Hi, another newbie recently diagnosed with diabetes.

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Alijp

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Hi all, thought i'd just introduce myself and give a little background to my diagnosis.

In October I was taken ill with severe lower abdominal pain, this pain was located around the top of the pubic bone towards the left hand side, this turned out to be an infection in my pelvis and I spent the best part of a week in hospital on IV antibiotics.

I happened to mention to the paramedic when she was at my house that I had been recently getting a dry mouth and needing to empty my bladder more frequently, she did a finger prick test and found that my BM was 24 followed by a test for Ketones which was 3.7, consequently I was blue lighted to hospital with suspected DKA and or sepsis. Although some of what happened the first few hours in hospital remains a blur fortunately I was told I had neither of these but I do recall that after being given insulin via an IV that my blood sugar remained at 24 so had no impact at all.

Next day on the ward I was visited by a diabetes nurse and prescribed novorapid at 6 units and Lantus at 16 units which in 2 days brought my pre meal levels down into the 9's and 10's with post meal levels around 12 to 13, a week on from that my levels were mostly between 5 and 8 and I was told I only needed to test before a meal. I was getting some higher morning levels so the diabetes nurse at my GP practice suggested a change to 5 and 18 respectively, now my levels pre meal are almost always within 5 to 7 with the odd one being below 5.

I was and still am significantly overweight and have been for quite some years (I have probably lost a good 2 stone in the past couple of months though most since 22 October when I was admitted to hospital), however until then I haven't actually been ill for years and have never needed to see a GP, I did have Covid at the end of September though but wasn't overly ill with it, just tired and congested in my head really. I have no idea how much I weighed at the start or how much I weigh now because I don't have any scales but my clothes and my face and people who I know are telling me I have lost weight. I'm a pretty fussy eater though which is making this journey pretty hard tbh.

I did feel a bit let down by the hospital diabetes team though because I basically went home with very little information about what was happening to me diabetes wise, I don't even know yet 6 weeks down the line what type of Diabetes I actually have, I was given this insulin and told to inject x amount at given times and a leaflet. I was recommended to look at the Diabetes UK website though which I have been doing for a few weeks before joining this forum.

My hospital HBA1c level on 22 October was very high at 124 which had come down to 108 on 7th November. I'm hoping that this week I will also have the result of an Islet antibody blood test that was taken on 7th November and I should know which type of diabetes I have although I reckon it is type 2 which is what I've put on my profile.

I will be having another HBA1c test in January and I have a phone appointment booked with a dietician at the end of December and that is pretty much where I am right now.

I'm hoping that if I am type 2 then I will be able to come off insulin and go onto medication at some point, is that a realistic hope or am I likely to be on insulin permanently?
 
Welcome @Alijp 🙂 What a stressful time for you! The good news is you’ve had the antibodies test done. That will help a lot in determining your diabetes type. DKA and ketones are more associated with Type 1 but occasionally Type 2s do get them.

I’m Type 1 not Type 2 so I don’t know all the medication options if you do turn out to be Type 2, but you might just stay on the insulin if it’s working. There are a number of Type 2s on insulin here. However, if it is Type 2, you might be able to improve things by losing weight, adjusting your diet, etc.
 
Welcome @Alijp 🙂 What a stressful time for you! The good news is you’ve had the antibodies test done. That will help a lot in determining your diabetes type. DKA and ketones are more associated with Type 1 but occasionally Type 2s do get them.

I’m Type 1 not Type 2 so I don’t know all the medication options if you do turn out to be Type 2, but you might just stay on the insulin if it’s working. There are a number of Type 2s on insulin here. However, if it is Type 2, you might be able to improve things by losing weight, adjusting your diet, etc.
Hi Inka and thanks for the welcome.

Yeah, it was a pretty stressful time. I've never really been a foodie and don't really understand food tbh, just ate because i needed to but I know one of my biggest challenges is going to be the fact that most of what I don't like to eat is the stuff I should be eating and the stuff I shouldn't be eating is the stuff I like ie pasta, bread, rice etc

Whole change of life for me 🙂
 
You could think of it more as a new chapter: new food exploration. There are still lots of things you can eat 🙂 I think carbs are ‘easy’ in lots of ways, but there are lots of nice meals that arent too carby.

