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gem123

gem123

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hi my daughter has recently been diagnosed with type 1 diabetes, my sister has it and my partners father has too. it came completly out of the blue, she was just drinking more and weeing more but has always drunk alot, and she also had a sore front and back bum for about 3 weeks but went away for a week and come back worse.

So i took the docs with a urine sample, thinking that they would say its a urine infection and give cream for her bum at the worse, not thinking for a second of diabetes but they tested her urine and they rushed us to hospital quickly, the docs said she was that poorly that they were suprised that she wasn't in a coma which i think is the scariest thing about it there was no showing sign she was niggly in her behavior but i thought it was general toddler before pushing her boundaries but looking back it was a sign!

she has to inject twice a day, and we check her bloods at least 4+a daily and through the night we check every 2 hrs. her bloods are very unstable but thankfully her hypos have quitened down the last few days but there is always this worry that she will go low without me realising again.

she hates the injections, but hates the bm test more which is hard as we have to do that more regular and have to pin her down on many accasions,even simple trips to a country pub brings stress to how long the food will take, what quality it is, wheather she will like it etc etc sometimes my body can't keep up with my head i can't sleep through worry and have a horrible feeling at the top of my stomach constantly, which makes me feel sick, i now know what people mean sick with worry!!😱

i am also ill healthed with problems with my bladder, so the two of us need some looking after which is where my partner is amazing i am very lucky to have the support and love 🙂

also the diabetes team at the hospital are very supportive, which is very reasurring, its only been a week yesterday but i already feel we have learnt alot, and everyday gets a tiny bit easier how many people are looking after really young children on this forum?

thanks for letting me vent some of my worries it helps:D:D
 
Hi Gem! Sorry to hear about the troubles you're going through. How old is your daughter? I was diagnosed just before my 3rd birthday.

Have you discovered the emailing list over at the Children With Diabetes website? They are a wonderfully supportive group of parents happy to help and give advice if you need it. There are a few parents on here who are on it 🙂
 
hi shiv my daughter is 3 yrs old and 4mths shes a lil staR1 yes have got on the mailing list with children with diabetes thank you have found there website very helpful just wish there was more of it to read 🙂
thanks for your time and saying hello:D:D
 
I know it's not much help but...I've always been grateful for being diagnosed at such a young age, as I don't remember NOT being diabetic. So for example, it's not like I remember having a huge lifestyle switch of being able to eat loads of sweets and then stopping or anything. T1 is just a part of my life I've always had.
 
Hi Gem, welcome to the forum 🙂 Very sorry to hear about your daughter's diagnosis, it must be an extremely worrying and difficult time for you all. :(

You can come here any time to let your feelings out, you'll find lots of very supportive and helpful people here who will be happy to do whatever they can to help. Whilst your family obviously has lots of experience of diabetes, it can be useful to have a good reference book handy to help you understand when certain situations arise. One of the best is Type 1 Diabetes in Children, Adolescents and Young Adults by Ragnar Hanas. A lot of parents think of these as their 'diabetes bible' as it is very comrehensive and extremely well written, so well worth investing in. I refer to my copy regularly and I'm 51!

Hope things calm down soon and that your daughter becomes more accepting of the fingerprick tests and injections. Also, it would help control if you could get her on basal/bolus insulin. It does mean more injections, but hopefully better control and hopefully fewer hypo worries.
 
Hi Gem and welcome. I'm sorry you're having so many issues with getting your little ones BMs.

I was diagnosed just after I turned 8 and nowadays can't remember much of a life pre diabetes because I was so so ill. So in a way, your little one is lucky that its just going to be something that's always there and will be normal for her.
 
