Help poorly controlled diabetes

[Fuddy duddy]

Hi all I have been type2 since 2000 things went chaotic when I went through the change went from diet controlled to medication since then I have had periods of illness and following tests it always comes back as poorly controlled diabetes this is despite losing weight and eating right and going from 108 to 54. Really at wits end feel like giving up altogether no advice given by doctors other than manage it better.does anybody have any suggestions tia

 

[DaveB]

A figure of 54 is pretty good so why are you still worried? What do you mean by eating right?

 

[trophywench]

Aaarggh, go away and sort it yerself. Not exactly cutting edge or even helpful medical advice then, eh!

Let's start at the beginning - what medication are you taking either for your T2 or anything else?

Do you have and know how to use a blood glucose monitor to it's best effect?

 

[Fuddy duddy]

A figure of 54 is pretty good so why are you still worried? What do you mean by eating right?

Each time iam referred to dietician she can't improve my diet im only worried because I have had joint pain that has put me in bed and out of action and more recently some funny turns. Had blood tests and ecg and yet again results negative so docs response is poorly managed diabetes

 

[Fuddy duddy]

Aaarggh, go away and sort it yerself. Not exactly cutting edge or even helpful medical advice then, eh!

Let's start at the beginning - what medication are you taking either for your T2 or anything else?

Do you have and know how to use a blood glucose monitor to it's best effect?

I take sukkarto and gliclazide and citalopram. Yes have a monitor and have used one for years.

 

[goodybags]

a reduction in your Hba1c from 108 down to 54 is cert an achievement to be proud of,
so your obviously doing something right,
but obviously 108 was a poor control

when are you testing your levels ?
I’ve found it a great help testing sometimes before and then 2-3 hrs after eating
thats helped me to understand how different foods affects my levels.
with some quite surprising results.

 

[everydayupsanddowns]

Well done on the reduction in your HbA1c - getting down to 54 from twice that is amazing!

Sorry to hear that you aren’t getting much practical or actionable support and advice from the Drs you are seeing. I can understand why you might feel disheartened. But keep going! You are doing really well.

What sort of levels are you seeing when you check your blood glucose levels? Do the tablets you take give you much experience of hypoglycaemia?

What improvements would YOU like to see? and how would you monitor progress towards your goal?

 

[Ditto]

Don't give up, I think you've done great. 🙂

 

[trophywench]

All in all, sounds to me that your GP/Nurse is hard to please - cos I for another one, think you're doing great so far. Why don't you send him an email telling him you're going to trade him in for a different one unless he gets some better communication skills and demonstrates them?

 

[rebrascora]

Each time iam referred to dietician she can't improve my diet im only worried because I have had joint pain that has put me in bed and out of action and more recently some funny turns. Had blood tests and ecg and yet again results negative so docs response is poorly managed diabetes

Hi and welcome from me too.

Sorry to hear you are not being supported and congratulated even by your Health Care Professionals. A reduction of 50% in your HbA1c is fantastic and you should be applauded!
Two things that strike me from the information you have provided so far....

1. Can you describe the "funny turns" you mention and do you check your BG levels when you get them? I am wondering if they could be hypos due to the gliclazide.... apologies if you are familiar with hypos and these "funny turns" are something different. It is difficult to know how much experience people have of the different diabetes extremes of high and low and how they sense them.

2. I wonder if the joint pain you are suffering might be neuropathy possibly caused by reducing your HbA1c too quickly. Where are you getting the pain and what does it feel like? Does it feel mechanical, so that you are in discomfort when you move in certain ways or could it possibly be neurological perhaps like a burning sensation or something which niggles on like a trapped nerve, even when you are sitting or lying still?