Hey there!!

Status
Not open for further replies.
M

Murraymint

New Member
Relationship to Diabetes
Parent
Hi 🙂
My 6 yr old was diagnosed with type 1 in July last year, what a learning curve the past 10 months has been....
What upsetting me alot right now is the attitude of other towards diabetes, "it's only diabetes", "it's treatable... it's not like he's got a terminal illness" and suchlike. People just don't understand.
And he's got his next appt at the hosp next thursday.... how much am i dreading that???? You've no idea..... ooops, (forgetting where i am) you probably do!!!!!
Any snippets of advice would be greatly appreciated

Janet
 
Hi Murrymint and welcome there a Few parents here and I'm sure they will be more then willing to help.

Donald
 
Hi Janet and welcome to the forum.🙂

My son is 12 and diagnosed 18 months ago - so i know what you mean about stupid remarks from people. Mostly its said because of ignorance rather than malice - so its our job to educate the masses!

Try to let it go over your head as you need to save your energies for your son. Why are you scared of going to clinic?

My son started on a pump in august and loves it - his hab1c has gone from 9.6 to 7.1 in that short time - so we have much better control on the pump and he says his life is much better and he has more freedom etc.What regime is your son on?🙂Bev
 
Hi Janet, welcome to the forum 🙂 It's unfortunately one of those diseases that can outwardly appear to be completely controllable, with the people appearing fit and healthy, but behind all that is the constant shadow of complications, getting the insulin right or managing the diet and exercise thing so that the pills can do their job. In every other way, I'm probably fitter and healthier than the majority of my peers, but they don't have to live with the psychilogical impact of a 24/7 illness, and the knowledge that - however good my control is, it's never going to match that of a healthy pancreas. True, there are worse things, but that doesn't diminish the impact that a diagnosis of diabetes has on a person's life, for the rest of their life.
 
Hi Janet, so sorry that your little one has been diagnosed with the D. As for people and their insensitive remarks perhaps u could try to use it as an opportunity to educate them! There r a lot of parents/carers on this site so u'll get a lot of support and advice. Hp the hospital app. goes betta than u think, will be thinking of u both, take care, and welcome to the forum, shirl x
 
Hi Janet

Welcome to the forum x
 
Hi Janet, welcome to the forum.
 
hi janet ...welcome to the forum hope we can help you out ...we have quite a few parents on this forum ...ask questions if you want ...none are regarded as silly x good luck 🙂
 
I know what you mean

Janet - I know what you mean about people not getting it. Its so frustrating, everyday i get asked 'is it levelling off now?' and i reply 'er no, there's so many thngs that can knock the numbers around, the weather, a slight infection, mor eor less excerise, a y in the month' etc

but then i have to remember in my case often people don't know what to say so they are trying to be supportive by beng interested.

At the moment I don't usually have enough energy or calmness to try to educate random people's comments. I'm surviving but not really relaxed.

but friends I try to respond to in a way that they can see its not as simple as - i also point out that just cos he has diabetes that doens't mean he's immune from getting somethng else - so yes its not leukimia, cancer or epilepsy or whatever but if he does at some point have to face something else like that then its an added complication, heck he hasn't even had chicken pox yet and that scares me enough!!!!

its a bit worrying that you're worried (repitition of word there!) about gong to clinic - are your team not supportive? I love going to clinic cos I can be reassured there that the chaotic blood sugars are completely normal!

let us know how it goes,
rachel
 
Status
Not open for further replies.
Back
Top