I misread your original post and now see that you didn’t have DKA. Still, you’re getting good treatment having your diabetes type confirmed. Best to be sure rather than wonder in future 🙂
 
On a recent really cold wet morning I was eating a bowl of beef stew and thinking that there were people having cereal and cold milk instead, and I was actually feeling sorry for them.
My husband came in with the milk frozen to a slush and we laughed about it.
If you are an uncomplicated type two eating a low carb diet and seeing good results is like a confirmation of a correct diagnosis, and having managed on it alone for 7 years now, I can really recommend it.
I suppose that for some, left over beef stew warmed up with a sprinkle of guaran masala and some chopped cauliflower instead of rice might seem a hardship....
 
On a recent really cold wet morning I was eating a bowl of beef stew and thinking that there were people having cereal and cold milk instead, and I was actually feeling sorry for them.
My husband came in with the milk frozen to a slush and we laughed about it.
If you are an uncomplicated type two eating a low carb diet and seeing good results is like a confirmation of a correct diagnosis, and having managed on it alone for 7 years now, I can really recommend it.
I suppose that for some, left over beef stew warmed up with a sprinkle of guaran masala and some chopped cauliflower instead of rice might seem a hardship....
My diet is very low carb now compared to what it was before.

I don't know what Guaran Masala is to be honest but cauliflower is one of the veggies I do eat. I love cauliflower cheese but I guess that's out now too because of the carbs that would be in the sauce :(
 
My diet is very low carb now compared to what it was before.

I don't know what Guaran Masala is to be honest but cauliflower is one of the veggies I do eat. I love cauliflower cheese but I guess that's out now too because of the carbs that would be in the sauce :(
Cauliflower cheese is easier without the cheese sauce. Just par boil the cauli and drain REALLY WELL, then put in your dish and beat some full fat cream cheese with a bit of mustard (I like wholegrain) and dollop it on the cauliflower and then sprinkle whatever cheese you like (I tend to use a mixture of red Leicester, mature Cheddar and parmesan) on the top (liberally) and then finish cooking in the oven.
 
My diet is very low carb now compared to what it was before.

I don't know what Guaran Masala is to be honest but cauliflower is one of the veggies I do eat. I love cauliflower cheese but I guess that's out now too because of the carbs that would be in the sauce :(
Absolutely not, you can make a cheese sauce with NO carbs by adding grated cheese to a dollop of Philadelphia with a tsp spoon of mustard
 
Just do Cauli cheese with cauli and cheese - i.e. no cheese sauce because people use flour or cornflour to thicken that. Wife and I just thick sprinkle cheddar over cooked cauli and then grill it to melt the cheddar & brown it. Hardly any carbs and very filling!
 
Thank you all, that is so helpful to know 🙂
 
There are lots of none carby things with which to thicken a cheese sauce, but, to be honest, a small amount of cornflour is going to be ok unless you are going really low carb...i mean, prob a heaped teaspoon would do, and thats going to be about 6 g carbs then 2.7 per 100 g cauli, less than 5 for 100g milk, cheddar cheese is nomally carb free
 
@Alijp Just a quick comment - you can get a basic set of digital bathroom scales quite cheaply - mine are from Boots, I've had them for several years now, cost was about £20
Switchable between Imperial and Metric, I prefer Metric.
 
@Alijp Just a quick comment - you can get a basic set of digital bathroom scales quite cheaply - mine are from Boots, I've had them for several years now, cost was about £20
Switchable between Imperial and Metric, I prefer Metric.
I'm going to need to get some I think. I've always tended to swerve away from knowing how much I weigh tbh but now I guess it's pretty important that I keep an eye on it.
 
I'm going to need to get some I think. I've always tended to swerve away from knowing how much I weigh tbh but now I guess it's pretty important that I keep an eye on it.
I've never been one of these lads who are as skinny as a beanpole, so since I was diagnosed I've kept a better check on my weight, and this year I have been stricter.

My bathroom is small so I have my scales in a corner of the bedroom, placed on a large kitchen chopping board - you need a hard surface
I weigh myself every Monday morning after a pee, before coffee, and naked (don't let me put you off your dinner!)

Set yourself a realistic target; I was 95,8kg on 01/01/23; last Monday I was 81,7kg, and I hope to get just below 80kg on 01/01/24

With a more determined control of my diet and more exercise my BMI & BP are now in the normal/acceptable ranges
Now it's colder weather I've checked all my old wool jerseys which were mostly too tight, and I can fit into all of them again
 
I've never been one of these lads who are as skinny as a beanpole, so since I was diagnosed I've kept a better check on my weight, and this year I have been stricter.

