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Hi All

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Microbe

Microbe

New Member
Relationship to Diabetes
Type 1
Hi,
Recently rediagnosed as LADA after 20 years of being considered an unusual type 2.
I asked GP for c-peptide and anti GAD abs as I had read about LADA and it seemed to fit my unusual diabetes journey.
Low c-peptide (59pmol) and high GAD abs (>2000) and I'm now LADA.

Have spoken to a diabetes specialist nurse 3 times in 3 weeks and have been moved from novorapid to fiasp and from split levemir to tresiba also have appointment with a consultant!

I feel much better supported now, its great.
 
Hi and welcome

It must be such a relief to get a correct diagnosis after so long. Hopefully things will start to make some sense now. Also to be getting the support you should have had long ago. Sadly I think there are rather too many people like yourself who are long time misdiagnosed and some who never get a correct diagnosis.

How long have you been on Insulin?
Was there a reason why they changed them both? How are you finding the new ones?
Have they given you Freestyle Libre.... the arm sensors to monitor your levels or are you still reliant on finger pricks?

Hope you don't mind all the questions! 🙄

You will learn lots here on the forum but if you have any specific questions, do feel free to ask.
 
Hi Barbara,
I've been on insulin since 2008, initially novomix 30 but after 6 months went onto basal bolus regimen.
One reason for doing the research and finding LADA was that I was finding it increasingly difficult to get reasonable control in the past year.
I got a free libre 2 from abbott and the dn looked at the traces, novorapid was failing to prevent mid teens post meal highs and taking 2 to 3 hours to start reducing my glucose post meal. She thought fiasp would help with that. So far it's good, much quicker to act and now have lower post meal highs.
Then a couple of weeks later she suggested tresiba to try and stabilise my background. I've only just got the script for tresiba so don't know how that will go yet.
Just heard yesterday that I've been approved for NHS Libre so looking forward to that as I find it very informative.
No problem with questions, it's how we learn.
 
Great news on the Libre and that you are getting on well with the Fiasp.
Hope the move to Tresiba is equally beneficial for you.
 
Welcome to the forum @Microbe

Were you having particular issues with your diabetes management that you are hoping the changes of insulin might help with?

Have you been offered any structured education as part of your re-classification?
 
Like the name, being a microbiologist I was always referred to as a microbe when I was at work. Please you seem to have a more satisfactory regime to try now.
 
Thanks for the feedback!
The issues with my insulin were post prandial spikes and slow action of Novorapid, or Novoslowped as I used to call it. This meant lots of time higher than target which is bad. The change to fiasp is to help reduce the spikes and give a smoother curve.
On split Levemir I am having drops in glucose in the first 1 to 2 hours and intermittent but persistent steep drops overnight which don't disappear with less Levemir. Now I'm settled with the fiasp my dn thought it worth changing to Tresiba to address this.
I am now on a waiting list for Dafne but had to ask and give reasons before acceptance.
I'm retired now but did 37 years in NHS Pathology labs, mostly Microbiology which is where the username comes from
I'm feeling so much more supported now, previously as a type 2, even on insulin, was largely ignored except for the repeat prescription and once a year appt with a nurse who knew less than me about diabetes.
 
Hi @Microbe It sounds like you are in good hands and it is likely to be a lot easier now that you have a correct diagnosis.

There are a few people on here who have found the switch to FIASP has helped them.

Another thing that you could consider if you are still getting spikes Is the timing of your meal bolus. Whatever ‘quick’ acting insulin we use it still takes some time to get active from our injection sites. People find that using a delay between injecting and eating can help the insulin to meet the glucose head on being active when the glucose gets into our blood stream. This timing varies for different people with some using 10 min and others up to 45 min. It is a case of experimenting to find what works for you and this is where the Libre comes into its own (along with many other benefits- so it is great that you now have the prescription for the Libre now)

I found that using a split Levemir helped me to work on the dips at night as I could reduce the night dose without impacting the day time one. However it was only using a pump that sorted these out (and gave me a lot more flexibility in other ways). It will be interesting to hear how the Teresita works for you.

We are all different and it is a case of finding what works for you. The DAFNE course will help you with this, as well as just coming back with whatever questions that you have on here. Plenty of experience to tap into and nothing is considered silly on here. Just ask.
 
Thanks SB2015,
I've been finding I need less fiasp than I was using Novorapid but will try a gap between injection and meal to see how that goes.
I'm sure I'll have many questions for you all in the weeks and months to come
 
Well - if you are human, your BG will and should drop in the early hours of the morning - 2am-3am ish. It's autonomous like eg blinking. It will start to rise again before the body starts to wake up. The liver enables this part from its stores of glucose it constantly stashes. These are a primeval reactions, so I always say it's to increase the BG to enable the hunter to go forth to pot a nearby woolly mammoth to feed the tribe - or I spose to enable the gatherer to harvest the berries, tubers, nuts etc! Bit weird Levemir doing that much really, has a tiny peak between 1 and 2 hrs after jabbing it, and that's all.
 
Interesting, I was having drops at night from 8 or 9mmol to 3.5 to 4.5mmol at about 3am but this has now gone away for some reason.
The inital Levemir drop was about 2mmol in the hour post injection which would drop my late evening 6 or 7mmol to a bedtime 4 or 5mmol which I was not comfortable with for overnight.
 
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