• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • Screening for type 1 diabetes: We now have a new forum section which is for parents who, after having their child screened for type 1, have received a positive result that at some stage their child will be diagnosed with type 1 diabetes. Where possible, please do offer your support and experiences of having a child diagnosed. https://forum.diabetes.org.uk/boards/forums/screening-for-type-1-community-chat.59/
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Hi all no diagnosis

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
L

Lucy-mother-to-khloe

New Member
Hi all so I have a 5 year old daughter called khloe
For the past 6 months she’s has been weeing a lot every 5-10 mins and it’s so bad she even wets the bed or herself at school I just thought she was doing it because she drinks a lot when I mean a lot she will complain she’s thirsty and has a cup full of water every 20-30 mins and goes through 3 water bottles full at school. I took her to the drs and all they done was a urine infection check. Then not long after she started eating a lot she’s hungry all the time no weight gain at all will eat dinner then ask for a snack then a bag of crisps and a sandwich before bed. It got so bad she started stealing food out of kids lunch boxes at school even though I send her in with snacks.
so after looking I came across the symptoms of type 1 diabetes and the drs won’t see her for upto 2 weeks now I have a blood sugar kit at home and was wondering if it’s worth testing her sugars at home she’s asleep now but in the morning I’m just a little concerned it’s not been taking seriously enough
 
Lucy-mother-to-khloe said:
Hi all so I have a 5 year old daughter called khloe
For the past 6 months she’s has been weeing a lot every 5-10 mins and it’s so bad she even wets the bed or herself at school I just thought she was doing it because she drinks a lot when I mean a lot she will complain she’s thirsty and has a cup full of water every 20-30 mins and goes through 3 water bottles full at school. I took her to the drs and all they done was a urine infection check. Then not long after she started eating a lot she’s hungry all the time no weight gain at all will eat dinner then ask for a snack then a bag of crisps and a sandwich before bed. It got so bad she started stealing food out of kids lunch boxes at school even though I send her in with snacks.
so after looking I came across the symptoms of type 1 diabetes and the drs won’t see her for upto 2 weeks now I have a blood sugar kit at home and was wondering if it’s worth testing her sugars at home she’s asleep now but in the morning I’m just a little concerned it’s not been taking seriously enough
Click to expand...

If it was my child with those symptoms I would certainly test her myself.
I'm not sure why they didn't test her blood when you took her last time.
 
My drs are absolutely useless and the line are either always busy or they won’t fit her in to see her.
I think I’m going to test her tomorrow and then I’ll go from there luckily I have a kit from my pregnancy as I had gestational diabetes with her and her younger brother.
 
I would test with those symptoms. Please keep us updated.
 
Yes, definitely test but watch the expiry dates on the test strips. You say she’s had the symptoms for around 6 months. Type 1 in children usually comes on very quickly. The symptoms are tired, thirsty, toilet (weeing a lot), thinner (weight loss).

There are other conditions that can cause similar symptoms so it would be worth speaking to her GP again if this continues and if diabetes is ruled out.
 
As you have the kit then test. That way you will have more information to be able to work out what to do next.

6 months is a long time to have symptoms but not be obviously ill.
 
Would diabetes insipidus be an option to check out?
 
My son has a genetic condition(her brother) and he has diabetes insipidus
Her blood sugars before food were 10.6 tested older kids first and there’s were fine she’s just eaten so will test again shortly and then call drs
 
Yes his condition is de novo which means he didn’t get it from either me of his dad and it’s doesn’t run in the family. Just waiting on the doctor to call back she said it will be today
 
Just got out he’s said all looks fine he doesn’t think it’s diabetes but is going to refer her to paeds anyway as she’s been having problems with weeing herself and a lot for a long time going by our last appointment
 
Well, that’s good news - getting a referral and it not being diabetes 🙂 Now they’ll hopefully find out what it is. It must be unpleasant for her and I hope the paed identifies the cause and it’s easily sorted.
 
Her readings were 10.6- 12.4
5.8 before lunch 10.5 after he said anything under 11 is fine and that even though her level is slightly high there coming down on there own so I’m not sure my drs aren’t great at all but I don’t know much about this so hoping the referal helps find out what’s going on
 
Lucy-mother-to-khloe said:
Her readings were 10.6- 12.4
5.8 before lunch 10.5 after he said anything under 11 is fine and that even though her level is slightly high there coming down on there own so I’m not sure my drs aren’t great at all but I don’t know much about this so hoping the referal helps find out what’s going on
Click to expand...

Glad you‘ve had the all-clear @Lucy-mother-to-khloe - though 12.4 sounds unusually high for someone without diabetes to my medically unqualified mind.

The ’4Ts’ of T1 diabetes are Tired, Toilet, Thirsty, Thinner, and might be worth remembering over the coming months just in case those higher levels rear their ugly head again. Hopefully the referral will clear things up for you, and give you and Khloe some clarity 🙂
 
I thought so to but he said because there coming down on there own he’s not worried and doesn’t think it’s type 1 she definatly has the 4Ts the day after I wrote this post instead of asking me for more water as she was thirsty again she’s snuck the whole bottle of squash upstairs and drank it pure out the bottle with no water in it. It’s getting a little out of hand and my drs are useless. He also told me to stop testing her blood sugars and said it wasn’t nessasery
 
@Lucy-mother-to-khloe have you got hospital referral date yet? The blood sugars could be coming down because the pancreas is still producing some insulin. This is known as the honeymoon period and is quite common, even after a diagnosis. Unless you have a hospital appointment in the next few days, I would be very tempted to take your daughter to A&E tomorrow. There is no need to panic, but I think you need an answer sooner rather than later. I strongly recommend you continue testing.
 
You particularly need to check if she drank a whole bottle of undiluted squash. If she does have diabetes, the sugar in that could push things right over the edge.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top