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Help bit concerned by too low blood glucose!

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Dawn3010

New Member
Relationship to Diabetes
Type 1
Been told not to adjust insulin and monitor next few days. Diagnosed type 1 nearly 2 weeks ago. Taking 22 morning and 16 evening of Humulini insulin. Am I not eating enough? Any advice would be welcome.
 

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I have eaten a cereal bar, 6 maltesers and now testing just over 7 am I safe to sleep?
I hope you had a good level night.

Are they planning on moving you to fast acting with meals at some stage? That should make your life a lot easier.
 
Hi Dawn
I was being treated with Metformin and Glipizide for T2 before my BG's went sky high into the 30's. I was immediately put on insulin Humilin 1 and initially put on 8 units. I have slowly increased this and by also adjusting my diet have gotten my BG levels reasonably stable. The oral meds were gradually phased out at the same time. My initial BGs were as erratic as yours appear to be. I gradually increased my units on my own volition informing my diabetes nurse of the gradual increases when she phoned for updates. It's trial and error though, everyone reacts differently. Three month on I still get the occasional spike but curiously enough have never gone below 5 on awakening. I'm currently on 24 morning and 21 before dinner and my BGs seemed to have stabilised at those levels.
I should also add that getting a copy of the book Carb and Calorie Counter is a good investment for helping you with your food intake. If your diabetes team have specifically told you not to increase your insulin units then adjusting your carb intake would be the way to go to change your high or low BG readings. Your at a very early stage and you have to take a day by day approach with this condition.
I would also keep some jelly babies, Lucozade or glucose tablets by your bedside in case you start to hypo in the night.
 
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I hope you had a good level night.

Are they planning on moving you to fast acting with meals at some stage? That should make your life a lot easier.
I was on it to start with then they said to stop. I'm waiting on an appointment with the specialist and hopefully things will have settled and they will have a plan.
 
Hi Dawn
I was being treated with Metformin and Glipizide for T2 before my BG's went sky high into the 30's. I was immediately put on insulin Humilin 1 and initially put on 8 units. I have slowly increased this and by also adjusting my diet have gotten my BG levels reasonably stable. The oral meds were gradually phased out at the same time. My initial BGs were as erratic as yours appear to be. I gradually increased my units on my own volition informing my diabetes nurse of the gradual increases when she phoned for updates. It's trial and error though, everyone reacts differently. Three month on I still get the occasional spike but curiously enough have never gone below 5 on awakening. I'm currently on 24 morning and 21 before dinner and my BGs seemed to have stabilised at those levels.
I should also add that getting a copy of the book Carb and Calorie Counter is a good investment for helping you with your food intake. If your diabetes team have specifically told you not to increase your insulin units then adjusting your carb intake would be the way to go to change your high or low BG readings. Your at a very early stage and you have to take a day by day approach with this condition.
I would also keep some jelly babies, Lucozade or glucose tablets by your bedside in case you start to hypo in the night.
Thanks I'm now on 22 and 16 in evening. I am doing all you have advised until I see them in clinic. Got the book but been told not to worry about food yet as too early. I feel so frustrated that I don't feel in control but I know I'll get there..
 
Thanks I'm now on 22 and 16 in evening. I am doing all you have advised until I see them in clinic. Got the book but been told not to worry about food yet as too early. I feel so frustrated that I don't feel in control but I know I'll get there..
Keep going Dawn. I used to drink Milk when my Mother could not get me to eat for day at School. 🙂
 
Why on earth have they bunged you on Humulin I ? It's so old fashioned in this day and age.

When I was on it in the 1990s I had really unpredictable hypos (but there again we're all different) - I certainly wasn't in control of my D either and I wasn't until after I got onto a proper MDI routine. The extra number of jabs paled into complete insignificance in comparison to feeling in control - and at last I could actually KNOW what was going to happen and what time (ish) that would be.
 
Agree with the others - you need to speak to your clinic about moving to a basal:bolus regime as soon as possible. This is the guidance for treatment of T1 released in 2015. People should be started on MDI (multiple daily injections) unless there is a VERY good reason not to.

Are you under the care of your GP surgery or have you been referred to a specialist diabetes centre at a local hospital?
 
Don’t worry, you will get there when you see the specialist. I’m certain you’ll be switched to a basal: bolus regime, which you’ll find much easier to handle. It’s a long road, but the early stages are always a bit hectic.

I wish there had been a forum like this when I kicked off, I could have done with the stacks of friendly and helpful advice. Keep us posted.
 
As others have said Dawn, you are unlikely to get stable BGs until you are switched to Multiple Daily Injections (MDI). The only times I come across T1s being put on mixed insulin as you are is when they are in the care of the GP, who sometimes have no idea of any alternatives, and have clearly not read the recent guidelines. The mixed insulin was all that was available years ago, but MDI is so much better for you.

I hope that you get switched soon. It is likely as soon as you see a specialist (and that is not the nurse who specialises in Diabetes at your GP).
 
As others have said Dawn, you are unlikely to get stable BGs until you are switched to Multiple Daily Injections (MDI). The only times I come across T1s being put on mixed insulin as you are is when they are in the care of the GP, who sometimes have no idea of any alternatives, and have clearly not read the recent guidelines. The mixed insulin was all that was available years ago, but MDI is so much better for you.

I hope that you get switched soon. It is likely as soon as you see a specialist (and that is not the nurse who specialises in Diabetes at your GP).
Thanks for replying, I still am confused and not seeing my consultant until 24th April but the diabetes nurse is on call if I need help. They are waiting on bloods coming back to confirm type 1 due to my auto-immune history and family history. Is the Humulini insulin long acting and ipedra the one that would be classed as meal insulin. Really confused, really hungry during the day or if I have breakfast at 7am I'm starving by 10am, is this normal?
 
Humulin I is really more of an intermediate insulin but is used as basal (long acting). Do you mean Apidra? If so, then yes this is a short acting insulin to cover carbs in meals. If you are taking both Humulin I and Apidra then you are already on MDI or basal/bolus regime. Only your nurse or consultant can advise on your doses.
 
Humulin I is really more of an intermediate insulin but is used as basal (long acting). Do you mean Apidra? If so, then yes this is a short acting insulin to cover carbs in meals. If you are taking both Humulin I and Apidra then you are already on MDI or basal/bolus regime. Only your nurse or consultant can advise on your doses.
 
I was on the Spiders initially for the first few days but then nurse told me to stop. Guess will just have to wait and see what happens at my next appointment.
 
Just take it one step at a time. Things will settle.
 
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