My bathroom is small so I have my scales in a corner of the bedroom, placed on a large kitchen chopping board - you need a hard surface
I weigh myself every Monday morning after a pee, before coffee, and naked (don't let me put you off your dinner!)

Set yourself a realistic target; I was 95,8kg on 01/01/23; last Monday I was 81,7kg, and I hope to get just below 80kg on 01/01/24

With a more determined control of my diet and more exercise my BMI & BP are now in the normal/acceptable ranges
Now it's colder weather I've checked all my old wool jerseys which were mostly too tight, and I can fit into all of them again
I've been looking at scales and found a reasonable set in Argos for just over £20 so i will get those tomorrow.
 
My diet is very low carb now compared to what it was before.

I don't know what Guaran Masala is to be honest but cauliflower is one of the veggies I do eat. I love cauliflower cheese but I guess that's out now too because of the carbs that would be in the sauce :(
Oups that should be garam masala - it translates as warm spices I think - it is a bit like curry powder but it is added at the end of cooking so you get all the fragrance of the spices. I use quite a few herbs and spices in cooking and making drinks, to give a bit of variety to what can be rather similar meals.
 
Oups that should be garam masala - it translates as warm spices I think - it is a bit like curry powder but it is added at the end of cooking so you get all the fragrance of the spices. I use quite a few herbs and spices in cooking and making drinks, to give a bit of variety to what can be rather similar meals.
Sadly, herbs and spices are two of the things i don't add to food, tomato sauce was my go to flavouring on almost anything and everything tbh.
 
Sadly, herbs and spices are two of the things i don't add to food, tomato sauce was my go to flavouring on almost anything and everything tbh.

What’s important is finding the things that you like, and which suit your glucose levels. You may have to go for some slightly ‘out of comfort zone’ experiments here and there, just to see how your tastes are changing. Because that will happen gradually as your brain and tongue get used to your evolving menu. In the first years after diagnosis I would occasionally ‘treat’ myself to something I used to like, only to find that it was now unpleasantly sickly, or just not very nice. But this does take time to happen.

But the aim is to find a way of eating you enjoy, and can sustain, while also keeping your BG levels in check. The really tricky thing is that blood glucose responses to various foods are highly individual, and it can be impossible to say which types and amounts of carbohydrate will ‘spike’ your BG without checking for yourself.

You can use a BG meter, taking a reading before and again 2hrs after starting a meal, to see what the differences are, to identify any carbs that seem to be rapidly raising your BG (initially in a way the numbers themselves almost matter less than the differences between them).

Ideally you would want to see a rise of no more than 2-3mmol/L at the 2hr mark. Once you can see how you respond to different meals you can begin experimenting with reducing portion sizes of the carbs where you see bigger rises. You might find that you are particularly sensitive to carbohydrate from one source (eg bread), but have more liberty with others (eg oats, basmati rice, or cooled and reheated pasta) - It’s all very individual! You might even find that just having things at a different time of day makes a difference - with breakfast time being the trickiest.

Over weeks and months of experimentation you can gradually tweak and tailor your menu to find one that suits your tastebuds, your waistline, your budget and your BG levels - and a way of eating that is flexible enough to be sustainable long-term. 🙂

If you need to self fund your BG meter, the most affordable meters members here have found are the SD Gluco Navii or the Spirit Tee2 - which both have test strips at around £10 for 50
 
Thankfully checking my blood glucose levels is the easy part as I was given a BG monitor in hospital due to being put straight onto insulin and all the paraphenalia I need is on prescription.

The diabetes nurse at the hospital though rang me a few days after I was discharged and after I read out what my results were said I didn't need to test after a meal anymore so I've no idea now what the food I'm eating is doing to my BG levels 2 hours later, I'm only testing before eating and before going to bed but for a week now apart from just two occasions both first thing in the morning where the level was a little over 7, all of my tests have been between 4 and 7. I don't know whether that is an indication that my BG isn't spiking too high or not though, I still have so much to learn about living with this disease.

I will certainly take on board about testing after 2 hours though to see how different food affects my BG levels but I have already significantly reduced the amount of carbs I eat in a meal which has definitely reflected in weight loss according to the clothes I wear anyway lol.

Thank you for your advice 🙂
 
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