Hi ‍♀️ newbie 18 months ignorant, help needed and wanted now.

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LadyGrey

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Relationship to Diabetes
Type 2
Hi, Jade, 34 and due to nasty DN i refused to go, and couldn’t take metformin due to other illness being exasperated.. DN said in front on daughter “you’ve now given your children the killer disease, you’ve essentially killed them” she also caused me to be urgently sent to GI a consultant by telling me the only way was zero carbs and I ended up sick badly! But I’m sick and I need to take charge.
Will post story in appropriate threads.
Hi to all xx
 
That DN should be reported - she's insane.
 
I have wrote a report letter to the health practice but it didn’t achieve much other than getting me to the specialist and bypassing her. She even questioned my daughter while I was out of the room about diet and smoking, as if I lied. Then proceed to say my diet was all cakes and biscuits because I asked could I still use ginger nuts for sickness. Sometimes medical professionals cause our problems to be worse. Some that are fab end up being lumped with the wrong opinion too!
 
Hi Jade, so sorry to hear about your experience.

The response you got does sound incredibly insensitive. Are you finding the new person you were referred to any better?

The 'good' thing is that with the right support, you can get back on track so do let us know if you have any questions or concerns that we can help with.
 
The new nurse has been extremely friendly so far, which feels really helpful. She’s free from judgement so I feel I can be open with her. I’m really confused by all the massive differences in information from cutting carbs to Keto level, restrictions on food etc. Yet my dietician and Desmond said 100g carbs per day split up, and it was about balancing sugars. I can still have a treat but it’s about self discipline and accepting a life change. But others say no, I’ve to cut all out.. some say no to all carbs other say measure and some say test. I had 6g of sugar today and most good days I’m like this (Covid) swung me and the fear of getting ill made me ill and left me relying on crackers due to sickness from anxiety. I try really hard and don’t eat processed food, eat veggies and meats. I’ve even switched pasta out for lentil pasta or brown rice but even that’s rare, I eat basmati rice cause brown doesn’t agree with me, again portioned, my only downfall is sometimes I have four pieces of bread in a day if I’m ill that day... I’m scared and can’t figure out all the different information out there.
 
I have found for me being too restricted on food choices I could not maintain, and I have had to find what works for me personally, that I can maintain long term. This is a marathon not a sprint.
100 grams of carbs a day is still classed as low carb but not as low as some go.
 
I have found for me being too restricted on food choices I could not maintain, and I have had to find what works for me personally, that I can maintain long term. This is a marathon not a sprint.
100 grams of carbs a day is still classed as low carb but not as low as some go.
Thank you, for this. I’ve been hit with so much confusing information I don’t even believe what’s right anymore and that’s detrimental in the long term. I’ve had one medical professional telling me cut all carbs essential keto/Atkins, had my GI having to do scopes due to the amount of burning when cutting all carbs, then the specialist headache tablets because of the migraines. Then I’ve had dieticians and Desmond officials telling be balance is key and choosing the right carbs in portion control and sticking to 30g per meal as much as possible with room for snacks. Then others saying that’s wrong it’s been back and forth up and down. I’ve purchased a few diabetes books but even they aren’t consistent some call for fasting, some call for restricting calories others restrictions on carbs and some suggest paleo as the way forward. It’s not a journey I thought I’d be alone in, but it seems no one has a clear answer but everyone has an answer if you get me.
So thank you for your honest comment.
My morning bloods before breakfast are 8.9 mmol is this at least somewhere in the ok? (if anyone can answer) TIA
 
Ah @LadyGrey, I really can see your frustration and your comment that....it seems no one has a clear answer but everyone has an answer... is a summary of much in life, let alone working out the best strategy for dealing with diabetes.

My approach, and it has a lot to do with my technical and scientific background, is to listen to all of it and then tailor what I take from it to what suits me. I also appreciate that other people will look at the information and arrive at a solution which suits them. Nobody is right or wrong in this, its just that different things suit different people and it would be helpful if all those with a "solution" would remember that.

If there is a theme in all of it is that carbohydrate intake is a major variable in determining blood glucose levels and getting control of carbohydrate is the key to controlling blood glucose. There are lots of ways of going about that and so you get lots of different advice if you go to different sources. All are right in principal, you have just got to sort out what suits you. I personally dislike the "named" diets because they imply they would suit everybody. They might work for everybody but not everybody is able for one reason or other be able to stick to them. In my world, I look at the principles and work out how to incorporate them into my lifestyle with the minimum amount of effort.

