Hope I am posting this in the right place. Just wanted to say hi. I have been a long time lurker but have never posted. This site has been so helpful for me in the past few years, as I have had to learn to live with diabetes. I guess I am a type 3C-the US health system only recognizes type 1 and type 2 and I get assigned to one or the other by different providers. In 2016 I was hospitalized with acute necrotizing pancreatitis (not alcohol related), lost a good portion of my pancreas and was discharged from the hospital a diabetic-with very little direction/instruction. Having no experience with diabetes before, it was quite a lot to learn. Currently I am on a basal insulin one time a day and metformin twice a day. That with diet, seems to give me pretty good control. Again just saying hi and thanks for such an informative site.
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Hi from Florida - sort of newbie
- Thread starter GatorGal
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Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
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- She/Her
Welcome to the forum from a former lurker.
There are a few people on here with 3c as you will have seen and I hope they have been helpful and informative in their posts. I'm sure they will answer any specific questions you have. It is always interesting to see how other countries handle the management of diabetes.
There are a few people on here with 3c as you will have seen and I hope they have been helpful and informative in their posts. I'm sure they will answer any specific questions you have. It is always interesting to see how other countries handle the management of diabetes.
Hi GatorGal, welcome to the forum.
Just popping in to say hi. I'm glad that you've decided to post as it's great to have the support from the community.
There is a lot to learn but it seems as though you've done a great job getting things under control thus far.
I didn't realise that 3c isn't recognised in America, makes it even more challenging to deal with but we do have lots of info on the site that may be helpful. If there's anything specific that we can help with, do let us know.
Just popping in to say hi. I'm glad that you've decided to post as it's great to have the support from the community.
There is a lot to learn but it seems as though you've done a great job getting things under control thus far.
I didn't realise that 3c isn't recognised in America, makes it even more challenging to deal with but we do have lots of info on the site that may be helpful. If there's anything specific that we can help with, do let us know.
Thanks for your responses. It was really scary when the reality of the situation hit me a couple of months after being released from the hospital. The medical staff were of course focused on the immediate problem of the dying pancreas that the diabetes was an after thought. Took me a while to find helpful resources and this was one of them. It is just really nice knowing that I’m not the only going through this and people find ways to manage it.
ANNIE1625506014
New Member
- Relationship to Diabetes
- Type 2
Hi GatorGal , I'm a newbie here to. Just been diagnosed with T2 about 6 weeks ago and handed Metformin to take, have no idea about all this diabetic stuff so am here to learn and get support, and maybe offer support.
It is overwhelming in the beginning, particularly if you have no experience with diabetes, but you are starting at the right place. You will find out what works for you. One of things I learned was to do a lot of testing to see how I reacted to various foods. Once you work that out and get a comfortable eating pattern it becomes a lot easier to manage. I was started on the metformin about 6 months after diagnosis and was able to wean off of meal time insulin, as long I watched the carbs, it really evened out my blood sugar. So I do still have some insulin production in what’s left of the pancreas. I am on the extended release and have found taking 1/2 of the dose in the morning and the other 1/2 in the evening really works well, but that was through experimentation.
Well done @GatorGal, living with what is effectively both T1 and T2must be so much harder than just a single type of diabetes. But even worse when healthcare professionals don't even recognise it!
I'm so pleased to hear you have found both the site and testing your foods to be helpful in managing it.
Congratulations on being able to reduce/eliminate your meal time insulin.
I'm so pleased to hear you have found both the site and testing your foods to be helpful in managing it.
Congratulations on being able to reduce/eliminate your meal time insulin.
- Relationship to Diabetes
- Type 1
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Welcome to the forum @GatorGal
Glad you have de-lurked at last
And thanks for your kind words about our community. Glad you have found it helpful as you have begin to get to grips with your diabetes.
@eggyg may have helpful suggestion about living with type3c - one of our most frequent ‘creonista’ posters 🙂
Glad you have de-lurked at last
And thanks for your kind words about our community. Glad you have found it helpful as you have begin to get to grips with your diabetes.
@eggyg may have helpful suggestion about living with type3c - one of our most frequent ‘creonista’ posters 🙂
eggyg
Well-Known Member
- Relationship to Diabetes
- Type 3c
Hi @GatorGal
I too have Type 3c caused by pancreas removal over 13 years ago. I was initially told I was Type 2, Type 3c still isn’t well known in the UK and I’ve had to fight to get my type changed so I am able to access the treatment I need.
I didn’t become diabetic until three years after my op and didn’t need insulin until four years after that. I use a basal/ bolus regime and on Metformin too. I also take Creon to replace the digestive enzymes that our pancreas produces. I live a full life, and basically just get on with it. I have done my own research and have been helped by this forum, as generally the health care professionals haven’t a clue about our special type of diabetes. Everyday is a learning curve even after all these years.
If you’ve any questions please ask. Elaine.
I too have Type 3c caused by pancreas removal over 13 years ago. I was initially told I was Type 2, Type 3c still isn’t well known in the UK and I’ve had to fight to get my type changed so I am able to access the treatment I need.
I didn’t become diabetic until three years after my op and didn’t need insulin until four years after that. I use a basal/ bolus regime and on Metformin too. I also take Creon to replace the digestive enzymes that our pancreas produces. I live a full life, and basically just get on with it. I have done my own research and have been helped by this forum, as generally the health care professionals haven’t a clue about our special type of diabetes. Everyday is a learning curve even after all these years.
If you’ve any questions please ask. Elaine.
Thanks, Eggyg. I am curious - did you start out on enzyme replacement - right after surgery - or did it take some time, like the insulin.
eggyg
Well-Known Member
- Relationship to Diabetes
- Type 3c
I started taking Creon before my op as my pancreas was diseased because of pancreatitis. I actually instantly felt better. Just small doses at first, after operation larger doses and as the years have gone by more and more. They removed two thirds of my pancreas and the third that was remaining is now completely atrophied. I find the digestive problems worse than the diabetes truth be told, but like everything you learn to live with it.
Thanks I really appreciate your feedback. I have been having some GI issues of late, kept thinking it was a stomach virus, but I don't think so anymore, since it is more ongoing. Will let my doctor know and see what he recommends.
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