Hi Gem,
My youngest child was diagnosed at 18mths (he's now 3yrs 2mths) and I can relate very much to everything you say. It really is life changing for the whole family and very few people not in that situation can appreciate how difficult it is. thats the good thing about this site - everyone really does understand and it's a great place to vent your feelings! Things do get easier but there are always hard days. As Shiv said I am thankful Ben was so young as although it has been exceptionally hard on us I think the older a child is at diagnosis the harder it can be for them. Ben is on basal/bolus regime or MDI (multiple daily injections) and I have no personal experience of the twice daily injections but I'm sure some of the other parents on here who have experience of both will be along soon. MDI does seem to be much more flexible though we are hoping to move onto an insulin pump soon.
There's always someone here to help with any questions or just for moral support!
Ruth
 
Hi Gem

I can relate to everything you say even though my son is 20!

Joel was diagnosed 3 weeks ago. To say it was a shock is an understatement. He was perfectly healthy in his 2nd year at uni and just woke up with blurred vision. I had NO idea it could be diabetes so the shock was terrible.

This site has been wonderful and saw me through the early days of confusion, bewilderment and worry. My first post was at 3am as I couldn't sleep and I definately felt sick with worry (still do at times!)

Gradually we are adjusting. Shopping and food is still a nightmare. Joel is only injecting twice a day so has to restrict his sugar intake and everything has sugar in it. can't wait for him to inject more for more flexibility.

Joel is 20 so the adjustment has been massive...but he has been a star. I am now exploring cook books and looking at new recipes.

I do know how you feel... I am sure mums feel it the most. Interestingly a friend of mine came round who is Type 1 (she has just had a lovely baby boy!) and she just accepts it as part of her life. Her mum came too and she still worries 17 years on but she says it does get easier.

I still feel like I am in a diabetic bubble and I want to get out! I suppose one day we will emerge and feel relatively normal again

take care xx
 
Hi Gem

Welcome to the forum. Your daughters diagnosis sound's similar to my own. I hope you find the support you need here 😉 x
 
Hey Gem,

Welcome to the forum and Im sorry too that this has happened and your reason to be hear :(. I can't imagine what it is like to be a parent and be going through this with such a little one, but you will find some support and information on this forum and best of all, understanding from people who are affected by diabetes and have been there.

Such early days- is your sister a good source of help/ support with her experience?

Im so gald you have a good medical team. I hope with can also provide you with some support and friendship on the forum.

All the best to you and the little one,

Lou xx
 
Hi Gem, welcome to the forum.
 
hi thank you all so much replying, 😛
we are all slowly getting our head round it all, we seem to be getting more stable bloods as well which is a relief,

i loaned the type one book for children out on friday, am very impressed lots of info in it so slowly making my way through it lol,,
at the minute gonna stick with the mixed insulin just until she gets used to having injections, i feel i gotta listen to the diabetic team until i can look into it a bit more
silent assasin im glad she was diagnosed early its tough now but when she grows up she won't know any different so im lucky really🙂
my sister is great she explained things to me which i didn't understand, and she will have a lovely lil bond with shannon,
were off on our hols for 4 nights just to pontins we figured theres no point putting our lifes on hold, although im not gonna deny that its gonna be knackering with not havin much sleep, but she deserves it so much

thank you everyone for ur replys xxxxxxx
 
Hi Gem, welcome to the forum :D x
 
Mum of a type 1 toddler

hi gem,

just offering a hand of welcome to you. my son was diagnosed 3m ago aged 2 yrs 6m. I have found myself on a rollacoaster non stop with lots of irritating factors which keep throwing me off balance.

I find this forum invaluable and know that people on here are my friends and guides.

some things have got easier and then been a struggle again, some things have begun to blend into life and some things continue to be a challenge for us, in relation to JP's 'dire betes' (as i call it).

Mini milks are a good treat only 5 carbs each and wafer biscuits are quite good too.

good luck to you,

rachel
 
welcome to the forum, I was diagnosed just over a month ago at 30, so at least i was able to understand what was going on, and how things act. I changed from the twice daily novomix onto MDI Levemir and NovoRapid about 2 or three weeks ago and it's been an immense improvment, as it allows more flexibility and more control. Talk to your DSN about it.

Can't imagine what it would be like to have to do it for your child - I can just about manage myself...
 
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