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Hello!

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Hi and welcome

So sorry to hear about your young adult's diagnosis and at such a pivotal time in their life. Very difficult for you as a parent and them as the diabetic. Hope you have a good team to help you all but again I believe about that age you swap over to adult services which are not so comprehensive, so do feel free to ask for help here with anything you don't understand and hopefully we can point you in the right direction.

Can you tell us a bit more about how diagnosis came about and which insulins your "child" has been given and most importantly, how they and you are coping with the diagnosis..... We all know how totally overwhelming it is in the beginning so do be assured that it does get better as the days and weeks go past.

Hopefully some other parents will be along soon... I know @stephknits has a teenage daughter of a similar age who has not long been diagnosed but Steph is also diabetic so probably has a bit of a head start on you knowledge wise. @Thebearcametoo and @Bronco Billy are also very knowledgeable parents who are regular forum contributors and will hopefully come and say hello when they are next online and give you some reassurance.
 
Think it's age 19 when you officially move from paediatric to adult services these days - but depends really whether it's an entirely different team in a totally different setting or the same professionals same place, just on different days. You do get more automatic access to Psych services via childrens services generally than via normal adult ones. At age 16 you're on the cusp because although a 16 yo would expect to play their full part in their healthcare discussions - if still living with parents, parents still play a massive part in healthcare of their offspring but not like eg a 3 yo. Presumably still in full time education - so the same discussions with and about school need to take place as they would aged 6.

How is the 16 yo handling their diagnosis so far and how recently actually is it? Lad or lass?
 
Hi Barbara, Jenny, thanks for your messages. She is on Degladec and Novorapid. She has handled it reasonably well, she is a calm and sensible girl. The thing we are struggling with is that she is now feeling quite unwell, having felt ok for a couple of months. She frequently feels tired, headaches, sweaty, pale and palpitations-basically just feel ill. The consultant told me today this is anxiety- i just don't buy this at all. we have had a thyroid test (she is also losing hair) and coeliac, but all is fine there. Do you have any ideas? Sorry to ask with an issue immediately! I feel totally powerless to help her
 
Hi and welcome. As Barbara says, I have a 17yr old who was diagnosed last yr at 16. Also quite sensible so no worries there. Mine seems to get very tired a lot. I took them to the gp and they ran bloods and found very low vitamin D, probably due to staying in much more! Might be worth a look.
How are their blood sugar levels when they have these symptoms?
 
Generally quite normal, even high (8+). On another forum they've suggested false hypos, which seems a possibility. But it wouldn't surprise me if low VitD and maybe iron too. Thanks- i will suggest to the GP
 
Definitely get some regular blood tests at the GP. It might be false hypos but if she’s been near target for a while it seems odd that she’s suddenly getting them now.
 
Thanks, we will. It is all a bit hard to explain. I guess there are any number of other issues including other AI conditions which would cause these symptoms but we will keep plugging away with the GP and diabetes team until we get some answers
 
Hi CharlotteScr, welcome to the forum.

So sorry to hear about what your daughter is going through. A combination of Vit D, iron and anxiety issues is common, especially for girls. Keep at the GP as they can do a full set of blood tests that will help to get a better picture of what's going on.

The challenge is that these symptoms can be anything but it's always worth getting a second opinion. Do let us know how you get on.
 
Cherrelle DUK said:
Hi CharlotteScr, welcome to the forum.

So sorry to hear about what your daughter is going through. A combination of Vit D, iron and anxiety issues is common, especially for girls. Keep at the GP as they can do a full set of blood tests that will help to get a better picture of what's going on.

The challenge is that these symptoms can be anything but it's always worth getting a second opinion. Do let us know how you get on.
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Thanks Cherelle, that is really helpful, we will definitely start seeing the GP. I am really grateful for all the advice and support here, it’s a big relief! Thank you all
 
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