Your pre breakfast BG of 8.9 (I am assuming that was this mornings reading) is a bit higher than comfortable because anything other than a low carb breakfast would put you into double figures. If it were me I would not be panicking, far from it, but I would be looking at readings taken at the same time over a few days to see if they were consistently at that level. If they were then I would be thinking about general carb reduction to try and bring them down. I would also be doing some checking an hour and two hours after breakfast to see what sort of rise you were getting and how well your system was coping with breakfast. Getting the numbers gives you a place to work from and a chance to see whether what you are doing is working or need a rethink.

A lot of testing I know, but I like the numbers because they don't have an opinion!
 
You are right that there is an info glut about which route to go, but as everybody is an individual what works for one won't work for somebody else. This is all the more tricky for people who have conditions which make some foods intolerable for them, coeliac, allergies spring to mind so a diet suitable for controlling blood glucose may be unacceptable to them. So it is really finding the foods you can tolerate and tailor your menu around those. But as others say testing can give you the confidence you are on the right track. It might take a while to find a way that will suit you without aggravating your other conditions but you will get there in the end.
 
Thank you, for this. I’ve been hit with so much confusing information I don’t even believe what’s right anymore and that’s detrimental in the long term. I’ve had one medical professional telling me cut all carbs essential keto/Atkins, had my GI having to do scopes due to the amount of burning when cutting all carbs, then the specialist headache tablets because of the migraines. Then I’ve had dieticians and Desmond officials telling be balance is key and choosing the right carbs in portion control and sticking to 30g per meal as much as possible with room for snacks. Then others saying that’s wrong it’s been back and forth up and down. I’ve purchased a few diabetes books but even they aren’t consistent some call for fasting, some call for restricting calories others restrictions on carbs and some suggest paleo as the way forward. It’s not a journey I thought I’d be alone in, but it seems no one has a clear answer but everyone has an answer if you get me.
So thank you for your honest comment.
My morning bloods before breakfast are 8.9 mmol is this at least somewhere in the ok? (if anyone can answer) TIA
What books have you bought?
 
Hello and welcome to the forum @LadyGrey 🙂
 
As soon as someone starts to tell you to follow a set regime as though it is a magic spell you know that they cannot help you.
Type 2 diabetics have high levels of glucose in their blood, so to fix the problem reduce the glucose.
Using a meter will show how well you are doing, but zero carbs is very rarely required.
 
Welcome to the forum @LadyGrey

Sorry to hear about the very difficult introduction you have had, and how much harder it has made your journey with diabetes.

We very much encourage members here to find their own way through the maze of choices and options to find a balance and range of options that suits them and supports their diabetes management aspirations.

That may be Desmond’s 100g of carbs a day... or rather more... or somewhat less... but importantly it will be what you find works for YOU and suits you long term. 🙂
 
The mantra seems to be that 'everyone is different', and it is true. What works for me may not work for you, but that doesn't mean I am right, far from it.

I could never achieve zero carbs, it seems too difficult.

I agree whole heartedly with DocB, data, numbers, information is your best friend. How your body responds to different foods and different ways of managing BG is personal to you and you need to know what does what.

The tough bit, as you seem to be finding (like I did) is sifting through all the tons of advice and books and online 'information' and opinion, and then working out what is 'right' and will work for you.

The good news is that when you cut through all the garbage it all comes down to a couple of things, reducing carb intake, and where appropriate, losing weight. Exercise can help and so can a plan of where you want to go, with short term and long term goals.

Some DSNs can be very tough and not very sensitive. They see so many people with this condition, and every one needs encouragement and motivation and help, but often what the DSNs may see is anger, bewiIderment, upset, confusion, frustration. I bet they just don't have the time or energy to 'deal' with it all for you.

Ah, there's THE answer....you have to work it out for your self....thankfully, forums, like this one, are brilliant because they have so many people with different experiences who are there to help and support you, any time of day or night.

I would have remained lost and confused without this forum, but I am a quick learner and once I understood what seemed to work for many here, I formed my own possible way forward, tweaking it as I went.

It's a change, no what I mean is , it's a challenge. But unlike other challenges in life, this challenge can be beaten, best of all, you can, for the most part, write your own rules! Once you know which rules suit you.

I like a challenge, but many may not. So, sift through all the information and disinformation, understand who you are, make some easy choices, adjust and tweak as you go, AND, get support from the people here.

It all takes time and effort which can be hard, perhaps too much on top of all of lifes burdens. Yet I found out, like many here did, as I struggled forward I began to feel so much better with so much more energy for everything, not just for this particular challenge.

It can all be very positive, becomming and staying well, feeling so much better. However, looking up at the top of the mountain can feel very daunting and way too far and difficult. I often think about how they got to the moon. It didn't happed just simply because they wanted it too. It didn't happen because they tried every possible way. No, they planned, tried, and tested and took 'small steps'. AND they succeeded. There were some slips along the way, but also success upon success. They kept going and changed their plans and direction as they learned more.

And, yes, I always wanted to be an astronaut, still do!!!
 
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