine comes and goes. It's a very bizaare thing but I guess maybe after a long time of having T1 it may be lost anyway? Don't quote me on that 🙂

Don't worry you're not doing anything wrong.

The only thing I was told was to run myself higher than normal - say 10-12 for a month or so, to get the awareness back. I really didn't feel comfortable with this though.

My hypo awareness is odd - I very rarely feel very very bad hypos, but get symptoms as I'm coming back up to normal levels.
 
michaelaplummer said:
have even been admitted for a series of tests, testing steroid
levels etc - in hope of finding an answer but everything is fine, but I feel so
ill, very very tired, all of the time, feeling sick a loss of appetite and
generally miserable and sorry for myself all though Im trying really hard not to
be, and crying at the drop of a hat.
Michaela
Click to expand...

Hi Michaela
though the tests have said all is OK - things obviously aren't. You will be feeling depressed because you don't know what is going on or when you will be able to start feeling normal again.

Has your consultant tested you for coeliac disease - I have no experience of it myself but have heard of several people who developed it and it caused their sugar levels to be erratic to the point where they were told the end was nigh. Someone suggested the test and it was that and they were able to come up with a treatment strategy.

The other thing that occurs to me is that if you are not feeling like eating you may be injecting too much insulin as your portion sizes are smaller.

Keep plugging away - you'll find a solution.
 
Hi Michaela, welcome to the forum.
 
Hi Michaela

Welcome to the forum 😉 x
 
Hi welcome to the forum, hope you can get some answers to your questions, im not much help as only been diagnosed a few months x
 
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