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Calamity Caroline

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Relationship to Diabetes
Type 2
Hi Everyone,

I'm completely new to this site so a big hello to you all.

I am 34, type 2 (diagnosed 5 years ago) and completely fed up!

I have been taken off of Metformin as I have been told that as I am only 7 and a bit stone it is not suitable for me. I was tried on Gliclazide and suffered awful side effects. I am now being tried on the the smallest dose of Repaglinide, and keep getting hypos, both at night and during the middle of the day.

Wondered if anybody else out there has had an experience like this, and can give any advice if they have...

Ta!
 
Are they quite sure you're T2 Caroline? I don't have any experience of Repaglinide, but was on both Metformin and Gliclazide, as well as a number of others, before I was re-diagnosed as T1.5 and they made me very ill too. Besides which, they didn't work.

It may be the timing of your meds is wrong for you. Do you take them with meals?
 
I was tested for 1.5, but it came back negative.

I take 0.5 mg Repaglinide about 20 minutes before each meal, but regularly have readings of between 2.8 and 3.9 about two hours after meals.

Pretty fed up. Was told that if I suffered side effects from Repaglinide then the next step would be insulin.
 
Hmm, I've no clue what might be going on. Perhaps one of the other members will have some ideas to help.

Oh, and I should have said, welcome to the forum.
 
Hi Calamity
Welcome to the forum. I can't help with the type 2 medications because I'm an insulin gal, but are your blood sugars high before you eat?
 
Hi Calamity and welcome. 🙂
 
Welcome to the forum Calamity Caroline 🙂

Repaglinide makes your body pump insulin. It sounds like it's being a bit too effective! That means you either have to eat more carbohydrate to make your blood glucose stay higher - or try to get something less potent.

The problem is that these types of pills are very much a blunt weapon :( In this way, insulin is actually much better as you can control the dose more exactly - but it does have other issues.

Sounds like your Nurse or Doctor lacks a bit of empathy.

Do you have any diabetic relatives? Type 2 can be strongly genetic. Although given your weight and age and your strong reaction to what is an insulin stimulator, surprised they haven't tested you for MODY-3.
 
Thanks everyone, you've been very helpful.

I've got an appointment with my nurse next week, so will discuss it with her then.

I'm quite glad I've found this place. Having Diabetes can be a muddling and lonely experience
 
Welcome to the forum.

Have the medical types considered not giving you any medication at all?

I have heard of another possibility called reactive hypoglycemia where the pancreas goes into overdrive after a meal containing carbs.

Anyway, it is best that you talk to your GP/DSN about this because anything we say here is pure conjecture.

I hope that you get an answer soon.

Andy 🙂
 
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