Help diagnosis of diabetes that's slightly different to type 1

[musicnote]

Hi all,

Sorry I haven't posted in a while but been through a rough time and have been in hospital for a long time.

A year ago I collapsed at work and ended up with weakness on right side, weaken muscle in right eye, balance off, coordination off with hands and walking, non epileptic seizures and stroke like episodes.

Since then, three weeks ago I was diagnosed with a rare form of mitachondrial disorder, a rare form specifically called MELAS. This links to diabetes as it cause it and stops the pancreas working. I have no family with diabetes and suddenly developed it when I was 27.

When I was first diagnosed with diabetes five years ago and I was told they're type 1 and type 2 and some sub types in the middle, this is one of them.

The reason for this link is to raise awareness of it, as its rare and the general public and some health professionals are not aware of it and if this posting can stop someone else going through the year I have of being through great. I've had to moved between hospitals and professionals who were unable to help me and I'm having to justify what's wrong as well as not having a diagnosis.

I have to see a specialist in Newcastle this week to see what I need to do to manage the condition, so wish me luck with that.

As for the diabetes, I currently inject 7 times a day, twice with long acting and the rest with the short acting. Its been suggest about an insulin pump. I don't know anything about them. Can anyone help ?

Please read this link and pass the message on about MELAS to raise awareness. 🙂

Cheers

 

[cherrypie]

Hi musicnote,

So sorry to hear of your diagnosis. I hope the Consultant you are seeing this week will be able to help.

I cannot find a link in your post, that maybe just me, so have added one.
http://www.medicinenet.com/melas_syndrome/article.htm

Hoping things improve for you and please keep posting.

Take care,

Maisie.

 

[musicnote]

Sorry Cherrypie,

Husband says I'm a noob as I ment to say message instead of link in the above positing. however, one page I've found with some detail is

http://en.wikipedia.org/wiki/MELAS_syndrome

Cheers
M

 

[Northerner]

Hi all,

Sorry I haven't posted in a while but been through a rough time and have been in hospital for a long time.

A year ago I collapsed at work and ended up with weakness on right side, weaken muscle in right eye, balance off, coordination off with hands and walking, non epileptic seizures and stroke like episodes.

Since then, three weeks ago I was diagnosed with a rare form of mitachondrial disorder, a rare form specifically called MELAS. This links to diabetes as it cause it and stops the pancreas working. I have no family with diabetes and suddenly developed it when I was 27.

When I was first diagnosed with diabetes five years ago and I was told they're type 1 and type 2 and some sub types in the middle, this is one of them.

The reason for this link is to raise awareness of it, as its rare and the general public and some health professionals are not aware of it and if this posting can stop someone else going through the year I have of being through great. I've had to moved between hospitals and professionals who were unable to help me and I'm having to justify what's wrong as well as not having a diagnosis.

I have to see a specialist in Newcastle this week to see what I need to do to manage the condition, so wish me luck with that.

As for the diabetes, I currently inject 7 times a day, twice with long acting and the rest with the short acting. Its been suggest about an insulin pump. I don't know anything about them. Can anyone help ?

Please read this link and pass the message on about MELAS to raise awareness. 🙂

Cheers

Hi musicnote, nice to hear from you again, but very sorry to hear about the awful time you have had I hope that things go well with the specialist and that he/she can help. If you want to know about insulin pumps then there is no better place to look than on the INPUT website:

http://www.input.me.uk/

The team there are dedicated to help people get approval for pumps and very good with any questions you may have. I know that there are very many of our members who would say that a pump has been life-changing for them, so I wish you luck in getting one!

Please let us know how things go, and thank you for spreading awareness of this condition - it's certainly not something I had heard of before. My consultant thinks that diabetes is more of a 'spectrum' of conditions - what leads us to have problems controlling blood sugar can have a very wide variety of causes and solutions.

 

[HOBIE]

Hi Musicnote. hope you are feeling a little better. I havnt heard of this before. The human body is a excellent piece of kit & it makes you wounder how it works in the first place