Hi adult onsetters

[Ridingtherollercoaster]

Hi all, been diabetic for about 10 years and I was 28 when I was diagnosed. It was such a shock. Don't think I've still accepted this condition. Going onto the pump has brought up all the uncertainty again. I hate the trial and error way of working, it feels so destabilising. I know I should feel grateful for the pump and being in a first world country, I really am very lucky to be alive, but somehow, I still feel hard done by.

I wonder if this is because I was an adult when diagnosed. Does/did anyone else feel this way?

Sorry for the moaning myrtle message, just looking for some thoughts and words of encouragement from anyone who has been in a similar place. Thanks.

 

[Ljc]

Hello @Ridingtherollercoaster welcome to the forum. It’s is most unusual that no one has replied to your post. So I thought I would give it a bump up.
We have quite a few pumpers on here and more than a few people dx T1 as adults, hopefully they will be along soon .
Have you spoken to your team about how you are feeling .
Just because we are very very fortunate to live in a first world country doesn’t mean that we don’t get low. As with most other conditions Diabetes of any flavour can be hard work as well as darned tricky at times.

 

[Ridingtherollercoaster]

Hi Lin

Thank you, have spoken to my team. They are as supportive as they can be with the current demands on their time in this overstretched nhs. I feel bad for taking up their time. So I thought some support here might help spread the load so to speak, they're so busy and I don't want to be labelled the anxious one. X

 

[Ljc]

Hi. They are there to help you, so please don’t feel bad for taking up their time, yes I know they are busy but you are important too.
This is a good place too, the folks here have helped me a lot,

 

[Mirran]

Hi there, I’m new here as well, I was diagnosed as type2 when I was 56years old, turned out it was the wrong diagnoses as I found out when I landed in hospital with DKA when I was almost 60years old, when I have down days I try to remember that I am lucky to have the medication to manage the disease, otherwise I don’t like to think about where I would be, it does impact our lives but we can manage it

 

[SB2015]

Hi all, been diabetic for about 10 years and I was 28 when I was diagnosed. It was such a shock. Don't think I've still accepted this condition. Going onto the pump has brought up all the uncertainty again. I hate the trial and error way of working, it feels so destabilising. I know I should feel grateful for the pump and being in a first world country, I really am very lucky to be alive, but somehow, I still feel hard done by.

I wonder if this is because I was an adult when diagnosed. Does/did anyone else feel this way?

Sorry for the moaning myrtle message, just looking for some thoughts and words of encouragement from anyone who has been in a similar place. Thanks.

Think of it as trial and improvement. Like you I found things more difficult after a while. In the last year I have come to regard D as a very irritating friend who just wont leave me alone. So I have learnt to put up with her and get on with it, but that doesn’t stop me having a good scream at her now and then.

 

[SB2015]

Hi Lin

Thank you, have spoken to my team. They are as supportive as they can be with the current demands on their time in this overstretched nhs. I feel bad for taking up their time. So I thought some support here might help spread the load so to speak, they're so busy and I don't want to be labelled the anxious one. X

Don’t worry about how they label you. Their job is to help you.
If there is anything specific that we can help with just ask.

 

[Ridingtherollercoaster]

Thank you SB2015